
KEMB
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KEMB
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Do you Have Your Gluten Free Emergency Food Bag Ready to Grab and Go?
KEMB commented on Tammy Rhodes's article in Spring 2018 Issue
I agree that it's a disappointing article. Instead of offering helpful advice, it makes the case for why an emergency supply is needed and then directs you to her site to shop for the products. I understand the need to have sponsors to help support celiac.com, but I think this really blurs the lines between sharing advice and sponsored content. When sponsored...- 3 comments
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- emergency food kit
- food bag
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ARCHIVED Lower back pain
KEMB replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Agree massage can help, also Bowen therapy. I used to do massage, then started Bowen when the massage was no longer helping my back issues. I was amazed at how much such a gentle treatment helped. Now I do Bowen tune-ups every 6 weeks and am considering adding back a 90-minute massage in-between Bowen sessions because I love the treatment. Daily stretching... -
ARCHIVED Distilled Vinegar
KEMB replied to sombrita220's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't have an answer but one thing to check is whether the vinegar is actually distilled. There a Sarson's Distilled Malt Vinegar (UK) but if you look at their process on the their web site (how we make it), it's fermented and doesn't appear to be distilled (unless they use a different process not on the site). Distilled malt vinegar appears to be a UK... -
ARCHIVED Celiac disease and weight
KEMB replied to Lou23's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@Lou23 I don't know what might work for you but I recently went on an autoimmune diet because I felt there were other autoimmune issues that were causing system wide inflamation and pain. I am a celiac and gluten free for 15+ years. The diet is from The Autoimmune Fix, Dr. Tom Bryan, and involves an elimination diet targeting potential antibodies that get...- 1 reply
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- diet
- metabolism
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ARCHIVED ALLERGY MEDs
KEMB replied to Jherm21's topic in Gluten-Free Foods, Products, Shopping & Medications
I use the generic loratadine tabs, AllerClear, from Costco. The bottle states that it's gluten free. I switched to it a couple of weeks ago to see if it would work better than the generic cetrizene HCL I'd been taking for a while, Aller-Tec, also from Costco. My allergies have been worse since the switch though it's possible it's due to increased pollens... -
@GFinDC thanks for explaining how respond to a post. This is a test!
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Sorry Dayle. I thought I was responding to the original post by Inc. and that she/he started having problems after moving into an apartment. Obviously I don't know how to post on this forum.
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If I were in your situation given the timing I'd contact the appropriate local health dept. to see about having someone test your apartment. While you may be exposed to something you are allergic to, it is also possible that your are being exposed to something that would be toxic to anyone. For example, if the apartment had previously been used to make...
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Thank you posterboy for sharing the study information. I hadn't seen this one. Even though it's a very small sample size and not enough to confirm effectiveness for celiacs, it's a start. Hopefully there are other studies going on - I haven't looked into it and need to try harder to stay up to date.
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The only information that seems to be available on gliadinx is from the outfit that sells it. I'm very leary of these products that people are desperate for and which are highly priced. A product to deal with incidental ingestion of gluten is what we dream of, but supplements aren't regulated enough to avoid for-profit scams. I was actually disappointed...
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ARCHIVED Gluten Free Cough Drops
KEMB replied to curiousgirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I just purchased some sugar free black cherry Halls cough drops. I had a reaction when I tried them about 10 years ago but thought they might be okay now based on forum posts. After just 2 drops I developed severe abdominal pain and headache, exactly the same as when I am glutened. I waited a couple of days, tried again and the same thing happened. Just... -
ARCHIVED Any Gluten free bread that is super safe?
KEMB replied to mcbphd1's topic in Super Sensitive People
You might try Franz gluten free bread. They use a dedicated gluten free facility - at least in Oregon. Their Oregon facility also produces Canyon Bakehouse gluten free bread - at least they did as of a couple of years ago when I last communicated with them. I don't know about their facilities at other locations. -
ARCHIVED Neuropathy Getting Worse
KEMB replied to mbr22m's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's too soon for me to say how quickly the B6 toxicity symtoms go away - especially the neurological ones which people say can take longer - but it does seem that some are subsiding, including the fatigue. Just very tired some days but most are better. My PCP did the complete blood count, complete metabolic panel, thyroid TSH, and vitamin D blood tests... -
ARCHIVED Neuropathy Getting Worse
KEMB replied to mbr22m's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have your neurologist check on vit B6 levels (pyroxidine). I've been gluten free more than 10 years but recently discovered I have toxic levels of B6 in my blood even though I was not taking very high B6 supplements, but still well above the MDR. You have to check the blood levels, because numbness/tingling (which I have) is a symptom of both high and low... -
ARCHIVED Inflammation In Ribs That Keeps Coming Back
KEMB replied to cristiana's topic in Related Issues & Disorders
Yes, primarily on one side. I've found that inflammation can spread from the sternum outward into my armpit and even my back if I let it get away, and if I'm already having pain when I get a mammogram, it seems to trigger a broader flare-up. I haven't had problems with my mammograms for several years now as my flare-up's are infrequent and I always make... -
ARCHIVED Inflammation In Ribs That Keeps Coming Back
KEMB replied to cristiana's topic in Related Issues & Disorders
Have had this problem for years, flares up when I get glutened. I mentioned it to the person doing my mamogram once and she said fibromyalgia often starts in the chest, so I was glad I became gluten free before anything further developed. I stretch, yoga, massage, use ice/cold packs and Biofreeze, sauna sweats, sometimes heat packs. I excercise regularly...