dlp252

Slow drive-by:

Help, went back, can't find my way out... SEND DINGOS!

Sheesh we were a talkative group back in October! Still haven't found Rachel's results.

However, I am finding some pretty funny stuff. Tomorrow I may do a snippet thing on a few of the things I saw.

Eyes blurry, gotta go. Practicing solo with group tonight.

There is so much negativity coming from some people on that board. I was reading a new thread where people were attacking Scott and Gigi.....basically saying they're "promoting" ART, Klinghardt, etc....for their own personal gain.

I read one thread like that...I wanted to reply SOOOOOO very badly that he was DEFINITELY NOT in it for financial gain, but he had already replied to it, so I thought it best not to. It makes me so very sad when I see him and others attacked. He is just the nicest guy...he's alway gentlemanly about his replies on the board too...I don't think I could be as nice.

Oh Okay...I like [PAs][ooops editing to see that it was a nurse practitioner, which in my book is similar to a PA, lol]...they are quite good. I was thinking it was "just" (not saying that negatively) a nurse...like the ones who take blood pressure and stuff. They are knowledgeable but won't really tell you much.

I don't know...I feel sort of up in the air too. My doctor alluded to treatment down the road, but he really never said anything about antibiotics except that he was horrified at my antibiotic history and was afraid of giving them to me. I see him on the 26th so maybe he'll talk more about that then.

HAPPY BIRTHDAY!!!!!

It's not a lot of work. Just really hard to read when you do both of them.

I don't know the signifigance between IgG and IgM. To me, they both need to come down to get better (but I'm not an LLMD and don't know what I'm talking about).

I combined the positive and IND's to make for easier reading.

It's not hard to do...I kind of want to keep this list because I can hardly remember (well can't actually) what my own test was, and I often want to look at someone else's too. This way anytime someone posts their results I can just add it on. My brain cannot compute the way this board smushes everything. Hitting reply does help space it out though.

I've already got Chloe added.

Okay, I'm confused ... I was hoping a latte and a workout would clear my mind ...

Nurse at LLMD says Chloe's test shows exposure, that we need to put her on a month of antibiotics to see what happens, that we don't know if it's a problem for her ... that the way Lyme testing is, if we had taken the blood on a day her elbow hurt and she had a headache, that it could have been a clear positive.

I understand that abx can stir things up and yield a positive test.

I thought that if you had a Lyme specific band and had never been treated for it that you had it.

Do you think the nurse is being non-committal because of all the persecution of LLMD's? Or do you think it's really up in the air as she is suggesting?

Hum, probably non-committal, but maybe not only cuz of the persecution... she may just not want to say too much before you talk to the doctor. I do think they may be more cautious when children are involved though.

I with ya though...I'm confused on the "if we had taken the blood on a day..." thing... Really? Can blood antibodies fluctuate on a daily basis without antibiotic intervention? Wow.

yup....I payed $95 for both tests. My insurance payed 50%

I still find this soooo odd...my insurance reimbursed me for the entire $190! I hope they don't come looking for that later.

Thanks Andrea and Carla!!!!!! Got it. I'll just keep a running spreadsheet and once I get it all together can send it to anyone who wants to see.

Wow - out there doing stuff - imagine that!.

(Imagining and knowing the day will come)

For all of us!!

You don't know us very well. I suspect we would all unlock the window, in fact I am pretty sure it would be Beverly first, yoohoo Bev.

I don't know...me thinks there might be a struggle to see who could get there first.

Anyway, I thought I was doing fine by just reading the labels and never suspected that any of the products were causing anything. They never entered my mind

So the other day, I emailed them asking for a list of their products that contained gluten. I was just thinking that I'd like to try some of their bath products and thought that with a list, it would be easier to order.

Imagine my surprise (and horror) to see the very sunscreen product that I HAVE BEEN SLATHERING ON MY FACE FOR WEEKS as the first one listed in the "contains wheat" column.....

