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knitty kitty

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Everything posted by knitty kitty

  1. @Rejoicephd, Would you consider adding a B Complex to your supplements? I was taking a multivitamin and still became deficient. There's a question as to how well multivitamins dissolve in the digestive system. I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery...
  2. @kopiq, Your case is not hopeless. Doctors are not required to learn much about nutrition. Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals. The eight essential B vitamins and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies...
  3. You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing. Some people unconsciously reduce the amount of gluten in their diet because the feel unwell. Three grams of gluten per day is sufficient to produce symptoms. Only at ten grams or more is the immune system...
  4. Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid? You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo. TTg IgA can be high in both hyperthyroidism and hypothyroidism. tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism...
  5. Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your...
  6. Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have...
  7. Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating...
  8. @DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B...
  9. @MagsM Did your doctor do the DGP IgG and DGP IgA tests or the tTg IgG test. It looks like he just tested total IgG. Were you taking any medications or over the counter stuff before the test? Some can suppress the immune system and cause false negatives.
  10. Migraines can be caused by Thiamine deficiency. Thiamine is a B vitamin that becomes depleted quickly because it can't be stored long. All the B vitamins work together to make energy, ATP, which is used to fuel all the cell activity. Without Thiamine, the energy production cycle doesn't even get started. There's studies done on mice showing thiamine...
  11. Thiamine can help protect the brain from damage. White spots in the brain can be caused by Thiamine deficiency. Correcting nutrient deficiencies in Celiac Disease and boosting our absorption of vitamins and minerals by taking supplements can help repair and improve our health.
  12. Thank you, @Oldturdle, I greatly appreciate that. I've always been a curious kitty. I wanted to figure out why I didn't feel well because I knew it wasn't all in my head like they told me. It pleases me to be able to help others in the same boat. Yes, alcohol prevents the absorption of thiamine and stops thiamine from working properly. This...
  13. @Rebeccaj, You may choose to get tested to see if you have an allergy to wheat. That's a different type of immune response to wheat than Celiac Disease. It's possible to have both. You may need an Epipen. A histamine release in the sinuses upon being exposed to wheat in wheat allergy can cause a headache. Talk to your doctor about wheat...
  14. Yes, except for the most sensitive, cross contamination from airborne gluten should be minimal. Highly sensitive people may have nutritional deficiencies. Many times their bodies are in a highly inflamed state from Celiac, with high levels of histamine and homocysteine. Vitamins are needed to break down histamine released from immune cells like mast...
  15. Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...
  16. @Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
  17. Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming...
  18. Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do. Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins...
  19. Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's. From...
  20. Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same villi that absorb nutrients from our food. Damaged villa can't absorb nutrients, vitamins and minerals well. If we don't get sufficient nutrients, our body can't function properly. We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening...
  21. Thiamine interacts with all the other B vitamins. Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of. The body can control which vitamins to absorb or not. You're absorbing more and it's being transported through the blood. ...
  22. Have you tried lip balm made from tallow? It's been used for thousands of years and works better than those with waxes. I prefer Vintage Traditions brand tallow balm products.
  23. Are you taking a B 6 supplement or a supplement containing B 6 like a B Complex? Do you have pins and needles in your toes? Don't worry about the thiamine being high. The blood is a transport system that carries thiamine to the cells so they can store it. It's fine.
  24. I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...
  25. @Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn...
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