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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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I take Life Extension Niacin, 500 mg. Make sure the Niacin you get is gluten free and is the kind that causes flushing.
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I have had skin problems due to gluten and also due to Niacin deficiency. (Nicotinic acid is the form of Vitamin B3 that causes flushing.) Supplementing with Nicotinic Acid helps immensely to clear my skin. Vitamins A, D and C also help. Remember cutting out gluten cuts out the vitamins added to gluten containing products. Discuss with your doctor...
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Do keep in mind that when you cut out Gluten, you are also cutting out the vitamins that are required by law to be added in order to replace those lost in processing. Supplementing with a B Complex and extra Thiamine (Benfotiamine, Allithiamine, Thiamine HCl) will help provide your body with the vitamins it is no longer getting. Nausea, dizziness...
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@Lea89, Do check with your doctor about supplementing vitamins and minerals. Do get testing for deficiencies done BEFORE starting supplementing or the tests will reflect how much you've taken. Vitamins are used inside the cells, so blood tests aren't always accurate. Do take a B Complex supplement and magnesium glycinate chelate along...
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@Lea89, welcome to the forum! Have you been checked for vitamin and mineral deficiencies? Celiac Disease causes malabsorption and malnutrition because the villi in the small intestine are damaged and cannot absorb the nutrients our bodies need for repair and health. You listed symptoms that are very similar to symptoms that I had that turned out...
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That would be great! Here's a place to learn more about how thiamine deficiency can run in families.... https://www.hormonesmatter.com/familial-beriberi-discovering-lifelong-genetic-thiamine-deficiency/ And... https://www.hormonesmatter.com/genetic-thiamine-deficiency-ravaged-my-family/ And... https://www.hormonesmatter.com...
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Question
knitty kitty replied to JoeJoe86's topic in Gluten-Free Foods, Products, Shopping & Medications
@JoeJoe86, We have had posters that have a "meat allergy" after being infected with Lyme Disease which is treatable with antibiotics. However, an allergy to eggs is a thing by itself. Some Celiacs can develop a sensitivity to eggs, but this may remedy itself after fully healing. Keeping a food diary is very helpful. I've found the... -
Question
knitty kitty replied to JoeJoe86's topic in Gluten-Free Foods, Products, Shopping & Medications
Stress levels, how cattle are treated preceding and at time of slaughter, influences meat taste and texture. Understanding the Determination of Meat Quality Using Biochemical Characteristics of the Muscle: Stress at Slaughter and Other Missing Keys https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7823487/ And... Effect of stress during... -
Question
knitty kitty replied to JoeJoe86's topic in Gluten-Free Foods, Products, Shopping & Medications
A Research Communication Brief: Gluten Analysis in Beef Samples Collected Using a Rigorous, Nationally Representative Sampling Protocol Confirms That Grain-Finished Beef Is Naturally Gluten-Free https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5622696/ And... A review of fatty acid profiles and antioxidant content in grass-fed and grain-fed beef ... -
Here's some information about how Celiac Disease may present differently with Diabetes..... IgA Anti-transglutaminase Autoantibodies at Type 1 Diabetes Onset Are Less Frequent in Adult Patients and Are Associated With a General Celiac-Specific Lower Immune Response in Comparison With Nondiabetic Celiac Patients at Diagnosis https://www.ncbi.nlm...
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Fainting and blackouts
knitty kitty replied to KaysMomma's topic in Parents, Friends and Loved Ones of Celiacs
This sounds like Refeeding Syndrome. Refeeding Syndrome occurs when malnourished people take in too many carbohydrates which causes an electrolyte imbalance which can cause a sudden drop in blood pressure (fainting), feeling extremely cold and not being able to warm up, convulsions, seizures, loss of consciousness and deep, dark depression. I... -
Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
Get checked for vitamin and mineral deficiencies as part of proper follow up care for Celiac Disease. Tachycardia, peripheral neuropathy, muscle cramps, migraines, raised liver enzymes, ataxia, gait changes, vestibular (balance) problems are all symptoms of Thiamine deficiency. Vestibular signs of thiamine deficiency during the early...- 173 comments
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Diabetics are usually deficient in Thiamine Vitamin B1. Thiamine is needed to turn carbohydrates, fats and proteins into energy for our bodies. Increasing the amount of carbohydrates in your diet can cause a dip in your thiamine level. When our thiamine level gets low, our bodies switch from aerobic energy production to anaerobic energy production, ketosis...
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Allithiamine is found in garlic. It is soluble in fat, so that means it can get inside cells easily. It can cross the blood brain barrier by itself and is especially helpful for neurological symptoms like brain fog, anxiety, ADHD, memory loss, Parkinson's, Alzheimer's, Wernicke's, Aspergers, schizophrenia and depression. Benfotiamine is also fat...
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When I was recovering, I took Thiamine Hydrochloride 300 mg every three hours. That's about as much as the body can absorb in that amount of time. I had to have Benfotiamine and Allithiamine sent to me, but added those in as soon as they arrived. I took Benfotiamine 250 mg with meals because this form helps with gastrointestinal healing and diabetes. ...
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High dose Thiamine is required to correct Thiamine deficiency otherwise the Thiamine will have trouble getting into cells. Thiamine Transporters turn off during deficiency. High dose Thiamine can flood the system and get into the cells better. Dr. Lonsdale explains here... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/
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Welcome to the forum! Get checked for THIAMINE Vitamin B1 deficiency! Flagyl is a medication that keeps thiamine from working. Symptoms of Thiamine deficiency include rapid, unintentional weight loss, fatigue (beriberi means "I can't, I can't), anxiety and insomnia. Here's some helpful articles... https://www.hormonesmatter.com...
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Hi! Welcome back! Sorry to hear you've had such a bumpy journey. I'm wondering if your hypoglycemia could be caused by Insulin Autoimmune Syndrome. In Celiac Disease, we can begin to make antibodies against ourselves. Autoimmune thyroid disease resulting in Hashimotos thyroiditis is one example. In Diabetes, auto-antibodies destroy the pancreatic...
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Not meaning to hijack this conversation, but.... There's a link between cannabis use and Thiamine deficiency. Thiamine deficiency is frequently misdiagnosed. Cannabis blocks thiamine from being used properly. The symptoms of prodromal cannabis use are congruent with the symptoms of Thiamine deficiency. Here's an informative article about...
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Egads! I don't understand why your doctors don't think it's Celiac from the biopsies! There are other genes for Celiac Disease than just those two. This article offers information on genetic variations for Celiac Disease based on geographic location.... "Celiac disease: Prevalence, diagnosis, pathogenesis and treatment" https://www...
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@Jasmina, Welcome to the forum! Sorry you seem to be having problems with gluten free breads. Your symptoms seem to indicate an allergic like reaction. Tapioca starch is made from cassava. Some people have a latex food allergy. They react to banana, avocado and cassava among other foods because of the similarity to latex (rubber)....
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Remembering our lovely Queen
knitty kitty replied to cristiana's topic in Introduce Yourself / Share Stuff
Condolences, @cristiana. Wonderful video! I always wondered what she carried in her purse. She will be greatly missed. -
@MathewAzreal22, Welcome to the forum. This is an older article and comments. You may not get a response from the poster. Thiamine deficiency can cause lack of weight gain. In thiamine deficiency state, the body burns fat for fuel, hence no weight gain. Anxiety is an early symptom of thiamine insufficiency, as is depression. Vitamin D...
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