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trents

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Everything posted by trents

  1. trents
    What symptoms were you experiencing pre diagnosis and have these symptoms abated since going gluten free? I'm wondering if you should look into the AIP diet. Gluten may not be the only offender your body is dealing with and there may be other autoimmune processes at work with other food triggers.
  2. trents
    Welcome to the forum, @Katanya! You can reach out to another forum member through the personal messaging tool. Just click on the envelope tool in the upper right corner of the page.
  3. trents
    Welcome to the forum, @TinaV! Even thought the labs are still elevated, do they show lower numbers than before going gluten free? How long have you been gluten free?
  4. trents
    Yes, with the amount of gluten you are eating daily it would not surprise me that your will have positive test results after 7 weeks. The Mayo Clinic time line calls for the daily consumption of gluten in the amount equivalent to two slices of wheat bread (either whole wheat or white) for 6-8 weeks), though that standard has recently been called into question...
  5. trents
    You can purchase wheat free/gluten free cornbread mix (I use one by Krusteaz) but most traditional cornbread mixes do contain wheat flour.
  6. trents
    Welcome to the forum, @PA Painter! Unfortunately, once you have been into the gluten free diet for awhile as you have, all testing for celiac disease will be invalidated. The only other thing you could do would be to get a genetic test done to see if you have one or more of the genes that determine potential for developing celiac disease. But with your cluster...
  7. trents
    Heather Fisher, you need to get DGP-IGA tests and DGP-IGG blood tests done since your total IGA is low. Or, go straight to the endoscopy/biopsy to check for damage to the small bowel villous lining.
  8. trents
    Do you mean you didn't actually have a UTI but the bloating in your gut was putting pressure on your bladder?
  9. trents
    Personally, when I have eaten products with monk fruit in them they have given me gas. But they usually had other ingredients, including some of the above mentioned sugar alcohols, that could have also caused that effect.
  10. trents
    Welcome to the forum, @Rana Moazzam! Can you share with us what the range used by the lab for negative vs. positive is? Different labs use different scales. There is no industry standard so a score without a scale isn't telling us much.
  11. trents
    Hi, Chris. We do see this sometimes.
  12. trents
    I'm not clear on what it is you want to know about monkfruit. What specifically is your concern or concerns about monkfruit? There doesn't seem to be any health risks associated with pure monkfruit sweetener but it may be hard to find and expensive. It may also be why it is combine with erythritol. https://www.healthline.com/health/food-nutrition...
  13. trents
    Erythritol (and possibly other sugar alcohols) have recently been linked to increase risk of heart attack and stroke: https://newsroom.clevelandclinic.org/2023/02/27/cleveland-clinic-study-finds-common-artificial-sweetener-linked-to-higher-rates-of-heart-attack-and-stroke/ Erythritol is different than other sugar alcohols in that 90% of it is absorbed...
  14. trents
    Have you tried wearing nitril gloves while making gluten-containing dishes for this person?
  15. trents
    It is also possible your son has NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms with celiac disease but does not damage the villous lining of the small bowel as does celiac disease. NCGS is 10x more common than celiac disease but there is no definitive test for it at the present time. Celiac disease must first be ruled out. The...
  16. trents
    Did you mistype? We are used to seeing DGP-IGA and DGP-IGG instead of "DMG-". The two most targeted tests you had run for celiac disease are the tTG-IGA and the EMA. The other two are not as specific for celiac disease. The tTG-IGA is the most popular blood antibody test run by physicians for celiac disease. It combines good sensitivity with good specificity...
  17. trents
    Who is this consultant person? Is this a physician assistant of some kind? I'm confused about your posting of the tTG-IGA test results. So, anything under 19.9CU is considered normal or negative and your son's score was below that at 13.3? Yet in your first post you indicated his "TTG was elevated". When you say "elevated" do you mean by that it was...
  18. trents
    Once you begin eating gluten free, antibody numbers begin to decline and so that would sabotage testing. Unfortunately, many have made that mistake. And they were not warned about it by their doctors. The amount of ignorance in the medical community, and even the indifference, with regard to gluten disorders, is disturbing. It is slowly improving, however...
  19. trents
    Your symptoms are consistent with celiac disease but the testing you had done by your primary care doc was not as helpful as it might have been. The good news is that the GI doc will likely do more targeted testing for celiac disease. It will be very important for you to eat plenty of wheat products between now and when you see the GI doc. He/she will likely...
  20. trents
    Welcome to the forum @Jessica J! The Endomysial IGA is the centerpiece of the testing you had done and was negative. It is the most specific test available for celiac disease but may not be the most sensitive test that can be run for celiac disease. The IGA is probably what we normally refer to as "total IGA" and is not a celiac antibody test per...
  21. trents
    Welcome to the forum @ShortsGirl! People just have a hard time believing that something touted as being healthy ("whole grains" you know) and is the world over depicted as the "staff of life," as being bad for you. You might find this hard to believe but this is an attitude that still persists even with some physicians who see celiac disease as the latest...
  22. trents
    Welcome, @CatherineWang!
  23. trents
    So, DGP-IGA is postitive at 130, DGP-IGG is negative at <10 and tTG-IGA is positive at 13.3. Now, can you give us the same test results from October so we can compare numbers?
  24. trents
    You do not give before COVID and after COVID numbers to compare. Is what you posted from October or after COVID?
  25. trents
    Then it seems reasonable to me to assume your recent elevated numbers were caused by COVID. But I would certainly have them checked again within a few months. Having said that, can you be more specific about which antibody numbers were elevated? There are a number of antibody tests that can be run to detect celiac disease. Some are more specific to celiac...
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