trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Welcome to the forum, @Sundy Ward! Are you still eating oats (even gluten free oats) and dairy products? The proteins in these foods and others such as eggs, soy and corn closely resemble that in gluten and many celiacs must also eliminate them from their diets. Start with dairy. When you say your "gluten levels" are down to 141 I assume you mean... -
Gentetic Testing
trents replied to Dora Ann's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
All testing for celiac disease is compromised when the gluten free diet is already in place. The blood antibody tests are measuring the antibody levels in response to the ingestion of gluten. For those with celiac disease, gluten is interpreted as an invader when it comes in contact with the villous lining of the small bowel. The immune response produces... -
Gentetic Testing
trents replied to Dora Ann's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @Dora Ann! Your post is a little confusing as it's not clear to me whether you are seeking clarification for your own antibody and genetic testing results or your 20 year old son. So, let me take a stab at this, assuming you are asking for yourself. First, I understand you to say the tTG-IGG antibody test was positive for yourself... -
ANA positive - Celiac and aspirin therapy
trents replied to Painful5's topic in Related Issues & Disorders
Aspirin, as are all NSAIDs, is a COX 1 and COX 2 inhibitor. That means it interferes with two steps in the body's process of rebuilding the protective mucous lining of the upper GI tack. In addition it is a acidic irritant (salicylic acid). Personally, I use NSAID's very cautiously and sparingly as a celiac because we struggle with damaged gut linings already... -
Yes, zinc is commonly low with celiacs and is one of the minerals we commonly recommend as a supplement to newly diagnosed celiacs, especially those who have likely lived with the disease for years before being diagnosed.
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Gut health and overcoming celiac
trents replied to Karen101's topic in Introduce Yourself / Share Stuff
You are correct and your friend is wrong. There is a field of genetic science known as epigenetics which studies the influence of environment and lifestyle on gene expression. But once the genes are expressed, you can't turn them back off. -
Has your hubby had the endoscopy with biopsy to check for damage to the small bowel villi? Many have damage but are asymptomatic. We call them "silent celiacs".
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Does your hubby also have the gut manifestation of celiac disease?
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Welcome to the forum, @mack4m! The fact is, most celiacs don't manifest with dermatitis herpetiformis. Those with dermatitis herpetiformis are in a decided minority. Another fact is, many or most dermatologists don't know how to properly biopsy for dermatitis herpetiformis so I certainly would not write dermatitis herpetiformis off just yet. Lowering...
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@Sandra85, welcome to the forum! Did you get ill from this small exposure? I mean did it cause you any particular symptoms? I assume not since you do not mention any. Please here me. I'm not saying that no illness from a gluten exposure equates to no inflammation of the villi. What I am saying is that it isn't the occasional exposure to gluten that you...
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Bump it up to 5000IU or 6000IU if your caps are 2000IU each.
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Don't put too much trust in vitamin and mineral blood level tests because what is floating around in the blood does not necessarily equate to what is being taken up by the cells. How much D3 are you taking? 5000-1000IU is therapeutic and not excessive. Initial precautions from years ago about D3 toxicity from supplementation have since been proven overly...
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TTG-IGA or TTG-IGG?
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Be aware that the EMA is a less sensitive test than the tTG-IGA. The EMA is very specific but less sensitive so there is a possibility that it could be negative and then you would have one positive and one negative . . . a possible quandary. The EMA was developed early on and has largely been replaced by the tTG-IGA as the tTG-IGA has both good sensitivity...
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Welcome to the forum, @Jessica K.! The chances are very slim, about 5%, that her high tTG-IGA levels are high dure to something else besides celiac disease: But if you want an official diagnosis, you may have to go forward with a biopsy which, as you know, would require your daughter to continue gluten consumption in order to ensure reliability...
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Welcome to the forum @lesley bailey! Do you have or have you been checked for celiac disease? Just wondering why you posted on a forum for celiac disease.
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Okay, so you are biopsy positive for celiac disease. Most with DH also have gut manifestation of celiac disease but a small percentage don't. Have you ever tried a general immuno suppressant like prednisone to see if it pushes down those tTG-IGA numbers?
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Lupus and celiac disease are both autoimmune conditions and when you have one autoimmune condition you tend to develop others over time. Why are you opposed to taking medications?
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Could this be a legitimate case of refractory celiac disease? gffoodie, I understand you to say that you have never had any celiac symptoms apart from DH. Is this correct? Have you ever had an endoscopy/biopsy?
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Looks like all your antibody scores have been decreasing except the tTG-IGA and it has actually increased from the date of the original testing. Indeed, that is very odd given the fact that you seem to be diligent about eating gluten-free.
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@gffoodie, welcome to the forum! Could you include the reference ranges for each test used by the lab or labs doing the analysis? There are not industry standards for these things so raw numbers without reference ranges are not very helpful. You will likely have to repost the numbers to do so as there is a very short time window to edit posts already made...
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There are a number of blood antibody tests that can be run that are designed to detect celiac disease: The most popular one doctors run is the tTG-IGA but that is not the only IGA-based test that can be run and there are other tests that are not IGA-based. Total IGA is not a test for celiac disease per se but a measure of the collection of of various...
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Welcome to the forum, @badastronaut! You say you were tested for celiac disease twice? Do you know what test or tests were run? Do you know if one of the tests was total IGA? Do you have access to the test records and can you post them along with reference ranges? For negative vs. positive. By any chance when the blood was drawn for the tests were you...
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Welcome to the forum, @LabLynnie! I too am a celiac migraine sufferer so I feel you pain. I have tracked this on a spread sheet for my physician and have found that I suffer headaches/migraines one out of every four days. I rate them as small, medium and large. You did not say what kind of Rx you are taking but for an analgesic I use sumatriptan (aka...
