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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Download a free program called Irfanview. Use the resampling tool to reduce the number of pixels in the picture.
  2. trents
    I just wanted to add that another way of saying much of what I said in my previous post is that it is important to take control of the situation rather than letting it control you. Let go of the elements you can't control but cease control of the ones you can. Don't fear what others will think about you. You need to do what you need to do to protect your...
  3. trents
    Welcome to the forum community, @jessiemariecar! Your angst is a familiar struggle to many in this online community and in the celiac/gluten sensitive community as a whole. So, the first thing I want you to know is that you are not alone. Let me offer some suggestions that will not totally eliminate all risks. Nor will they eliminate all social...
  4. trents
    Celiac disease damages the lining of the small bowel . . . the part of the intestines immediately below the outlet of the stomach. You describe your problems as being in the "upper stomach". To me, your issues seem to fit better with GERD or a hiatal hernia or perhaps an ulcer. Has anyone done an upper GI scoping on you recently?
  5. trents
    Welcome to the forum, @HayleyC123! There is a very short time window for attaching photos. This serves the purpose of thwarting scammers. So, that should probably be the first thing you do instead of entering the text of your message. Open a new post window and try again. You should see a paperclip icon on the lower left corner of the new post window...
  6. trents
    One elevated celiac "marker" can indeed mean something! We call them antibody tests, by the way. But it is also important to know which one it was that was elevated because some are more specific to celiac disease than others and also to know how high the score was on that marker. So, can you give more information please. Which antibody test was high? What...
  7. trents
    Some celiacs claim that they can eat sourdough bread without problems. Others cannot. There is not a scientific consensus behind the sourdough idea yet but we do know the sourdough biochemical process does some altering of the gluten protein. I would be skeptical of that being a go to source for carbs. The thoroughness of the protein alteration may vary tremendously...
  8. trents
    Yes. And the gluten challenge protocol has of late been revised to reflect the need for more intense exposure to gluten during the challenge period because medical professionals have come to realize the former protocol was to lax and failing to reliably produce positive test results in those who actually proved to have celiac disease. The thinking of late...
  9. trents
    There is a question in my mind if you were ever consuming enough gluten to render valid test results.
  10. trents
    Welcome to the forum, @marjoryrw1! Glad to hear of your success with the gluten free diet. One small correction to something you said. Celiac disease is synonymous with gluten intolerance. Gluten sensitivity or NCGS (Non Celiac Gluten Sensitivity) is the other gluten disorder with similar symptoms to celiac disease but it does not damage the lining of the...
  11. trents
    Sounds like it could be dermatitis herpetiformis. Celiac disease can be confirmed when there is dermatitis herpetiformis by skin biopsy during and outbreak. But it can be difficult to schedule a dermatology appointment on short notice and even more difficult to find a derm doc who knows how to properly do the biopsy. One thing you might consider is getting...
  12. trents
    No, there is no other way to get an official, definite diagnosis of celiac disease. At this point the only two diagnostic methods are blood antibody testing and and endoscopy with biopsy but both require active gluten consumption for weeks/months in order to be valid because both are looking for the inflammation and/or damage caused by gluten consumption...
  13. trents
    Welcome to the forum, @Carrie.j! Either making a list or taking pictures or both would work to track what you have tried that you like. Taking pictures of is easy these days with cell phones and then you could transfer the information to a spreadsheet. Whatever method you use would require consistency. That is the key. But I'm concerned that you...
  14. trents
    Yes, you can get gluten exposure transdermally and the symptoms and the severity you describe match what I experience when I get glutened orally. I do not react to casual gluten exposure transdermally but some celiacs do.
  15. trents
    Okay. I wasn't sure if you were misapplying the term "gluten" as some do by referring to "corn gluten" and "rice gluten".
  16. trents
    If your celiac panel was administered after you had started eating gluten free, the panel would have been invalidated. Any kind of testing for celiac disease, whether blood antibody panel or endoscopy with biopsy must be done while still actively consuming significant amounts of gluten daily for a period of weeks to months. When gluten is removed or reduced...
  17. trents
    What do you mean by "all forms of gluten"?
  18. trents
    At 7 years old I would not trust the results of the tTG-IGA test alone. The one shot of Dunkin Wakeup Wrap before the blood draw for antibody testing would have no impact on results. Perhaps explaining what the antibody testing is measuring would help you understand all this better. For a person with celiac disease, the consumption of gluten triggers...
  19. trents
    Welcome to the forum, @Mlsilva! By any chance, had your daughter already started the gluten free diet before the celiac blood antibody testing was done or was she cutting back on wheat-based foods? What is normal range for IgA used by the lab who did the analysis? Your daughter's score on that, what we call "total IGA" is 73 but you did not give...
  20. trents
    Welcome to the forum, @Soleihey! Undoubtedly, you are experiencing vitamin and mineral deficiencies. Superficial serological vitamin and mineral deficiency testing often does not tell the whole story as it only measures what's floating around in the blood, not what is actually getting into the tissues and being used by them. There are more in depth tests...
  21. trents
    Welcome to the forum, @Lenabeana! Because you do not work in the production area of our company, I do not think you have cause to worry about gluten exposure. I would not overthink this if I were you. Worst case scenario would be needing to wear a KN95 mask if there is enough suspended wheat dust in the office air to cause a reaction. Take one thing...
  22. trents
    The gluten challenge guidelines are in the process of being revised to reflect the fact that formerly they were not intense enough and too many people who actually had celiac disease were testing negative in the blood antibody stage of testing. But you will still find a lot of the older guidelines on the internet which generally advocated 1-2 pieces of wheat...
  23. trents
    "the reference range for my test was 0.0-14.9 U/ml." Which test or tests do you refer to? Your symptoms align well with celiac disease and the fact that you were eating a lower gluten diet and have low iron stores casts doubt on the validity of your antibody testing. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity) which shares...
  24. trents
    Welcome to the forum, @Sunflowers06! By any chance were you already cutting back on gluten when you had the blood draw done for celiac antibody testing? Also, a test that should have been run that wasn't is "total IGA." If total IGA is low then it will skew other IGA test down toward the negative range. I would ask for that one to be run. Are...
  25. trents
    Frankly, I don't buy one of the major assertions at the beginning of this article and that is that departing from the paleo diet is the cause of all of our modern diseases. There is no way to prove that. All we have are their bones. And ancient human lifespans were apparently very short compared to that of today.
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