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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Kikkoman does offer some gluten free soy sauce products. We use them a home.
  2. trents
    I would like to try it before I pass judgment. If it is an improvement in taste and texture of present non wheat facsimile bread products and proves to be safe as well as competitively priced then I say let's go for it.
  3. trents
    But wouldn't you want to use it at home?
  4. trents
    Gini1, It takes at least 6 weeks of consuming say, the gluten equivalent of 6 slices of wheat flour bread daily to be confident of creating enough inflammatory antibodies to give valid testing. Eating a bunch of gluten containing food the day before isn't going to cut it. It takes a while for the antibody count to build up in the blood to a sufficient level...
  5. trents
    The celiacs who cheat on their gluten free diet are generally those who do not experience the violent reactions that you do. There is a huge range of sensitivity among celiacs. Some are "silent" and experience no immediate reaction at all, even though long term they are slowly damaging their gut.
  6. trents
    Like knitty kitty, I also wonder if you were restricting gluten intake before the antibody blood tests.
  7. trents
    To the B-complex I would add sublingual B12. You needn't worry about toxicity with B vitamin supplements because they are water soluble and any excess will be peed out. B12 is critical to proper iron absorption. And D3 is like a master vitamin in the body.
  8. trents
    I note also that POTS can result from serious infections and is connected with autoimmune conditions such as celiac disease: https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots Did the POTS precede COVID?
  9. trents
    Elevated DGP and IGG are often the only indicators of potential celiac disease we see when people are on a low gluten diet or have been tested weeks or months after commencing a gluten free diet. But the wild card here may be the long COVID. One thing for sure is that I would put her on a high potency B-complex vitamin and a good amount of D3. Make sure...
  10. trents
    But you could say the same about innumerable other food ingredients. Just because certain individuals react to a non-gluten, non-wheat ingredient food additive doesn't mean it should be banned from gluten free foods for everybody else.
  11. trents
    You may be experiencing gluten withdrawal. It is a well-known fact that gluten has addictive qualities similar to opioids and some people have pronounced withdrawal symptoms when going gluten free. You may also be suffering from nutritional deficiencies as when you remove wheat flour products you remove a significant source of vitamins from your diet. Wheat...
  12. trents
    Yes, it is possible but not probable that it could mean that.
  13. trents
    IGE levels have to do with allergic reactions. Celiac disease connects with an entirely different immune system pathway and is an autoimmune condition, not an allergy. A person can have an allergy to wheat but not have celiac disease and they can also have celiac disease and not be allergic to wheat.
  14. trents
    Welcome to the forum, @Jjk1992! Did your decision to try going gluten free preceded the celiac blood antibody testing or come after it? If before, you probably sabotaged the test results. Not sure why your doctor would say there isn't much research supporting the condition known as gluten sensitivity. Gluten sensitivity, or NCGS (Non Celiac Gluten...
  15. trents
    A false positive is possible but the EGA is not as sensitive a test as the tTG-IGA. It is normal with celiac disease to have some positive and some negative blood antibody test scores. And it is possible that you will show negative on the biopsy despite some positive antibody scores. Depends on a lot of things, one being how long since onset. A negative biopsy...
  16. trents
    Thank you @Arimas2510, and welcome to the forum family!
  17. trents
    Are his other liver enzymes such as ALT and AST within normal range? Bilirubin?
  18. trents
    Welcome to the forum, @Jenn D! Elevated liver enzymes was the driver that led to my celiac diagnosis over 20 years ago. In my case, the liver enzymes returned to normal levels within a few months after going gluten free. Now to be fair, it wasn't my alk phos that was high like in your son's case but both the ALT and AST were mildly elevated for about...
  19. trents
    Welcome to the forum, @Kara Anne! Although weight loss with celiac disease is more common than weight gain and is considered a classic symptom, it is well-known and established that some do gain weight with the onset of celiac disease. I was one of those. But I gained even more weight after diagnosis and going gluten free. But by then, I was well into...
  20. trents
    Why do you feel such a strong need to get tested? Doesn't your experience and your family history tell you what you need to know. Stop torturing yourself and get serious about eating gluten free!
  21. trents
    Welcome to the forum, @PA Painter! Unfortunately, once you have been into the gluten free diet for awhile as you have, all testing for celiac disease will be invalidated. The only other thing you could do would be to get a genetic test done to see if you have one or more of the genes that determine potential for developing celiac disease. But with your cluster...
  22. trents
    Yes, it is certainly possible that you have transitioned from NCGS (Non Celiac Gluten Sensitivity) to celiac disease. Some experts feel NCGS can be a precursor to celiac disease. I think it would be valuable for you to have celiac antibody testing redone even though you believe you are eating a low gluten diet. You may be getting more gluten than you realize...
  23. trents
    What symptoms were you experiencing pre diagnosis and have these symptoms abated since going gluten free? I'm wondering if you should look into the AIP diet. Gluten may not be the only offender your body is dealing with and there may be other autoimmune processes at work with other food triggers.
  24. trents
    Welcome to the forum, @Katanya! You can reach out to another forum member through the personal messaging tool. Just click on the envelope tool in the upper right corner of the page.
  25. trents
    Welcome to the forum, @TinaV! Even thought the labs are still elevated, do they show lower numbers than before going gluten free? How long have you been gluten free?
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