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trents

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Everything posted by trents

  1. trents
    javadesigner, I must admit, I have had my doubts about whether or not a person can really be "glutened" transdermally. However, we have reports on this forum from people who also claim they get a celiac reaction from just walking down the bread isle of the supermarket and smelling the aroma of fresh-baked bread. What would be your thoughts on that? Is this...
  2. trents
    Thanks for the additional info. In answer to your original question, yes, it is certainly possible that your daughter has celiac disease with only the one positive test. In fact, seldom do we see all the test lights lit up. The DGP-IGA and DGP-IGG tests can be especially helpful with young children since their immune systems are immature and they often don...
  3. trents
    What you describe sounds like it could be a neurological effect caused by a vitamin deficiency. Vitamin and mineral deficiencies typically accompany celiac disease because of the damage it does to the villous lining of the small bowel. This is the area of the intestinal track where all of our nutrition is absorbed and the constant inflammation over time in...
  4. trents
    First, how old is your daughter? Second, when the blood draw was done for testing, was she still eating plenty gluten? Third, the issue isn't that the DGP test is less sensitive but that it is less specific for celiac disease. And was this the DGP-IGA test or the DGP-IGG test? Fourth, what are her symptoms.
  5. trents
    How long have you had her on a gluten free diet? Believe me, I understand that you do not want to torture your daughter by keeping her on gluten but testing is a waste of time if she has been on a gluten free diet for any length of time. The blood tests are checking for antibodies produced by the inflammatory reaction to gluten in the gut experienced...
  6. trents
    Unfortunately, if she was already eating gluten free when these blood tests were taken the results would not be accurate unless it was within days (as opposed to weeks) of beginning the gluten-free diet. However, the IGA is a little elevated. Is that tTG-IGA or is it total IGA? If it is tTG-IGA it would suggest celiac disease. We need more specific information...
  7. trents
    The DGP-IGP is a secondary test used for detecting celiac disease and is not as reliable as a diagnostic tool as the tTG-IGA and the EMA. But it is still used and is still valuable, especially in pediatric cases or situations where other factors such as low total IGA, anemia, diabetes or having already begun limiting gluten intake are at play to cause false...
  8. trents
    The author states that glutamic acid is made from wheat. It can be but it can be made from many things. It is naturally found in many foods. And I am not at all sure that it is capable of causing a celiac reaction, even if made from wheat since in producing it from wheat the gluten is subject to hydrolysis which would alter it.
  9. trents
    Welcome to the forum, @Jane Phillips! Though gluten (a protein found only in wheat, barley and rye) is the kingpin food ingredient that must be avoided in celiac disease, many celiacs find there are other foods they do not tolerate well. Common among them are dairy, oats, soy and eggs. Some of these additional sensitivities often disappear in time as...
  10. trents
    Welcome to the forum community, @Aya77! First, be aware that just because you order a burger wrapped in lettuce at McDonalds doesn't mean you got no gluten because you avoided the wheat bun. You see, they cooked it on the same grill that they cooked breaded patty things and handled it with the same utensils such that it got cross contaminated. And the...
  11. trents
    It typically takes two years or longer for the gut to experience complete healing and regain its efficiency in nutrient absorption. So, you would do well to supplement with gluten free B-complex and magnesium glycinate.
  12. trents
    I wonder if you are cross reacting to the protein avenin in oats or casein in dairy.
  13. trents
    "The last time I had a reaction and tested positive like this, it was because I ate a salad that some couscous or bulgur fell into. It was just a couple of balls of it. That’s how sensitive I am." One isolated episode of getting glutened would not produce positive celiac antibodies. It takes weeks of steady exposure to get antibodies up to levels where t...
  14. trents
    Yes, thiamine is B1. Common blood tests are not always helpful in pinpointing vitamin deficiencies as they only measure the amounts floating around in the blood which is the transport system. They do not measure the uptake into cells and tissues. But there are other tests that do that and symptoms are also a good measure.
  15. trents
    Welcome to the forum, @Denise I! Gluten is a specific protein found only in three grains: wheat, barley and rye. Some people who are gluten intolerant may also be soy intolerant. There is also the problem that many "seed" products and other foods get cross-contaminated with gluten by coming into contact with wheat/barley/rye in production, handling and...
  16. trents
    Realize that nuts and a lot of other foods can be cross-contaminated with gluten. If you are either gluten intolerant or gluten sensitive you need to work at eliminating major and minor sources of gluten. A classic example of cross contamination would be dried lentils. Testing by celiac watchdog groups has shown that packages of dried lentils contain up to...
  17. trents
    Lactose is the sugar component of milk. It may be the protein component, casein, that is causing the problem. It can mimic gluten for some celiacs. At the end of the day, the antidote for both celiac disease and NCGS is the same, total avoidance of gluten and possibly some other cross reacting foods.
  18. trents
    Have you been tested for celiac disease per se? It is not an allergy. It is an autoimmune disorder triggered by the consumption of gluten. Allergy testing cannot be used to diagnose celiac disease. There are specific antibody tests used to diagnose celiac disease.
  19. trents
    Is she still consuming dairy and oats? The proteins in these two foods closely resemble gluten and can cause celiac reactions in a minority of those with celiac disease. It is also possible that your daughter has NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but for which there is no test. 10x more common...
  20. trents
    Dextrose, maltodextrin and glucose syrup will not impact ttg-iga levels. Dairy and oats (even gluten-free oats) might as their proteins are very similar to gluten and know cross reactors. Including this also as a primer for spotting unexpected hidden sources of gluten, some of which are outside the category of food. https://www.celiac.com/celiac-disease...
  21. trents
    Are you still consuming dairy and oats, even gluten free oats? Those two foods contains proteins similar enough to gluten to cause celiac reactions in a certain percentage of celiacs. If you have dermatitis herpetiformis you also want to be on a low iodine diet.
  22. trents
    I'm not sure that it would necessarily be true that people with NCGS do not have celiac genes. After all, some experts believe that NCGS can be a precursor to celiac disease. What we can say is that converse is more or less true. That is, people who do not have celiac genes cannot develop celiac disease or at least are highly unlikely to from what we know...
  23. trents
    Rachel SA, the term "gluten intolerance" is generally used in the context of celiac disease. The term "gluten sensitivity" is generally used in the context of NCGS (Non Celiac Gluten Sensitivity).
  24. trents
    Which IGA test did he order? There is more than one. The tTG-IGA is the most popular among physicians but it is a good idea to also order a test for total IGA. If total IGA is low it can skew individual IGA celiac antibody tests down toward the negative range. IGE tests are for allergies. Celiac disease is not an allergy, it is an autoimmune disorder triggered...
  25. trents
    It must have hydrocortisone or some other topical anesthetic in it.
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