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AristotlesCat

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AristotlesCat

  1. AristotlesCat
    This isn't what is going on. I was fine on the previous brand of coffee. People here really should stop diagnosing people with things remotely.
  2. AristotlesCat
    My aim wasn't to be rude. If that is what it was, I apologize. But I was surprised by your recommendation and response (not just there but also on another thread we were commenting on). I think there is bad information being spread on this forum by posters who have an outdated view.
  3. AristotlesCat
    Thankfully creamer isn't an issue for me. I only use it occasionally and since I've been on the look out for the problem, I've only been taking the coffee black until I get to the bottom of things.
  4. AristotlesCat
    Thanks for the information. I just want to clarify something here as well, since it didn't occur to me this might be what people are zeroing in on: Peripheral Neuropathy is not an unusual celiac symptom. If some of the other posters were trying to suggest that my PN was caused by some other condition I have, let me assure them: my neurologist, my GI...
  5. AristotlesCat
    The cross contamination issue came up in other threads with some of the same posters. My statement about that was taken those other threads into account. I am saying there are a few key posters downplaying the risks or possibility of cross contamination. I also think saying flat out it is virtually impossible that I had a reaction to the coffee is odd...
  6. AristotlesCat
    And one last time I'd like to point out, all I asked here was for some coffee recommendations.
  7. AristotlesCat
    Everyone is different, that sounds like a big reaction. Still I've had some unusual reactions to gluten exposure myself in the past, and even something as seemingly minor as the cramping can get pretty intense. I would definitely agree with cyclinglady that getting the antibodies test soon is a good idea (at the very least you get a data point to have handy...
  8. AristotlesCat
    Pizza is one of the hardest ones to do. This is something where it is wise to lower your expectations and to consider making it yourself (because if you find a crust you like, there is a god chance the cheese or sauce might not be to your taste). I have yet to find a pizza brand that gets everything right. But don't despair, there are some tasty options provided...
  9. AristotlesCat
    I would be pretty careful about rotisserie anything in a supermarket or megastore in the US if it isn't labeled gluten free.
  10. AristotlesCat
    They don't have to certify. But the gluten free labeling rules say if it says gluten free on the label it is supposed to be under 20 parts per million. There are good reasons for this. It just takes a small amount of gluten to trigger a reaction in the body for weeks. If they can't take steps to occasionally check, to verify that their source isn't introducing...
  11. AristotlesCat
    I was diagnosed with celiac about seven years ago I think. At the time it showed up on an endo and I tested positive for antibodies. I was having tingling in my legs and feet and other symptoms. Went on the gluten free diet and my antibodies went down, my symptoms went away. No more tingling feet. This lasted for years. Then about two years ago symptoms returned...
  12. AristotlesCat
    Fair enough. But some celiacs lie to themselves about the actual level of risk when dining out. I am very distrustful of anyone who thinks nothing of drinking prepared coffee at a restaurant or who doesn't seem to pay much heed to the risks of cross contamination. Cross contamination is pretty well established as a problem for celiacs and the people here...
  13. AristotlesCat
    This doesn't surprise me. I used to work at a whole foods (in the fish and meat departments). We had a practice there of putting penko bread crumbs on older fish and frying them then selling them as snacks. This on its own is fine (the fish was still good and the frying made it taste great). But we used the same surface for spreading the penko as we did for...
  14. AristotlesCat
    Also I do want to point out, because I think it is important, that I started a thread asking a community called celiac.com what coffees they would recommend, if they knew of any certified gluten free coffees. I don't think anyone recommended a single brand except Ennis_TX. Most of the responses were either people telling me coffee should be fine, people suggesting...
  15. AristotlesCat
    I am sure the reason varies from company to company. But I have contacted many the use the label and have frequently encountered the mindset among several that they don't have to take any special precautions because the food in its raw state is naturally gluten free. That is a very dangerous mentality if you are putting any kind of gluten free labeling on...
  16. AristotlesCat
    I am a member of gluten free watch dog. They tested it for one report. That doesn't mean it is safe forever or that there are no cross contamination issues with the brand. You could have ten boxes that are fine and one box that isn't, and that one box is going to create issues in your body for weeks. I think Gluten Free Watch Dog is great, but you can't rely...
  17. AristotlesCat
    Again, I should specify, this isn't about the coffee creating any stomach symptoms. I have both celiac and crohns and generally find I handle coffee just fine. The problem is something in my diet within the last couple of years has triggered other celiac symptoms and so I am attempting to find a brand I can be more certain is gluten free. One of the changes...
  18. AristotlesCat
    No. I am not giving up coffee or caffein. Been drinking coffee since I was 13, so stopping now is a non-starter. We have narrowed it down to the coffee though it seems and switching to the certified brand will likely improve things. The issue here isn't stomach upset. It is peripheral neuropathy and other issues like vitamin deficiency due to a celiac...
  19. AristotlesCat
    They do not think I have refractory celiac disease. My celiac was completely under control for years, then I started showing symptoms and the GI doctor, as well as my neurologist and a celiac specialist agreed that the problem was something I introduced into my diet later was likely causing the problem. Doctor doesn't have an issue with me drinking coffee...
  20. AristotlesCat
    That is your choice. I can tell you as a Mass resident, I would be very cautious about the first several restaurants that came up on that search. Obviously Gemini and I disagree on many points. I think a lot more caution is warranted than she does.
  21. AristotlesCat
    Gemini I already explained to you, MY DOCTOR has concluded this is celiac not being well controlled and believes gluten is getting into my diet somehow. The coffee is the most likely source I was able to narrow down. Not 100% for sure, but the most likely. So I was looking for recommendations on reliable coffee brands. You replied by saying you have never...
  22. AristotlesCat
    I am responded in that way because Gemini is so carefree about celiac and the first things that popped up on the list were restaurants I knew not to be safe for celiacs. I was recommending caution around recommendations from a poster who is in my opinion pretty reckless about gluten issues. I was cautioning the poster to be careful about Gemini's person recommendations...
  23. AristotlesCat
    maybe you are not the sole source of experience on all things gluten gemini. It is pretty obvious to me, having narrowed down the suspects, this K Cup is likely the source of the problem. And I've even found a certified brand. You can poo-poo peoples' concerns and just dismiss them. But it only takes about a minute of thought to see how cross contamination...
  24. AristotlesCat
    With medications I think they should be forced to test for them and they should make all medications that can be gluten free. If you have to take a pill every day and you have no choice, you shouldn't have a question mark on it. It should be gluten free.
  25. AristotlesCat
    I am the only one who uses the machine. I don't consume oats. My GI physician hasn't tested me for any reaction to oats themselves, but because things are not under control and I also have crohn's disease, he has advised that I not consume any oats at all just in case I am in that camp of people who also can't digest them. I have have been diagnosed...
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