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danikali

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Everything posted by danikali

  1. danikali
    Exactly. So what are we supposed to do about it? Keep stressing? Or just deal with pain for the rest of our lives? I know that seems like giving up, but I feel like I'm making myself crazy with all of this. This has become my full time job outside of work and school.
  2. danikali
    Thanks everyone! Starting today I'm actually going to go off of all grains for a while and see if things improve. I'm just so scared that the more I eat of the same thing, the more intolerances I'm going to get and pretty soon I won't be able to eat! Has there ever been a senario like that? I mean, then what? I'm really stressing myself out over here...
  3. danikali
    Thanks! Does the Ener-g taste bad? What do you think the difference is?
  4. danikali
    Good Morning everyone, Okay, I just got my test back from enterolab yesterday with a positive test for casein sensitivity. So there seems to always be confusion on this, but it is very different than just lactose intolerance..correct? If you are casein intolerant, you should never have casein again, as with gluten, right? But if you are lactose, it is...
  5. danikali
    I don't fit the profile. I'm mostly Polish and a little bit German. Unless somewhere down the line there is something else that I don't know about. But how could you not know?
  6. danikali
    Good tips! Thank you so much! I'm really so excited! Not being able to eat eggs has taken out anything baked at all! I'm going to make sure I always have Ener-G eggs around! Oh by the way, do you have any other intolerances besides gluten dairy and eggs? Just wondering.
  7. danikali
    Great encouragement!! But, and I'm sorry to be a such a downer again , but what about the constant stomach issues and the food intolerances? Do these really go away? Have any of you out there felt like you couldn't eat anything because it all bothered you, only to find that you were having problems with not only gluten but dairy, soy, etc.? And then finally...
  8. danikali
    haha, well, they don't have to pretty, just taste okay! haha...but I was thinking about making the both the cornbread and the pancakes from a mix. So if I just follow the recipe, they should at least taste okay, right?
  9. danikali
    so what if I can't find a doctor that will help me with that? I should expect to always have problems?
  10. danikali
    Can you tell us what has gotten better for you because right about now, reading your post is kind of making me feel like I'm always going to have stomach problems. I've always had them, just as you may have always had your asthma, so this may not ever go away...? I'm not trying to be mean but we need encouragement! Thank you!!
  11. danikali
    I'm sorry to hear yet another one of us is always frustrated. And I know what you mean about wondering how your husband puts up with you. I'm sorry your company isn't that understanding. I've taken LOTS of days off due to this disease too, before diagnosis, now I just have to take a lot of half days because there are no doctors offices open later than 5PM...
  12. danikali
    Susan, thanks for starting this! haha, I was just going to!!! I started one a while ago and everyone loved it except it seemed like there weren't too many 'completely healed' celiacs out there. Hopefully we'll get tons of responses now. I can't wait to see how this thread goes. Thanks again!
  13. danikali
    Haha, that's so funny! I try to imagine what he feels like when I feel hopeless, so I try and tell him just to leave me alone when I'm feeling like this. I don't like bringing him down with me, especially after being in such a good mood before dinner, and then completely falling apart after dinner, but I don't know what else to do but cry....? I wish...
  14. danikali
    And does anyone know how long it takes to heal? And if we eat something 'wrong' that we didn't know what wrong in the first place, is this setting us back? For example, I can't have nuts anymore, but I didn't know that at first, so to test them out, of course, I had to eat them. Well, now that I know it was the nuts for sure, did that set me back? And if...
  15. danikali
    I also agree! My stomach has been ENOURMOUS for the past month, literally. Some days, like today, are a little bit better, but most of the time, and always at night, I look like I am going to have a baby any day now! I got so frustrated last night because I don't feel like I'm in my own body anymore, and it's not fair because I'm NOT pregnant, and there is...
  16. danikali
    Thank you so much!!!!!!! I can actually make cornbread now and pancakes!!!!! I'm so exicted for my cooking day this weekend!!!!
  17. danikali
    Thanks for the site Patti! I'm reading it now...... How did your apt. go on Friday with the allergist? Anything good come of it?
  18. danikali
    Hi, Well, I went to the store the other day to get food, and I wanted some kind of bread, but I couldn't find any that were soy, egg, dairy, casein and of course gluten, free. So I thought I would make some of my own corn bread because I LoVE cornbread, and it doesn't require all of those ingredients. The only thing it does require is egg. So I found...
  19. danikali
    Thanks for the replys again! I'll say it again, I LOVE THIS SITE! What would I do without you guys? Anyway, yes, my fiance, Danny is veeeeeeeerrrrrrrry supportive. He takes care of me very well and he listens to me and he does anything that he can to put my mind at ease when he can. I got verrrrry lucky with him. And yes, if I was a nutritionist,...
  20. danikali
    Wow! Thank you so much for all of the support everyone! I do agree that I can't stay with this nutritionist because she seems more like the kind of doctor who helps people who want to loose weight. (on the worksheet she gave me to fill out my food it has break. lunch. dinner. snacks and excersize...nothing about symptoms and feelings, or stool issues, etc...
  21. danikali
    Thanks Patti. You said you don't want to scream at these people who don't understand, and I know exactly what you mean. I have flipped out at my Mom especially. She already thinks I'm crazy though through all of this stuff going on. She has told me a million times that maybe I'm just depressed, maybe I need to 'talk to someone.' I think, maybe she could just...
  22. danikali
    Thanks!
  23. danikali
    Hi everyone, I just wanted to let you all know how my apt. with the dietician went last night. I have mixed feelings about this lady.....but I'm giving her a chance. For one, she said that she worked with Celiacs before over the phone, and when we got there and I told her about all of the intolerances that I figured out through trial and error...
  24. danikali

    ARCHIVED Hidden Gluten

    danikali replied to a topic in Coping with Celiac Disease

    Let us not forget the dry roasted nuts.
  25. danikali
    Thanks Patti, I'll let you know!
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