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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What are you doing to get B12 in your diet? At this point in time there have been two main genes identified as associated with celiac disease (DQ2 and DQ8) with evidence that some others may be involved at least at some level. There seems to be some correlation between having both genes or just one and the degree of sensitivity to gluten and the severity...
  2. trents
    I did some editing after your reply so you might want to re-read my post. So you must be Kara. Have you had genetic testing done?
  3. trents
    It is a very interesting pattern of test results. the tTG-IGA is considered the centerpiece of celiac antibody testing since it combines good sensitivity with good specificity, but not necessarily the best in either category. The other tests can be deficient in either of those two categories. The endomysial IGA is very specific for celiac disease but...
  4. trents
    Omeprazole will have an immediate effect in lowering stomach acid. The real question is what effect will three weeks of lowered stomach acid have on other gut factors and other body systems. I would think nothing serious.
  5. trents
    Welcome to the forum, Poppifleur! In the UK it is common for physicians to assign an official diagnosis of celiac disease when the tTG-IGA is 10x normal range or greater and so to forego the endsocpy/biopsy. You would fit this category. But do not start a gluten free diet until you get definite word from your physician that he/she is not opting for biopsy...
  6. trents
    Welcome to the forum, UncleBen! It does sound like your sister is overreacting to some extent. We do have people on this forum who claim that any physical contact with gluten causes them a reaction but I think that is not common. But one thing you need to be aware of is that once people go gluten free and have been gluten free for a significant...
  7. trents
    No, there is no gluten per se in wood. Gluten is only found in wheat, barley and rye. But there are many other plants (and even in some animal food products) that contain bio chemical protein chains that closely resemble gluten and some people seem to react to them in similar fashion. I have heard people speak of corn gluten and oat gluten but strictly speaking...
  8. trents
    A very important point is to make sure you choose vitamins and supplements that are gluten free. Costco's Nature Made and Kirkland brand of products is very good about stating clearly on the bottle it is gluten free. Here's what I recommend: An adult multivitamin such as Centrum or the equivalent daily. I use the Costco Kirkland product. A high...
  9. trents
    It is not unusual for some celiac antibody scores to be positive with others negative. The main reason for that has to do with the fact that some of the tests are more sensitive than others. I am not familiar with the tTG2 test. Is that a typo? If there is a best single antibody test for celiac disease it would be the tTG-IGA since it combines good sensitivity...
  10. trents
    Looking forward, this might be of help in getting off to a good start: Yes, it is daunting in the beginning. The hardest thing probably is the impact on one's social life. Eating out, family gatherings and invitations for meals from friends all present dangers to the celiac. Eventually, you make adjustments and it becomes the new norm.
  11. trents
    Your question begs another question: Have you already started eating gluten free? If so, you need to get back to eating gluten until after your endoscopy/biopsy is complete. The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the equivalent) for at least two weeks prior to the biopsy. Be aware that some people experience...
  12. trents
    The three gluten containing grains are wheat, barley and rye. When it comes to gluten-related medical conditions, your doctors is a dud. Do you have options for providers in your medical system or are you stuck with whoever they give you?
  13. trents
    The Mayo Clinic recommendation for the serum antibody pretest gluten challenge is the daily consumption of the amount of gluten in two slices of wheat bread (or the equivalent) for six to eight weeks. You only were on gluten for four weeks. I hope this did not compromise the results. But most likely, you have NCGS as opposed to celiac disease. At the end...
  14. trents
    You said, "as for my stool it appears normal. Normally I go twice a day without problems. Lately (I’m sure due to stress) it’s been a more random schedule. I also attribute that to my diet changing. Sometimes immediately after eating I have the urge to have a bowel movement but I can’t go" When you say your diet changed do you mean you have already start...
  15. trents
    Yes, with some cancers (like leukemia) the white blood cells can be elevated, I believe. Did your blood work include other tests besides those specific to celiac disease? It is not common for doctors to order celiac blood antibody tests along with the usual things that would be included in a CBC (Complete Blood Count) and a CMP (Complete Metabolic Panel)...
  16. trents
    The immune system is very complex with a number of different pathways representing different ways of dealing with different threats. White blood cell counts become elevated when an infection is being battled. Celiac disease is not an infection (not a bacteria or virus) but an autoimmune condition that does not involve the white blood cells responding.
  17. trents
    Our perception of medical problems "popping up quickly" can often be misleading. It's like an earthquake. The subterranean pressures of shifting tectonic plates are probably building for a long time before the big one hits that we perceive as the beginning of the event. With celiac disease there is a genetic component that remains latent until some biological...
  18. trents
    Realize that both celiac disease and NCGS (Non Celiac Gluten Sensitivity) do not necessarily occur in a vacuum. By that I mean there are many "spinoff" diseases that often accrue from having either of these conditions. But lets just focus on celiac disease since your antibody tests strongly suggest that is what you are dealing with. By the time you begin...
  19. trents
    You will need to have been consuming gluten in the equivalent amount of 2 pieces of wheat bread daily for at least six weeks leading up to the endoscopy. I hope you haven't already started cutting back on gluten.
  20. trents
    Yes, the thread is still open. Let's here your questions.
  21. trents
    Was the endomysial antibody titer stated to be positive? I'm not familiar with how they gauge that since it uses a ratio rather than a raw number. I think the 80 might be the threshold number at which the antibodies were still detected as they increase the dilution in the titer process but I'm not sure about that. I do know that the endomysial antibody...
  22. trents
    30 minutes of exposure to direct sunlight with only face and arms uncovered should cause your body to product sufficient amounts of vitamin D to meet or exceed the RMDA (Recommended Minimum Daily Amount). The RMDA is probably less than optimum, however.
  23. trents
    Welcome to the forum, Mandy42! Your question is one I don't believe I have ever seen on this forum. Most people don't know what the "triggering event" was or when it happened. I assume by "triggering event" you refer to some health stressor that triggers the celiac genes to move from the latent condition to the active condition. It takes most people...
  24. trents
    The new test result is total serum IGA. That would be all the various IGA components added together. It would be like your total household income. You add together your income from your job, your wife's job, your investments and the room and board your elderly parent pays you who lives in your home. The tTG-IGA would be like looking at the income from your...
  25. trents
    It means your total serum IGA is about in the middle of the normal range which, in turn, rules out the issue of your tTG-IGA score being suppressed because of low total serum IGA.
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