...

Interestingly enough, although I have had D almost daily, the worst has been the palpitations and the anxiety. The lightheadedness and the reflux is also back, so I'm hoping that this has been the culprit all along here.

Oh Patti...I don't give much thought to my products either, but it certainly COULD be causing some of my symptoms to be worse.

Love the spice name under the photo...very applicable in your case.

I'm okay with it. Everyone has their life difficulties, and Chloe has the advantage of knowing what hers is. Her past couple years has been tough with schooling and I have hope that this will make things better for her. She's not sick like some of us, so it should be easier on her if she does require ongoing treatment.

I think you've got a good take on it!

I hope everyone else is doing as well as possible today. I'm still doing a bit better the last two days, though my diarrhea is back, but not as bad as it was before. I haven't taken any imodium since Monday, which is a pretty big step for me. I'm just taking things one step at a time now.

Glad you are doing better! Sometime all we have is one step.

Pajama Party would definitely be TOOO FUN!!! I have fuzzy slippers to share.

Okay, here are the details ...

IgM -

34 IND

66 +

IgG

41 +

58 +

Nurse said that we'll do a 30 day round of antibiotics and see what happens. Our phone consult will be next week to cover the specifics.

Wow! Glad you got the results before Tuesday...that would have just been too long for ME to wait.

The 30 days might change things a bit too.

Hey everyone...help me, lol. I'm making a spreadsheet of everyone's Igenix results with IgG and IgM separated...I have Bev, and both of Laura's and of course mine and now Chloe's...

Can you all give me a month that you might have posted your results here so I can narrow my search down. I've just spent 25 minutes trying to search "results"...that was not productive.

I don't have a clue what my ration is. I just try to get between 50-60 grams of protein a day. Most people go over so I probably do to.

I eat approx. 100 grams a day, and that's still only 30% of my calories.

I got a message on my cell phone from my doctor's office. They said that Chloe's IGeneX test showed positive for some exposure to Lyme. She had one positive Lyme specific band. That's all I know ... I left another message for them to call me back with more details.

Think this will mean she needs to be treated?

We have our phone consult on Tuesday, so I'll have details then.

Kitchen guy is here, gotta run.

Wow, I don't know. If it's only the one band, they may try other things first...like supplements or something. OMGosh...Tuesday is tooooo far away.

if my insurance doesn't cover the tests-----about how much could i expect to pay?

The two Western Blots (IgG and IgM) were $190.

On top of that I had to pay for the doctor visit...most lyme doctors don't take insurance...but my insurance company did reimburse 70% of that as well.

and part 2

But seriously, I haven't even opened the case in 2-3 yrs, and maybe 3x in the 2yrs b4 that. THAT's why it's so exciting to be SO itchin' to play!

Still this is very exciting!

So they are using this new homeopathic for detoxing yeast and aspergillus mold...(which always shows up for me in BioSET). She wants me to try this to see if we can get some of these yeasts and molds to start detoxing.

...

We talked all about what went on with Dr. Amy and what new treatments I've started. I mentioned the LED....Anna is a little concerned about this for me because of how sensitive I am. She thinks LED might be too rough for me.....but theres still alot to learn before I even venture into something like that.

As usual, your appointment sounds really great. I'm interested in the homeopathic stuff...I'm taking a detox thing for bacteria (Detoxosode), which Scott STILL says is really helping me, so I continue to take it...but would like to get rid of molds too. I think they have one for molds...maybe I should ask Anna about it.

I can see why Anna is a bit concerned though...from what I read, the LED is just like any other detox thing...too much might be rough indeed. BUT, the difference that I understood from that article is that they can control it better. There are ways that I think they can control it or test it...I'm sure Amy will take that into consideration.

I'll also be in CA in August - San Jose and Pacific Grove. Any of you crazy guys and gals live near there? I love Big Sur - the Redwoods, beach, Monterey cypress, and sea otters!

