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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    So is ten or more years of being misdiagnosed... loss of health, loss of quality of life, loss of employment.... ....while the doctors are enjoying their yachts.... Celiac disease isn't a disease of the past. May is Celiac Disease Awareness month!
  2. knitty kitty
    @LP023, Since Celiac Disease is genetic, a lot of the misdiagnosis runaround could be cut out if a DNA screening for Celiac genes is done early on in symptomatic people with family history of digestive problems or other health issues consistent with untreated Celiac Disease. While not all Celiac genes are known, and having the genes doesn't mean...
  3. knitty kitty
    @Nita hearn, Hello! Welcome to the forum! Age doesn't matter here. Since you've been recently diagnosed, you're a youngster. Talk with your doctor about supplementing with extra B Complex vitamins along with a multivitamin. In correcting vitamin insufficiency, we need more than the daily requirements because we have to replenish the depleted...
  4. knitty kitty
    @CareyOsborne, Do you have a Carbon Monoxide detector in your home? Carbon Monoxide poisoning can cause similar symptoms as Gluten Ataxia. A slow Carbon Monoxide leak can build up so subtly you don't notice the tell-tale rotten egg smell put in for safety. Try opening some windows or get outside and see if you feel better.
  5. knitty kitty
    I think consistency is important. If you are going to take B Complex vitamins and Benfotiamine, take them every day. There is what is called the thiamine paradox, where you if you start to feel worse or like you have the flu, cut back on the amount of Thiamine or Benfotiamine. If fatigue returns, increase your thiamine slowly. Take B...
  6. knitty kitty
    Hello, @Emma84, One statement you made on another thread... "I’ve been gluten free for 2 years, then ate for 5 weeks prior to bloodwork and it will be 6 weeks for endoscopy. Should that be accurate?" During a Gluten Challenge recommendations vary about the amount of gluten to consume... from 3-10 gm of gluten a day, (equivalent to approximately 4...
  7. knitty kitty
    A couple of articles for you... Epileptic manifestations and vitamin B1 deficiency https://pubmed.ncbi.nlm.nih.gov/2044623 "Sixteen of 50 consecutive neurological patients with a diagnosis of thiamine deficiency showed epileptic or epileptiform manifestations. A survey of the literature revealed only few reports on a possible relationship...
  8. knitty kitty
    Do you eat other veggies besides those in your green smoothie? Some vegetables must be cooked in order for the nutrients to be available for absorption in the digestive tract. Neurological symptoms can be caused by B12 deficiency, but also we need Thiamine B1, Riboflavin B2, Niacin B3, Pyridoxine B6, and Folate B9 to help Cobalamine B12 and...
  9. knitty kitty
    @CareyOsborne Hi, I'm sorry you're having such problems. In Celiac Disease, malabsorption affects all the essential vitamins and minerals across the board. I had severe vitamin deficiencies in several vitamins, but the one vitamin deficiency that caused severe ataxia was Thiamine. Anxiety, panic attacks, slurred speech, deep dark depression...
  10. knitty kitty
    @Moogle39, Take the test for deficiency before you start supplementing, otherwise a blood test will just reflect the vitamin supplement. You might want to add more Vitamin C foods to your diet, too. Keep us posted on the results! Best wishes!
  11. knitty kitty
    @heyitsmissa, Did you ever get an endoscopy with several biopsy samples taken from the small intestine? Have you been eating gluten all this time???!!!??? Why didn't they diagnose Celiac based on your previous tests? Are you taking any medications? I'm thinking vitamin deficiencies. Vitamin D deficiency Vitamin D...
  12. knitty kitty
    Hi, @Moogle39, Do you have diabetes or pre-diabetes? Have you been getting enough Vitamin C? What sorts of food are you eating?
  13. knitty kitty
    @Raquel2021, Sorry to hear you're still having some problems. I suggest you try the Autoimmune Protocol Diet, designed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet has been scientifically studied and shows the diet helps reduce inflammation and helps in healing the digestive tract. The AIP diet doesn't include...
  14. knitty kitty
    @herminia, Celiac Disease is not "a gluten allergy". Celiac Disease is an autoimmune disease. An allergy is a different type of immune response. One can have Celiac and also have an allergy to wheat. Let's get on the same page with our terminology. 😸
  15. knitty kitty
    Looks awful. It only has Vitamins A and C. All the rest of the list are amino acids. Not vitamins. Amino acids are like building blocks. You need vitamins to stick them together to make proteins that build muscles.
  16. knitty kitty
    I just wanted to add that you only need one gene for Celiac Disease to potentially develop. You can inherit one Celiac gene from your mom and develop Celiac Disease.
  17. knitty kitty
    @shadycharacter, I make sure I'm getting enough protein by eating lots of meat, like @Scott Adams. I follow the AIP diet, though I do throw in Basmati or wild rice every so often. I focus on nutritionally dense meats...like liver, duck, and salmon. These contain Omega Three fats that help the brain function and are needed to repair the intestinal...
  18. knitty kitty
    @Emanon, Yes, rice can be a problem. Have you tried eating a grain free diet? Rice and other grains have "lectins" (fiber) that is hard to digest and can irritate the digestive tract. Removing grains, rice, and pseudo grains like quinoa gives the digestive tract a break, allowing time and environment for healing. Not eating dairy products...
  19. knitty kitty
    @Emanon, Yes, green could be blueberries. The sandy texture could mean very slow transit time, diarrhea, high oxalates in the diet, or bleeding from high up in the digestive tract. Bloody stools usually indicate bleeding in the lower part of the digestive tract. Exhaustion may be caused by anemia from iron deficiency and vitamin deficiencies...
  20. knitty kitty
    The description of your bowel movements concerns me. The green color may be bile from the gallbladder. The sand like texture and the black color may indicate blood being passed which is worrisome. You're not absorbing Thiamine and the B vitamins from your food. In Celiac Disease, the small intestine gets damaged where the B vitamins are usually absorbed...
  21. knitty kitty
    @Emanon, Welcome to the forum! Thiamine Vitamin B 1 is necessary to turn carbohydrates into energy. Obesity is connected to insufficient Thiamine. Thiamine is found in meats. Liver is a good source of thiamine. The body stores excess carbohydrates as fat. If you increase your thiamine intake through food or supplements, your body...
  22. knitty kitty
    @Rebecca Clayton, If you change your diet, the bacteria in the intestines change according to what one eats. Some bacteria feed on soluble fiber and make butyrate. The AIP diet includes veggies with soluble fiber and some fermented foods with soluble fiber. Adding these to the diet will help feed the butyrate producing bacteria in the gut. Seems...
  23. knitty kitty
    @Rebecca Clayton, Gee, Rebecca, Molkosan' label says it doesn't contain lactose. Lactose is the sugar in dairy products that causes problems. Lactose intolerance in Celiac Disease is fairly common. The tips of the intestinal villi produce an enzyme, lactase, that breaks down the sugar in dairy, lactose.In Celiac Disease, the villi are damaged...
  24. knitty kitty
    Not getting enough thiamine causes headaches. Dietary intake of thiamine and riboflavin in relation to severe headache or migraine: A cross-sectional survey https://pubmed.ncbi.nlm.nih.gov/36047917/ "We found that high intake of thiamine was significantly associated with lower odds of migraine, especially in females." And... B vitamins...
  25. knitty kitty
    https://www.celiac.com/search/?&q=Melanoma&type=cms_records2&search_and_or=and Was it one of those?
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