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trents

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Everything posted by trents

  1. trents
    Are you taking the need to eat gluten free seriously? How are you doing with that?
  2. trents
    IMO, and many physicians would concur, allergy testing is too often not very helpful. I have had them done, both epidermal and serum testing, and they don't agree well with one another and they don't agree well with what I experience in real life. You can have the same serum samples sent to different testing labs and you will get significantly different results...
  3. trents
    Are you certain your skin breakout is DH? Could it be an allergic reaction caused by some other ingredient besides gluten?
  4. trents
    How much was in each bag? Were these snack size bags or like, family size?
  5. trents
    Amen! Your mom refused to play the victim card.
  6. trents
    This article focuses on this phenomenon in children but mentions previous studies have pointed to a similar phenomenon in adults. According to this Turkish study, children with frequent canker sores are six times more likely than those in the general population to test positive for Celiac disasease. https://www.beyondceliac.org/research-news/kids-canker...
  7. trents
    There is hardly a medication that does not have potential risks. I think we need to see this as trying to correct what we know to be a problem with a remedy that we know works but we also know has the statistical potential to cause other problems and then weigh the benefit/risk ratio. I speak in general terms here, not specifically of PPIs. And each...
  8. trents
    Wow! I can feel your anger as I read your words. I don't know the exact time in life of the onset of my celiac disease. I can trace it as far back as 37 years of age when I when I went to donate blood at the Red Cross and they turned me down because of elevated liver enzymes. I wasn't a drinker and had not practiced risky living so, feeling to be in...
  9. trents
    I seldom get sinus infections anymore or even common colds. Of course, a big part of that may be that I'm retired and don't get the exposure to viruses like I used to in my working years. As I indicated earlier in this thread, I'm in the process of weaning myself off of my PPI or at least moving to a lower dosage. Found this: https://www.ncbi.nlm...
  10. trents
    Good stuff, Kate333. Thannks! I can understand your frustration and pain. There is so much being learned about Celiac Disease these days. We know so much more that we did 15-20 years ago when I was first diagnosed. Slowly, doctors are catching up to the research but that seems to be the way it is with most every disease. Personally, I developed celiac...
  11. trents
    My apologies if I misrepresented what you said but the remark about Big Pharma seemed to qualify your previous remark and imply (to me at least) that Big Pharma studies did show a link. Granted, I have not researched this. But what I can tell you from my own personal experience is that PPIs did give me release from extreme discomfort (heart burn) and...
  12. trents
    Some studies may never happen if not for "big pharma". Just because studies are done by big pharma doesn't automatically disqualify them as being legitimate. For all their evils, it may also be true that we owe a lot to the big pharmaceutical companies. And whereas you might find doctors who claim BE and EC are not linked to long term acid reflux, I don't...
  13. trents
    I wouldn't know about that. But I think 20mg of Omeprazole is the most commonly prescribed dosage for that med. I believe it would be considered the "standard" dosage. But traditional antacids such as Tums and Gaviscon can be helpful in bridging when you are trying to get off a PPI and they should be well-tolerated. Ultimately, the way any of those things...
  14. trents
    I caution you against going off a PPI "cold turkey". I you have been on a PPI for any length of time you are likely to get a gastrin rebound, a well-documented effect. I have tried going off my PPI cold turkey twice but with painful results that took a week or more to get back under control. Getting off a long term administration of a PPI can be very difficult...
  15. trents
    Scott, are there cosmetics that have gluten-free on the label? I have not seen that but I don't look for it either in those kinds of goods so maybe I just missed it.
  16. trents
    I also think it is true that transdermal delivery of any substance is less, much less efficient than ingestion or inhalation.
  17. trents
    Found this: https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879#:~:text=Some people develop a form,by skin contact with gluten. According to this article from the Mayo, transdermal guten exposure is not a danger.
  18. trents
    Kate333, I'm not so sure about that. If consumers would start asking, "Where is this made" and refuse to purchase meds and personal health products not made in the USA I think over time it would happen. But of course, this presupposes there are options available. I seem to remember early in his tenure, President Trump leaned on some automakers to keep their...
  19. trents
    Have any studies been done on the actual effect on Celiacs of exposure to gluten transdermally? I could be very wrong but it strikes me that this might be an unfounded fear as long as hands are washed after application and it is kept away from the lips and the mouth.
  20. trents
    Yeah, as CL said, pharmacies change suppliers (especially for generics) like you and I change socks. It's all about where they can get them the cheapest at any given point in time. Also, there's no guarantee that even with name brands the formulations won't change. And it can be difficult to get a definite answer when trying to determine if a med has gluten...
  21. trents
    Sorry, CL I see that I misread your post the first time.
  22. trents
    CL, why do avoid gluten in shampoo but are not concerned about it in lipstick and toothpaste?
  23. trents
    I think it also needs to be said that this is one of the hardest concepts to grasp for newly diagnosed Celiacs, that something you are eating is causing the body to attack itself. I think that's why it's so hard for those new to the experience to grasp that it is not an allergy.
  24. trents
    People can have an allergy to gluten (as they can to almost any protein) but Celiac disease is classified as an autoimmune disease. When you read food labels gluten is found in the allergy information but that's because the food companies don't have a category for autoimmune disease triggering ingredients. Antibodies are produced anytime the immune system...
  25. trents
    That sounds like a plausible theory. Ranitidine (Zantac) is not a PPI but it has the downside of users developing tolerance to it such that the dosage needs to be increased. Have you tried different PPIs and would your insurance cover alternative PPI's or is it possible that your PPI dosage could be lowered? The bloating might be caused by too low of a PH...
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