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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There is a very short editing time frame for member posts in which you can include pictures and attachments. When the time window closes, you must start a new post window if you want to add something. Use the three dots in the upper right corner to edit and then use the drag and drop tool in the lower portion of the edit box if you want to include the data...
  2. trents
    Welcome to the forum, nattalie! Seldom do people with celiac disease test positive on all tests that can be run for detection. That is normal. Some tests are more specific for celiac disease than others and some are more sensitive than others. Also, with young children whose immune systems are immature you often get additional testing irregularities...
  3. trents
    That I know of, there is no test for lactose intolerance. But dairy intolerance can also be due to an intolerance to the protein casein found in milk. Lactose is the sugar in milk.
  4. trents
    Welcome to the forum, Stephk774! By "Tissue transglutaminase antibody" I take it you are referring to the tTG-IGA. The test result was 14 m/ml. Can you also give the reference range used for that one? Without the reference range for negative vs. positive we can't comment much since different labs use different ranges. There is no industry standard. We...
  5. trents
    Yes, I know. I was replying to Herminia's post.
  6. trents
    My favorites are the gluten-free varieties made by Franz. It only markets in the west coast and Rocky Mountain region of the US I believe, however. Is it available to you?
  7. trents
    Not surprised. A child's immune system is undergoing rapid development and hers is immature at this point. As it develops, there will be changes in how it interprets things in her diet and environment as to whether they are safe or pose a threat. That is why physicians are often hesitant to declare that a child has celiac disease based on an isolated out...
  8. trents
    Keep eating regular amounts of gluten daily (2 slices of wheat bread or the gluten equivalent according to the Mayo Clinic) up to the day of testing until all tests are complete.
  9. trents
    Welcome to the forum, Lissasmmarie! I take it the TTG was tTG-IGA and that would strongly suggest she has celiac disease. And that number is unequivocally high. Her total IGA is actually a little high. The importance of total IGA is that if it is low it will skew other IGA tests downward and can create a false negative. Not an issue in this instance...
  10. trents
    That's the long and short of it, yes.
  11. trents
    The IGA/AB looks like it could be for celiac disease diagnosis but there is more than one IGA parameter that can be checked for celiac disease. The most common test physicians run for diagnosing celiac disease is the tTG-IGA and just judging by the magnitude of the range given in your post I would guess the IGA/AB might be referring to that one. But, I can...
  12. trents
    Some experts believe that NCGS can be a precursor to celiac disease. NCGS would not cause a DH rash. But, it has not been confirmed that you have DH. Make sure you find a dermatologist that knows the correct way to biopsy DH. Not all do.
  13. trents
    pikauchu, have you considered my suggestion in an earlier post about NCGS instead of celiac disease? That would explain the celiac-like symptoms in the absence of villi damage as well, perhaps, the weak positive score on the secondary antibody test.
  14. trents
    Welcome to the forum, DebbieJ! What tests have not yet come back? There are specific tests designed to detect celaic disease antibodies that are not normally run when getting labs done. Do you know if these were run and if these are the ones you are waiting on?
  15. trents
    So, by "packaging materials" you mean other than shipping boxes and cushioning material. But that's how I took it. Corn is one of many food substances that can mimic gluten for "some" celiacs such as oats, dairy, meat glue, etc.
  16. trents
    If your low carb diet was largely excluding wheat products it could result in false negatives in the tTG-IGA test which is the centerpiece of celiac disease antibody testing. The tTG-IGA is a favored test because it combines good specificity for celiac disease along with good sensitivity. The dpi igg test is less specific for celiac disease than the tTG-IGA...
  17. trents
    I'm not sure the linked article is talking about a cross reaction to corn in celiacs because it specifies that this was a rectal phenomenon rather than small bowel. Celaic disease affects the small bowel, not the rectum. Besides, who eats their packaging material?
  18. trents
    You could also have NCGS (Non Celiac Gluten Sensitivity). They share many of the same symptoms. There is no reliable test for it yet but some of the secondary tests for celaic disease (like the one you were positive for) can at least be an indicator. NCGS is 10x more common than celiac disease and some experts believe it can be a precursor to celiac disease...
  19. trents
    Besides celiac disease, the tTG elevation could point to Crone's but I'm not sure about the thyroid.
  20. trents
    Sounds like you are on the verge of anemia but you caught it early on.
  21. trents
    Kudos to your physician for ordering celiac disease tests in response to your hypothyroidism, for making that connection. Most would not. Can you clarify or give more details about having iron deficiency without anemia? There are several iron measures that can be tested, e.g, hemoglobin, ferritin, transferritin. Some measure immediate serum iron levels and...
  22. trents
    Two primary celiac antibody tests were run: tTG-IgA, Ab and the endomysial antibody (or EMA for short) and one secondary test (Gliadin DP IGA, Ab). You were positive for one of the two primary tests and negative for the secondary test. It is odd that you were positive for the tTG-IGA but negative for the EMA. The tTG-IGA is the most common test ordered by...
  23. trents
    Welcome to the forum, Countrygiant9! The posted test results data are confusing. Positives should be higher than the reference range but the way it's worded in your post, positive is being referred to as under the negative/positive threshold. Can you clarify this? In other words, as an example, a negative result would be 10 or below and a positive...
  24. trents
    Costco's Kirkland brand of orange psyllium husk fiber states on the container that it is gluten free which means it passes the 20ppm gluten-free labeling requirement. As always, that standard may not be stringent enough for sensitive celiacs.
  25. trents
    How's the circulation down there in the lower end?
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