Hey Claire! I live near San Jose! We should try to get a California girl get together for while you're here...doesn't have to be a long one.

Donna...I'm noticing more and more posts on LymeNET about LED. Probably more awareness after Dr. Cowden just had a seminar a few weeks back. I know Scott and Dr. Amy were there....unfortunately Anna didnt go to this one.

Yes, I noticed that too, and there doesn't seem to be a lot of negativity either...usually people pop up on the "alternative" types of threads who try to nay-say it, but I haven't notice a lot of that with LED. I'm so very interested in it and hope that Anna some day decides to branch out.

By the way, how is everyone else doing?

Ah, so sorry you are in so much pain and wish there was something I could advise to help...I just don't know.

I think I've discovered what was causing my D, or at least making it worse, so I'm actually feeling better these days.

I think the hardest thing is we read about these supplements and other treatments that do wonders for other people and we want to have those results as well, but keep in mind that you ahve to listen to your body!!!

It can be very frustrating becasue we are in pain and we want results but keep in mind if your body is telling you something is not right you have to just stop it and find something different that can work for you.

Very wise advice...it's so true!

I have an appt. at the begining of July for a doctor who deals with metal toxicity and lyme. I am getting really impatient!!!

Yay, me too (getting impatient for you)!!!

i think the 'youngins' on this thread (well, minus Morgan!) are Mia, myself, and Jin. I can't remember about Julie though...

but what does it truly matter....i think everyone is so young at heart here

, yeah and I'm just about the senior citizen I think!

Hehehe that was mostly to get a smile from dingy.

There's not currently much room for teasing here w/ too many serious issues goin' on.

(Feel free on sillythread tho!)

There is ALWAYS room for teasing here! ALWAYS!!!! Dingy huh. And, why is miss psue-see so quiet...where has that girl gone...

Is that like a sound purifier? Or does it cut down on excessive noise? I am not sure what you are talking about. I was thinking about one of those sound therapy things. You know, the ones that help you relax?

Actually it's just a little machine that makes noise...like a fan, but puts out no air flow. I thought about those relaxation things, but any changing noise bothers me....this is like a steady air flow sound without the actual air flow. It covers all the outside noises like people talking and stuff like that.

Ok, so how high is a high protein diet. Normal for adults seems to be 50-70 or so.

I'd love it!

The program on this site scrunches everything together, rather annoying isn't it?

As much protein as I eat, I only get about 30% of my calories from protein...50-60% comes from fat and the rest from carbs. Even when I did Atkins, that was my ratio. I can get my protein up to 35% if I eat lower fat beef, etc.

I blame Donna.

HEY!!! My posts are like two sentences long...can't blame me!!!

I would definately see about spacing the remaining removals farther apart and also doing more things to help yourself detox.

Yep, I would tend to agree. I thought mine was fast...we did the first two sections two weeks apart, then I took a little over a month (or was it two) break, then we did the last two sections two weeks apart. I wouldn't have minded going slower than that.

Andrea...you are such a sweetie.

DEFINITELY!!!!

Hello and welcome!

I too had a sinus infection for nearly three years...I was on antibiotics and prednisone nearly that entire time...in ever increasing doses until finally I was taking 4,000 MG per day of antibiotics.

My "sinus infection" mysteriously cleared up when I went gluten/casein free and I haven't had a serious one since!

The gut controls a lot of what happens in the rest of the body and in some of us, it just happens to control the head.

Yes, very worried about both Mia and Lisa! Feel a bit helpless!

I am glad that others have this issue with sound. I wondered if anyone else dealt with that. This is really problematic when you are trying to sleep at times. Everything sounds so amplified. RiceGuy said he has very sensitive hearing and taste abilities, and was curious if it could be a Celiac thing, too. It is an interesting question to explore.

