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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    That's not my understanding of what is meant by cross reaction but you could be correct. At any rate, in this person's case, there seems to be doubt as to whether he is truly eating gluten free.
  2. trents
    Is he consuming dairy? About 10% of celiacs react to the protein casein in dairy like they do the protein gluten in wheat/barley/rye. The structures are very similar.
  3. trents
    Welcome to the forum, @Patsul! There is no way to gauge how long you have had celiac disease from the Marsh analysis alone. A better gauge would be the timing of the onset of symptoms. But even then, there can be a significant delay between the onset of the disease and the appearance of recognizable symptoms. Many celiacs are "silent" for years until...
  4. trents
    The particular magnesium formulation makes a huge difference. The vast majority of magnesium supplements on store shelves are magnesium oxide and it can have a very definite laxative effect because it isn't absorbed well and draws water into the colon. A much better choice is magnesium glycinate.
  5. trents
    Makes no difference whether it is whole wheat or white. Whole wheat is white bread with the chaff not removed. That's not the main gluten containing part of t he wheat seed.
  6. trents
    High liver enzymes, including alk phos, are common with celiac disease.
  7. trents
    If you get skin reactions from gluten it may not be practical for you to undergo the gluten challenge in order to get tested for celiac disease. Can you describe the appearance of your skin reactions? Is it a rash with small blisters in the bumps? Any physician can order a DNA test or you can pay to have a private company to do testing. 23 and Me is...
  8. trents
    Antibody testing is blood testing but you still have to be eating gluten for weeks ahead of time for it to be valid. The equivalent amount of gluten found in about 6 slices daily of wheat flour bread for at least two weeks. All celiac disease testing, whether involves checking in some way for inflammation and/or the damage caused by it to the small bowel...
  9. trents
    The noodles in the chicken noodle soup will be a good source of gluten.
  10. trents
    Many have. It's been on the market for years. Many report good results. The manufacturer of Gliadin is one of our forum sponsors. It needs to be understood that the product is intended to protect against minor exposures to gluten such as you would experience with cross contamination in a restaurant. It will not be effective if you throw caution to the wind...
  11. trents
    The "gluten challenge" guidelines have recently been under revision to advocate for more intense exposure to gluten leading up to the either the blood antibody testing or the endoscopy/biopsy. I would recommend 6 slices of wheat flour bread daily (or the gluten equivalent) for at least two weeks. It is now felt that earlier gluten challenger guidelines were...
  12. trents
    I agree with what knitty kitty is saying. Celiac disease results in vitamin and mineral deficiencies because of the damage done to the villous lining of the small bowel.
  13. trents
    Have you been following a strict gluten free diet?
  14. trents
    Please do keep us posted.
  15. trents
    Welcome to the forum, @Lrgthrcl! Your daughter has many symptoms that point to possible celiac disease. You mention that her "ttg levels are normal." Which ttg do you refer to? ttg-iga? ttg-igg? You also mention that her "ig levels are low." Do you mean igg? I am adding an link giving an overview of celiac disease blood antibody testing: Terminology...
  16. trents
    Keep us posted when you find out more or if things change. Hope you feel better soon.
  17. trents
    Yes, but if it makes you feel worse, no need to start that early. If it doesn't then go ahead. We have no idea at this point if gluten is even an issue with you.
  18. trents
    Start loading up on gluten several weeks before the gastroenterologist appointment. He/she will likely start with blood antibody testing and if that is positive he/she may order an upper GI scoping with a biopsy.
  19. trents
    Absorption for newly diagnosed celiacs is compromised but not totally absent. Iron supplements are absorbed better in an acidic environment so take vitamin c along with the iron. Try oral iron first and see if you respond. If not, then you can look at infusion. Iron assimilation can be a complex thing dependent on several factors. I would also take some high...
  20. trents
    The same could be said about many diseases. The immune system is incredibly complex.
  21. trents
    Beverage, about 10% of celiacs react to the protein in oats, avenin, the same as they do wheat gluten. It may not be that gluten cross contamination is your issue with oats but cross reaction with avenin.
  22. trents
    Also, testing for celiac disease is invalidated if you have already placed yourself on a gluten free diet.
  23. trents
    What is the Prilosec supposed to do for the dermatitis herpetiformis? Prilosec is a GERD med.
  24. trents
    Welcome to the forum, @emilyyy! Countless contributors to this forum have found themselves in the same conundrum as you. But I think you have your answer. Your greater well-being since instituting a gluten free diet is not a placebo effect. However, it seems to be true that some people do need an official diagnosis to help them stay on the gluten...
  25. trents
    This may be helpful in understanding what tests are run for celiac diagnosis and which are the most reliable. I should also add that many people are not warned by their physicians that they should not begin the gluten free diet until all testing is complete. Doing so likely sabotages the results and creates false negatives.
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