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CMCM last won the day on April 30 2021
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CMCM's Achievements
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Aleda D reacted to a post in a topic:
Supplements for those Diagnosed with Celiac Disease
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cristiana reacted to a post in a topic:
How Long Do Celiac Patients Live?
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Scott Adams reacted to a post in a topic:
How Long Do Celiac Patients Live?
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How Long Do Celiac Patients Live?
CMCM replied to twe0708's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My mother was diagnosed (after nearly dying!) in 1967 at age 46. At that time it was challenging to be gluten free because there weren't any gluten-free foods at that time. She would buy rice flour at Asian markets and make baked goods the best she could. She just ate natural fresh foods and almost never ate out, and she was very healthy her whole life... -
MiriamW reacted to a post in a topic:
How long does it take to get Gluten out of your system
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MiriamW reacted to a post in a topic:
24 /48 hour fever, vomitting and sweating galore
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Scott Adams reacted to a post in a topic:
How long does it take to get Gluten out of your system
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cristiana reacted to a post in a topic:
24 /48 hour fever, vomitting and sweating galore
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cnazrael89 reacted to a post in a topic:
Supplements for those Diagnosed with Celiac Disease
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24 /48 hour fever, vomitting and sweating galore
CMCM replied to Mathew's topic in Related Issues & Disorders
For much of my life, despite having a mom with very severe celiac disease (she found out what she had when I was 17), I always thought my digestive issues were due to dairy. I had dairy problems from infancy, and have not really liked to eat much dairy my entire life, I instinctively avoided it. My mom was violently sick any time she got an accidental exposure... -
There seem to be a couple of ways to state gluten dangers. One is "made on shared equipment" with gluten products, and that one is a definite NO. The "made is a facility" one is something companies do as a CYA when it's not a dedicated gluten-free production facility. There's always risk, but I don't have issues with this one and neither does my very sensitive...
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How long does it take to get Gluten out of your system
CMCM replied to Raptorsgal's topic in Coping with Celiac Disease
Here's what happened with my mother. This was in 1967 when she was 46 almost no doctor knew about celiac disease. She was unable to keep food down and her weight had plummeted to 89 when she finally met a doctor who instead of telling her it was all in her head, he asked if she had been tested for celiac disease. He did an endoscopy and saw the evidence... -
Scott Adams reacted to a comment:
What Causes Villous Atrophy Besides Celiac Disease?
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CMCM started following What Causes Villous Atrophy Besides Celiac Disease?
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What Causes Villous Atrophy Besides Celiac Disease?
CMCM commented on Scott Adams's article in Additional Concerns
I find this kind of information useful and interesting. As an infant I could not tolerate cow's milk at all, and eventually I did better (but not great) on goat's milk. But I always had trouble with dairy and I never wanted to drink milk, eat ice cream, cheese, etc. I just knew to stay away from it. My mother wasn't diagnosed with celiac until I was about...- 13 comments
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Akilah Smith reacted to a post in a topic:
Why bother with a colonoscopy?
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CMCM started following No Gluten Intolerance Detected , Do you think I have Celiac? I would appreciate anyone's input , Why bother with a colonoscopy? and 2 others
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"4. I feel like every time I would eat gluten free foods such as breads, cookies, pretzels they would give me worse stomachaches than when I was eating gluten Is this odd? It has made life harder for me because there are all these gluten free alternatives but I have been staying away from them. My doctor was surprised when I told him before I started being...
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Why bother with a colonoscopy?
CMCM replied to Akilah Smith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You could be correct. I guess it all depends on how much you feel compelled to have a definitive diagnosis....or not. Also worth considering is that the villous atrophy they are searching for in the endoscopy could be missed because it tends to occur in patches. I'm assuming gluten makes you sick in some (or many) ways....obviously, eating... -
Good grief, so sad to see there are still so many clueless doctors out there. Keep eating gluten, and like others have said, I'd suggest immediately ordering the imaware celiac test suggested by Scott as it's cheap and easy. I recently ordered that test myself. I got the test and sent it back and then got results within about 10 days. After you get your...
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No Gluten Intolerance Detected
CMCM replied to SiouxsieRice's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Do you think either of your parents had issues caused by gluten, if not celiac disease? -
Thanks....I'll read this article in detail, looks like a lot of good information. I don't have depression issues myself (someone else around here brought it up), but I'm trying to figure out which vitamin and mineral deficiencies I might have. My son (celiac) DOES have longstanding issues with anxiety and depression, though, so I'm always looking for things...
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No Gluten Intolerance Detected
CMCM replied to SiouxsieRice's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't remember a lot of details and I was only 17 at the time, but I'm sure there wasn't any sort of diagnostic celiac blood panel back then. And no gene test either. I do know she had an endoscopy to diagnose it. After a parade of doctors over several years who were utterly clueless about what was going on with her, it was her great fortune to encounter... -
Thanks Posterboy! I just ordered a bottle of M. Glycinate....a good one, I think. I look forward to seeing how well it works for me. I am "mostly" rid of leg cramps just from taking the Slow Mag I take, but I also researched a bit after I wrote my comment to you and I see that the Mag Chloride I'm taking isn't the best one or the best absorbed, even though...
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My symptoms are getting worse.
CMCM replied to Alfrieda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I found dairy to be a major culprit in the joint pain and muscle aches I had. Most of my digestive issues were considerably better after 2 to 3 weeks. I am currently at nearly 16 weeks gluten, dairy, corn and sugar free and the joint pain is considerably better, but not yet gone. I hope it will eventually fade away completely, but I guess you can't ever... -
Posterboy....you keep specifying Magnesium citrate and glycinate....have you read about those two particular forms of magnesium being best for this? I've had a lot of digestive issues with magnesium in the past, not sure which ones I had tried but it was several different ones, but finally I tried one that is slow release and I haven't had issues with it...
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No Gluten Intolerance Detected
CMCM replied to SiouxsieRice's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Long ago, my mother almost died before she was diagnosed with celiac disease (1967!!). She was extremely sensitive to even the smallest amount of cross contamination, and would get violently sick in such cases. For this reason, she rarely ate out as it was a real minefield for someone as sensitive as she was, and in the beginning years after her diagnosis...
