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CMCM

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Everything posted by CMCM

  1. CMCM
    Hey Jerry...you're baaacccckkk! Oh yes, the old "gluten reaction amnesia" cheat session. In my first year I succumbed more than a few times thinking "maybe it has gone away." Now I'm not tempted much at all, thank goodness. That will happen with you, too. I guess it takes awhile for the reality of "thou shalt not eat a crumb of gluten ever again...
  2. CMCM
    I felt hugely better after just a week or so. However, I found it's a more complex issue than just eliminating gluten. Probably due to eating gluten so long, my system had trouble dealing with these and other things: 1) dairy 2) fats 3) other grains including rice 4) carbohydrates in general 5) sugar 6) large amounts of food in one meal My...
  3. CMCM
    I read recently that when you have celiac disease (active) your autoimmune system isn't suppressed as some might think, rather, your autoimmune system is highly overactive and oversensitive, which might explain why a lot of other sensitivities also get triggered....your system is hyped up and reacting to everything as an invader. Once you eliminate the...
  4. CMCM
    ALSO....your body attempts to adapt to antagonists (in this case, the gluten). You develop a degree of tolerance to gluten. Given certain circumstances, that tolerance can break down, temporarily, then recover to a degree. If you have a celiac gene, there can come a point where all ability to tolerate is gone, and full fledged celiac disease occurs. ...
  5. CMCM
    I don't believe there is any one test which can definitively say one is sensitive to any particular substance. And the test numbers don't always correlate as you would expect. Dr. Fine said quite clearly that the NUMBER doesn't indicate severity. For example, a person with an IGA barely above the "normal" <10 could be far sicker than someone with a...
  6. CMCM
    My doctor knew so little that he wrote "celiac panel" on the lab order. The lab called to find out which specific tests....he in turn called ME (!!!!) to find out which ones. At the time, I didn't know what to answer, and the result was that I believe the blood test I had was incomplete....which could explain why it was negative. However, at the time,...
  7. CMCM
    If you feel better on a gluten free diet, and are willing to stick to it based on that fact alone, that is GREAT. Unfortunately, a huge number of people go into total denial and don't want to believe that the great gluten, the great wheat is a problem. After all, wheat is such a major part of our diet, it's everywhere, in everything, articles tell...
  8. CMCM
    There's 4 children in my family. My mom was diagnosed celiac 40 years ago, so we knew about her. However, her doctors always played down the chances of her children having it. I was the first tested....my gene test showed a celiac gene, no surprise there. My 3 siblings were reluctant to even get the gene test, saying they had no symptoms. I convinced...
  9. CMCM
    I took the Arrowhead Mills Gluten Free Brownie mix (it has chocolate chips in it!!) and mixed per instructions EXCEPT I didn't add any water. I think you could actually put a bit less than 1/2 c. oil, too. Then I mixed and gooped it all together and made a long roll....wrapped it in waxed paper, refrigerated an hour or two, then you can slice and bake...
  10. CMCM
    THe media always jumps on a tunnel vision bandwagon. As do the manufacturers when they smell a way to make big profits. Plus, the media always lacks vital information, such as the WHY of the need to have gluten free foods! This one, however, may actually help people in the long run because so many people remain undiagnosed.
  11. CMCM
    Ahhh, weight gain, weight loss. Here's what I've learned thru a lot of years of testing every frigging diet known to man. Several years ago, before I was realized my situation with celiac disease, my weight gain (about 30 lbs over my ideal 130 lbs which I weighed ALL my life with no problem) was bugging me. I did a strict Body for Life program for maybe...
  12. CMCM
    Doctors used to believe that celiac disease was primarily a childhood disease which frequently "went away". It is now understood that a person can have a degree of "tolerance" to gluten which develops as the body attempts to cope with gluten, thus creating this misconception that it "goes away". Although I had a lot of suspicious symptoms as an infant...
  13. CMCM
    Unless the doctors you are working with really KNOW about celiac disease, they're going to have a tough time diagnosing it. My suggestion is to try a gluten AND dairy free diet for awhile and see how you feel. You should get relief fairly quickly....within one to three weeks if you are lucky. If the diet really improves things, tell your doctor(s). And...
  14. CMCM
    I've noticed a real inconsistency of results with regard to gluten. I, too, can sometimes eat certain things and have no real reaction. Other things (even small amounts of soy sauce is one) and sometimes hidden things can cause a huge reaction. I've given up trying to figure it out, but realize that I am so much better off 99% of the time when I am...
  15. CMCM
    So much is not known or understood about celiac disease, especially in this country. And even LESS is known about gluten sensitivity, or about gluten sensitivity compared to celiac disease. There are actually a few celiac specialists who suggest eliminating the term "celiac disease" and call the entire spectrum "gluten sensitivity, which would include celiac...
  16. CMCM
    Herbal teas and also various herbal type pill supplements simply do not agree with me. However, I have had no problems at all with various green teas, including some of the Celestial Seasonings ones.
  17. CMCM
    Well, for what it's worth, my mom was diagnosed with celiac disease 40+ years ago, and although she stopped eating gluten then, and she is a tiny person, not overweight, her cholesterol has always been high (but the good HDL was always high). For myself, although only about 20 lbs over my ideal, I have fairly high cholesterol too (257 at last test), but...
  18. CMCM
    Big SIGH Does the ignorance ever go away? Do they ever really figure it out (doctors)???
  19. CMCM
    I thought my entire life until last year that I had severe dairy problems. Last year I tested positive for casein and gluten. I eliminated both for quite some time, then later discovered that when not eating gluten, I actually did fine with somewhat limited casein (dairy) in my diet. However, I questioned Enterolab about this, and they told me that...
  20. CMCM
    I have read that for many people with gluten intolerance or celiac disease, when you are eating gluten the body builds up a degree of "tolerance" to it. However, by excluding gluten from the diet for a long time, it seems logical that you lose the tolerance and thus, if you eat gluten you could get a very sudden and severe reaction such as you experienced...
  21. CMCM
    I absolutely love Bare Escentuals and their Bare Minerals products. Nothing but minerals in them, and they are so wonderful that I threw ALL my other makeup out. It's expensive, but you don't use much and if you are careful the stuff lasts a LONG time. The coverage is great, the colors are subtle, I just love it. They have their own little boutiques here...
  22. CMCM
    Chang's is my favorite gluten-free restaurant! I love that salmon....and the Phillip's Better Lemon chicken is great, too. I've eaten there a gazillion times, and some waiters know more than others, but I've never gotten sick there. However....quite a few times when they bring the bill, they still drop off a couple of fortune cookies!
  23. CMCM
    I have really begun to believe that certain vitamins upset my stomach (giving me heartburn like pain for hours on end). Does anyone else have this problem? The vitamin label doesn't indicate any gluten. Today I took a multi--B, 2 magnesium, an Omega 3, some liquid calcium, and a potassium. The thing is, vitamins don't always do this....
  24. CMCM
    Sorting out other intolerances is HUGELY difficult, I've found. After going gluten free 14 months go, I initially had enormous problems with all sorts of foods. I couldn't handle any of the gluten free baked things....all the various rice, bean and tapioca flours seemed to bother me, and lots of these things are very high carb/high sugar and I have also...
  25. CMCM
    Quite a lot of us here have done testing thru Enterolab. It is especially useful for people who have been suspicious of the possibility of celiac/gluten sensitivity, and who have for varying lengths of time been avoiding gluten....therefore making a blood test diagnosis difficult. The reasoning and science behind stool testing makes a LOT of sense.....especially...
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