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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You say, "The hard stools have never ceased after decades. And it's not caused by the meat, as it can happen usually just by avoiding gluten, and sometimes needing to add in a probiotic. I'm 95% sure that this is a gigantic cleansing reaction from all the years of grains/gluten prior to switching diet." This confuses me. Are you saying the hard, compact...
  2. trents
    It's saying your GLIADIN (DEAMIDATED) AB (IGG) test is negative. Your value is 1.6. 15.0 or greater is positive (=detected). That's how I take it.
  3. trents
    Yes, the other ingredients could contain gluten because of cross contamination from possibly being processed on the same equipment that is being used for gluten containing grains or being grown, stored or transported in regions where gluten grains are also a part of the economy. But I am also saying that some of those other ingredients found in the product...
  4. trents
    There are a number of odd ingredients in that product that might cause the symptoms you describe in individuals, especially if your son is using it constantly as you say. I wouldn't necessarily jump to the conclusion that is the oat beta glucan that is the culprit.
  5. trents
    Are you saying it's not gluten free because of the oats that the beta glucan is made from may be cross-contaminated with wheat, barley or rye? Apart from that, oats themselves do not contain gluten and the term "glucan" should not be confused with gluten.
  6. trents
    MSM? You are omitting the most important ones. You should also be adding: Sublingual B12 a high potency B-complex Magnesium Glycinate 5000-1000 IU of D3 (Does your fish oil contain D3?) zinc Make sure all are gluten free.
  7. trents
    The length of your challenge is appropriate but you also need to be eating a sufficient amount of gluten daily during that time to expect a valid test result. 10 gm daily or about 3 slices of wheat bread or more.
  8. trents
    Good catch, Wheatwacke! @Carolth, a colonoscopy cannot be used to diagnose celiac disease. An endoscopy with biopsy of the small bowel lining is what is needed. A colonoscopy cannot reach up that far. The affected area is just below the outlet of the stomach.
  9. trents
    How about H. Pylori?
  10. trents
    Have you been confirmed to have celiac disease or is that being looked into?
  11. trents
    Everything we eat in some way to some degree makes war against our bodies. The real question is, what genetic factors predispose individuals to be particularly susceptible to harm from certain foods? We probably all are susceptible to different things to different degrees so the challenge is to get a handle on what those are for each us as an individual so...
  12. trents
    What kind of vitamin and mineral supplements are you on? At this stage of healing, you will need more than what you can get from your food alone. Your small bowel villous lining is still trashed and very inefficient in absorbing nutrients. Are you still consuming oats?
  13. trents
    Can you be more specific? Where in the USA or is that open at this point? Are you look for an urban environment or small town/rural?
  14. trents
    Welcome to the forum, @Talia.io! I'm afraid your post is confusing to me. If you aren't having symptoms, how can we identify your symptoms? Are you asking about symptoms that you may be overlooking that may help you spot unexpected gluten exposure?
  15. trents
    Of course that is possible. It is also possible that the damage is patchy and the samples taken missed the affected areas. Sometimes the biopsies are not done as thoroughly as they could be. You may also have NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease and shares many of the same symptoms. There is no test for NCGS. Celiac...
  16. trents
    Welcome to the forum, @Pmayer! The Immunoglobulin A (what we call "total IGA" for short) is not a test for celiac disease per se. It is a measure of total IGA antibodies, not just those generated by celiac disease. However, if total IGA is low it will drive down the scores for individual IGA antibody components, including those for celiac disease, and...
  17. trents
    Leann horne, what is the name of the gluten protein found in wheat, barley and rye?
  18. trents
    Once you go gluten free it will invalidate all testing. But if going gluten free causes your symptoms to improve, you can assume you either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
  19. trents
    Adding to the complexity of your question is new data that suggests thorough mucosal recovery is anything but guaranteed even for those celiacs practicing a GFD and that when and if it happens it often takes years, despite improvement in clinical symptoms. https://pubmed.ncbi.nlm.nih.gov/20145607/
  20. trents
    Ideally, yes. But we don't live in an ideal world. The problem is that there is no practical way to test the effect of trace amounts of gluten in the actual gut environment of "insensitive" celiacs.
  21. trents
    Leann horne, apparently your are cross reacting to proteins found in these other grains that resemble the gluten found in wheat, barley and rye. But if when you eat rice your blood sugar drops and you faint, that does not sound like a celiac reaction. It sounds like some kind of allergic reaction.
  22. trents
    Welcome to the forum, @Amiee! Total IGA is not a celiac disease antibody test per se. However, if total IGA is low, then it can cause false negatives in the actual IGA celiac antibody tests. The Transglutaminase IgA is a celiac antibody test and it is positive in your case, indicating you do have celiac disease. Anything over 5 FLU would be positive...
  23. trents
    But don't start a gluten free diet until all testing for celiac disease is done if you intend to go for more testing. This doesn't apply to the genetic test which is not a test for celiac disease per se.
  24. trents
    IGA tTG is not the same as total IGA. IGA tTG is a particular antibody associated strongly with celiac disease. Total IGA is the whole mix of IGA antibodies which includes tTG but others as well. If total IGA is low it can drive down individual IGA scores, including the tTG IGA.
  25. trents
    The information you give seems incomplete. Did you have another test done to measure total IGA that showed total IGA was low or is the comment to that effect in your post just putting forth a possibility? Low total IGA can result in false negatives for the IgA TTG result. The data with the IgA TTG is confusing but it looks like the [<7] must refer...
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