I bought a sound conditioner machine for my room so I would at least have a constant sound. In the summer I use a fan, but had to have something for winter when it's too cold for a fan. So far it's working out pretty good.

I'm loving music again. (I mean *reeeaaaalllly* loving - lookin like a lunatic at stoplights). Enjoyed the hell out errands(!) even and wish I could break out the sax RIGHT NOW! (Prob not the best idea in these apts - I play loud.)

Very exciting!!!!

Oh, and about the phone call...you can't mention that here without having a whole bunch of teasing.

So glad you are feeling so good. This wouldn't have anything to do with a certain phone call would it? No need to answer, I'm glad you two are friends.

You said to put it on the backburner but you brought it up.

Yep, yep, yep!!!

is this something that insurance will cover?

My insurance paid for the test. Igenix is out of network I believe but my insurance company paid the entire thing. Normally I pay 30% for out of network, but they paid the whole thing much to my surprise. I had to pay up front though, but got reimbursed.

Oh Chrissy, yes, definitely I think you should have your boys tested and yourself too! Especially remembering the tick bites...

I can't even pinpoint when I might have gotten bit.

DONNA ..AFRAID TO DRIVE A NITE NOW. I CAN'T DO BRIGHT LIGHTS EITHER. ALOT OF US I GUESS

GOOD LUCK WITH THE SOLO...BEEN MEANING TO CHIME IN ON THAT.

Thanks!!!

I am very sensitive to light as well. Sound also bothers me a lot. I jump at the sound of the phone a lot of the time. I never used to be that way. Everything just seems so loud now! Is anyone else like this?

Yeah, loud sounds bother me and I am really jumpy lately too.

Anyone else have a problem with vitamins, or why that may be the case?

Vitamins are hit and miss with me. I can take some and some not. There are a lot of reasons why a vitamin might not agree with a person. I can't take essential fatty acids...don't know why, but can't. I can take probiotics though...don't seem to have an obvious reaction, but in ART and BioSET some test better than others.

I have a sign by my backdoor that says:

LOVE it!!!!!

I had another appt with the physical therapist gut today I ahve alot to say about it (all positive ) but don't really have the energy right now.

You said foodcentric!!!

Can't wait to hear about it all!!

My mom STILL won't get tested for Celiac.

Mine won't either...she has many of the gastro symptoms I have and I got the gene from SOMEONE, lol, but she won't go get tested.

Donna, thanks for the information, is it available over the counter or is this through a doctor?

I buy it at my BioSET place...so I don't think it's over-the-counter in that sense...I think "practioners" sell it, but not sure they have to be licensed or anything. Their website has a section for practioners and for patients, but not sure about ordering or anything.

Scott the ART guy suggested this for me, and he has some supplements and such at Anna's place since he does his ART testing in her facility.

Carla,

I swear (though I can't remember who said it) I read here that the charcoal was somehow processed with coconut. Was it Vincent, maybe?

I think it was Vincent...I think he even called someone about something. How's that for clarity.

Would lyme disease show some sort of irregularity in my blood count? Just asking because mine are fine.

Is there a test kit you can get online to send off for?

My blood counts have been fine for several years...in April, I had a low lymphocyte count, but my regular doctor said nothing about it. I don't believe it had anything to do with the lyme though...I think I had some kind of virus at the time. Other than that, I have never had an abnormal blood workup.

Carla ordered her Igenix kit on her own then took it to her doctor who was willing to sign off on it and draw the blood. I went to a lyme literate doctor who ordered the kits and drew the blood and also was familiar with reading the reports.

Conventional doctors are not taught about lyme, they have a very basic knowledge...kind of like most doctors have a basic knowledge of celiac, but in both cases that is usually what they were taught in medical school, which isn't necessarily how it really is as we have mostly all learned.

Yep, I get the thumb pain once in a while, but mostly mine is the knee or big toe on my right leg. I had major knee joint pain (both knees) before I went gluten free, and after going gluten/casein free, it cleared up a bit, but the right knee, toe and thumb still get that arthritic type pain. I don't have arthritis.

