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shayesmom

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Everything posted by shayesmom

  1. shayesmom
    This statement is just utter crap. If the teacher could move beyond her own fixation with Friday baking, she would be able to see that your daughter DID exhibit "independent" learning skills simply by saying "NO" to the food offered. It's a lot easier to just be quiet and go with the flow than to stand up in front of an authority figure and all of your...
  2. shayesmom
    Unfortunately, it can be really difficult to find the culprit in all of this. The cupcakes could definitely be an issue. If your son went trick-or-treating, you may also want to double check his candy. Besides that, if your son is in school, I'd talk to the teachers about thoroughly wiping down his work areas in class to make sure Halloween party...
  3. shayesmom
    Several of my daughter's friends were diagnosed with H1N1. One ended up in the emergency room. The others recovered very quickly (as did my daughter who exhibited the same symptoms....which lasted the better part of ONE day). The one who needed emergency care was the only one who received a seasonal flu vaccine just 1 week before coming down with the virus...
  4. shayesmom
  5. shayesmom

    ARCHIVED Dr. Kenneth Fine (enterolab)

    shayesmom replied to Joe G's topic in Doctors

    Last I checked, the University of Chicago Celiac Center was offering a
  6. shayesmom
    Maybe I'm getting my news from odd sources, but from what I'm reading, it appears to be that the swine flu has mutated into a milder form as compared to the outbreaks we were seeing in the spring. I'm a little more concerned with the more recent report that seasonal flu vaccines may increase susceptibility to swine flu. Open Original Shared Link. At...
  7. shayesmom
    My daughter is in the same boat as well. We've been gluten, dairy and egg-free for over 5 years now. And it does get much easier to deal with over time. The toughest thing to deal with is the fact that there are very few conventional foods that are safe. And school lunches? Forget it. That being said, I can tell you that my daughter's friends...
  8. shayesmom
    This is the case in my family as well. My daughter had horrific diarrhea, FTT, hyperactivity, and mood swings...all of which began to resolve within 24 hours on the diet. And yet, there are family members who saw this HUGE shift, marvelled at the change, and are now turning around and saying that she should have "outgrown" it by now and that we need to...
  9. shayesmom
    Usually, you can post the lab results on here as many posters are able to help interpret them. There are some doctors who feel the gluten-free diet is "impossible" and so they do not even hint at going gluten-free until Celiac is confirmed by biopsy. As I understand it, false positives are extremely rare, but possible. Generally, false negatives are...
  10. shayesmom
    The amount of misinformation that some doctors spread is just beyond scary at times. I also wonder if they ever have a class on translating medical terminology into simple English in order to assist their patients in understanding their conditions. The conditions you mentioned are all conditions which often precede, or occur in conjunction with a...
  11. shayesmom
    I've found that unflavored gelatin works well as a substitute for xanthan gum. I usually add a tablespoon of it to my recipes to help with elasticity, density and texture. And personally, I don't really care for the taste of xanthan gum in most of my homemade goods. You also may want to look at the types of flours you're using. For example, my mother...
  12. shayesmom
    Welcome to the forum! As overwhelming as a Celiac diagnosis is....I know I couldn't have made it through the first year without the support and knowledge of the posters here. Just take it a step at a time and before you know it...this will all be second nature to you. As far as yeast goes....most baking yeast is gluten-free (like the Red Star brand...
  13. shayesmom
    I really can't say if this is a "phase" that can be worked through. Fact is, some relationships last, some don't. In the ones that don't work...it isn't necessarily because the two people don't care for each other. Sometimes, it just isn't meant to be. The relationship may be a "stepping stone" on the way to a better one...or it's meant as a trial to...
  14. shayesmom
    First off, congratulations on your daughter feeling better. The diet can be tough at times...but the fringe benefits of feeling well are more than worth it! I agree with a pp about seeing a dermatologist to find out what kind of rash your dd has. I also would suggest that you take the doctor's opinion on other allergies with a grain of salt. If the...
  15. shayesmom
    Two weeks of being back on gluten probably will be an exercise in futility considering that she tested negative before. I would think it would be more productive to check for genetic markers in conjunction with positive dietary response at this point. And yes, I do agree that it is sad that a doctor would put a child through this to basically convince...
  16. shayesmom
    This part of your question is something that came up with my dd also. Yes, other food issues can come up. Lactose intolerance is one....or casein intolerance....or a casein or whey allergy. In our case, it was a "mild" whey allergy along with casein intolerance. Symptoms were tummy ache, night waking, mood swings and rashes. I have to give you kudos...
  17. shayesmom
    It appears that the GI is a bit confused as to the nature of Celiac Disease. If your daughter tested positive via biopsy, then she has the disease. And ALL gluten must be avoided, included cross-contamination. The statement that "she doesn't have it that bad" is perpetuating the myth that a little bit won't hurt. The fact that your daughter isn't gaining...
  18. shayesmom
    Just to clarify. Gluten has nothing to do with milk. Milk allergy/intolerance is a completely different and separate issue from celiac and gluten sensitivity. With that being said, it sounds as if your doctor may have said to keep your daughter off BOTH milk AND gluten. That means no ice cream...unless you can find one that is made without these ingredients...
  19. shayesmom
    My dd is also highly reactive to small amounts of her allergens and gluten. We've had to remove a lot of foods which should be safe...but for her, just don't work. So my suggestion is to keep track of the manufacturers and products she does well with...and ditch the rest. For example, we've had several reactions to the Envirokidz breakfast bars. So I...
  20. shayesmom
    My daughter had a lot of similar issues and I also have met other parents who went through the same. As controversial as this may sound, I would recommend finding a homeopath or a naturopath for a second opinion. Preferably one with an MD (a little harder to find, but worth it). My daughter tested negative to allergens like soy on regular allergy tests...
  21. shayesmom
    The only recommendation I would make is to suggest you find a way to maintain a gluten-free diet long enough to tell if it helps your son. You can also have him tested for food allergies at this age via CAPRAST. GERD is often a symptom of food allergies or Celiac. And since the tests can be unreliable, dietary response is the best indicator.
  22. shayesmom
    Our pre-k teacher tried the gluten-free playdough and I also made my own for her on occasion. The homemade one was better...and definitely safer. I've also tried the Crayola modeling clay which is claimed gluten-free. Ours was not. I called Crayola and they told me that it is made on shared equipment so it may have cross-contamination issues despite their...
  23. shayesmom
    I am not an expert on abdominal migraines or cyclical vomitting....but my dd has had bouts of this. There's also a low-grade fever involved. And there has ALWAYS been a "trigger" for it. The worst ones for us have been set off by artificial sweeteners and food colorings. Definitely not a Celiac problem...but this is consistently the case when it occurs...
  24. shayesmom
    It's been a while since I went through the studies. Some of the information is mentioned here: Open Original Shared Link. You can then backtrack from the article and find the information from there. And not all countries recommend cereal as a first food. Other cultures introduce meat first, or veggies. Some do fruits. It all depends on the culture...
  25. shayesmom
    Personally, I take a lot of these studies with a grain of salt. It's one thing to be able to determine the presence of gliadin in breastmilk within x amount of hours after ingestion. It's quite another to ascertain the risk of developing celiac disease when feeding gluten to 6 month old children. There is no mention of where these children now stand as...
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