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CMCM

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Everything posted by CMCM

  1. CMCM
    :lol: I've had this very unique experience as well. Lovely, isn't it! TMI warning: The worst of all would be experiencing the cramps after eating while sitting on the throne with severe diarrhea and simultaneously vomiting into the bucket I was holding. Yucch. Both ends at once! A unique celiac experience.
  2. CMCM
    YES YES YES YES YES. THis is a problem that definitely plagues me. When I was still eating gluten, it was frequent but not always connected to gluten. I remember every time I ate a hamburger it actually started to hurt going down, and then of course later too. If I ate the burger alone, it didn't happen. But many different foods, and IN PARTICULAR I've...
  3. CMCM
    This is from Danna Korn's book Wheat Free Worry Free. _______ About Silent Celiacs... Asymptomatic celiacs feel no symptoms associated with celiac disease, yet intestinal damage is occurring and the continued ingestion of gluten can result in any number of associated conditions. Most of these people were discovered as a result of testing because...
  4. CMCM
    From a study by the Celiac Disease Foundation, these are the top 20 misdiagnoses before arriving at a biopsy-confirmed celiac diagnosis (quoted from Danna Korn's "Wheat Free Worry Free"). Anemia IBS (Irritable Bowel Disease) Psychological Disfunction (stress, nerves, imagination) Diarrhea IBD (Inflammatory Bowel Disease) Diabetes Spastic Colon Ulcers...
  5. CMCM
    Tamari looks, smells and tastes like soy sauce. I usually find it in health food type stores.
  6. CMCM
    I'm really curious...at such a young age, why did you already have your gall bladder out? What was going on with your health?
  7. CMCM
    Here's what I think: For the most part, it really does look like ACTIVE celiac disease is "triggered"...it can be a physical event such as surgery or childbirth, or it can also be a traumatic emotional event. For my mom as an example, she had a hysterectomy and her serious problems began right after then and continued on for 7 years until diagnosis. ...
  8. CMCM
    I am also one who did and felt WONDERFUl on the Atkins diet. I was totally puzzled at the time, but now I understand why!! About small amounts of gluten: The fact is, the body does its best to create a "tolerance" for gluten. Sometimes it is successful, other times not. Reactions can also be cumulative in nature: You have a tolerance, you eat a...
  9. CMCM

    ARCHIVED Omg.....

    CMCM replied to JerryK's topic in Coping with Celiac Disease

    Kinnickinnick breads (the white ones) are tolerable. Many health food stores either have them or can get them for you. You have to keep them frozen and defrost when needed. I mostly use them as toast. Since they are fairly worthless nutritionally, I don't really have them much...mainly for breakfast if I have a poached egg on toast or something. Their...
  10. CMCM
    It's not only the lab...it's also the actual tests that your doctor orders. Both my son and I had blood tests...done before I had done any real reading on which specific tests must be ordered. My doctor was so clueless, when I asked him to order a celiac test he simply wrote "celac test panel" on his bloodwork form. The lab called him back asking which...
  11. CMCM
    Jeez, I hope when you left that doctor's office you waddled out and quacked very loudly as a response to his "wisdom." :lol: :lol: :lol:
  12. CMCM
    Your family history, your own health history, your surgery (possibly a trigger), your symptoms are strongly suggestive of celiac disease, or alternately, not active celiac (yet) but at least gluten sensitivity. The fact that your doctor "wrote" that you have IBS means nothing, nada, zilch....it just means he has no answer for you. You should DEMAND (not...
  13. CMCM
    Oh my YES! In fact, it was a very scary bout with vertigo that made me finally starting looking into the possibility of a connection with celiac disease. I have no proof the two were connected, but when this happened I had eaten a ton of gluten foods the day before it happened, and it came on suddenly, and it hasn't happened since (that was 16 months ago...
  14. CMCM
    I don't have any answers for you, but I thought I'd mention that at times, sporadically, I will also get these horrible pains, burning, just awful...and it has no real rhyme or reason although I am instinctively wary of eating a lot of things like chips (the fried aspect of them??), and I believe it has also been triggered by eating too much volume wise....
  15. CMCM
    You have 2 gluten sensitivity identified genes. If your son has a celiac gene, that means he got it from his father, not you. Dr. Fine's FAQs said (if I interpreted corrected) that two copies of a gene (and I'm assumiing that means 2 celiac or 2 gluten sensitive) means a greater predisposition to symptoms and symptoms may be worse than with only one. But...
  16. CMCM
    The writing sure seems to be on the wall for you. What do you mean do a gluten challenge? Eating a small amount of gluten has already served as your challenge....look at the reaction you get from it! You don't need a doctor to "officially verify" that gluten is bad for you! Most people, by the time they are interested enough and savvy enough to end up...
  17. CMCM
    I spent over 20 years with asthma symptoms, yet extensive asthma testing results were always that I didn't have asthma. I had difficulty breathing...I often felt like I might feel if someone were sitting on my chest. I had a dry cough which never went away. I wheezed. Occasonally I was symptom free for short periods of time, but sometimes it would just...
  18. CMCM
    This was reported right here on this site...I hadn't seen it before. What's interesting is that it points out a rather high number of celiacs that test negative on the blood tests...and it further supports Dr. Fine's stool testing as a diagnostic tool! _______ Celiac.com 01/11/2007
  19. CMCM
    I got this from the website of National Foundation of Celiac Awareness. ______________ Celiac -- By the Numbers
  20. CMCM
    Go to this link...there are 3 interviews about celiac disease. Watch #3, then #2, then #1. The #3 interview is with Dr. Peter Green and is about 10 minutes...quite comprehensive! Open Original Shared Link
  21. CMCM

    ARCHIVED Celiac On Cnn

    CMCM replied to happygirl's topic in Publications & Publicity

    Here's a link to info about the CNN anchor, Heidi Collins, who was diagnosed with celiac disease....it only took her 15 years including the loss of a baby in her 6th month of pregnancy to get diagnosed!! Open Original Shared Link
  22. CMCM
    Some kids are born with celiac disease showing up at an early age. Doctors used to firmly believe that kids could and often did grow out of it. This is now known to NOT be true. What may have happened is that kids, like with many adults, developed a kind of "tolerance" to gluten, allowing them to continue to eat it for many years without excessive externally...
  23. CMCM
    I think we all feel this way sometimes. But I've decided that as with most other things, people are generally thinking mostly only of themselves and tend to forget about the dietary limitations of others. It's just not forefront in their thoughts as it must be with us. SO.....I choose to think of this as mostly in my head, and I stop myself from being upset...
  24. CMCM
    Hey Jerry....Sorry, but I really do think you're making a mistake if you choose to believe because you are not officially one of that 1 to 3% who are celiac, that having "only" gluten sensitivity excludes you from the need to worry about gluten. Absolutely NOT so. I have read my brains out on this, and what is not getting through to so many doctors and...
  25. CMCM
    Here are the necessary blood tests...I copied this from Danna Korn's www.glutenfreedom.net site. Blood: The blood test for celiac disease is looking for the following : AGA (antigliadin) IgA AGA (antigliadin) IgG EMA (antiendomysial) tTG (anti-tissue transglutaminase) Total serum IgA Genetics testing - DQ2, DQ8
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