I've been tested for a BUNCH of stuff and everything has always come out normal. I've had MRIs, CT scans, Xrays, you name it. And, after being gluten free for a whole year. I finally felt I had ruled out enough and decided to rule out Lyme as well. To my surprise, I actually DO have it, and like Carla said, I do not remember a tick or a rash.

I will always remain gluten free because I DO carry a celiac gene, but mostly because I feel better without it, but now that I know what ELSE I'm facing I can treat it.

(No accusation here! No idea what u drink and my god I learned my lesson)

!!!!

OK....OMG...My sauna is HERE!!!

OMGosh...anxiously awaiting the report!

In a similar situation I found a solution.

I'd use the little ~2oz plastic bottles I found at target near the sample-size products like shampoo or whatever.

They come empty. I was at first looking for a bottle of some innocuous something that I'd pour out.

There were 2 different types of tops, one much preferred as far as leakage prevention - so if u see something like this be sure to look. I think one type was like a flip-thing like on sunscreen maybe?

Oh DOH!!!!! Gosh that's a good idea, and certainly doable. I don't want to put ANYTHING in the refrigerators here at work, which is why I don't want to cart my full bottles, but this would be doable! Thanks!

Avocados are in the 'edible' side of the ledger in, I think, every strict anti-candida diet I've ever seen.

As far as mold inside fresh produce, I remember only melons. Can't be a ripe melon w/out it.

I soooo love avocados and those will be one of the first things I try to add back in...if I can eat those again I can cut out some of the other questionable stuff I'm eating. Avocados and my beloved artichokes both tested badly in BioSET for me.

Does anyone have problems with lights and bright lights on the freeway at night.

YES!!!! I have a horrible time with bright lights, especially on the Freeway! And, it's really bad if there is a lot of traffic. Also bright stage lights (like at church when I'm on stage, harumph) and bright sunlight. I used to be able to go outside in the middle of the day without sunglasses, but really can't any more. It's not that it gives me a headache so much (it does a little), but I feel like I might go insane if I don't get out of the light...someone could do light torture on me instead of Chinese water torture, lol.

OK- I think we are going to have to put a time curfew on all you NUTS west of the Rockies. I go to sleep and wake up to like 99 gazillion posts covering everything from being molded to being under waiters and martinis equated with breasts!

Indeed!

For a while, I couldn't even have the cordless phone plugged in at night because of the light it put off ... I was very sensitive to light. It's getting better.

About 2 months ago, I had to turn my cordless phone around in my room so the light wouldn't shine directly towards me. Also I'm having a slight problem with my alarm C D player light.

Quickly posting before I dingo everything again... This was the info I saw yesterday on the supplement I've been taking that explains a lot of my very recent D and I'm posting because

Lisa just started taking IntraMax or IntraMin...this info is from their (Drucker Labs) website:

Open Original Shared Link

10. Can I take this with pharmaceuticals or other nutraceuticals?

Because the Organic microcomplexes

Oh, and as for what I eat...I also eat some stuff I shouldn't, but here's a typical day:

Breakfast: either turkey sausage (but haven't in a while cuz WF has been out of them), or turkey slices (but haven't in a couple of weeks cuz WF has been out of them) or bacon (I know, I know, but WF has been out of EVERYTHING lately)

Midmorning snack: hard boiled eggs (with a little mayo, which is not on the candida diet)

Lunch: ground beef or turkey with broccoli, sometimes half an apple if there is fruit at work

Early Dinner: beef or turkey or duck with sauteed green beans and garlic and sometimes I through slivered almonds in there too

Snack: Frozen peaches blended into a smoothie with almond or cashew butter and my evening supplements

Sometimes I have one more snack and that would be cashews, almonds or walnuts or sometimes turkey slices if WF would ever get the stupid things back in