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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Rhowarth! Is your inability to be consistent with gluten free eating by choice or by circumstance/accident?
  2. trents
    Welcome to the forum, @Ekaj! What is the reason for your interest in celiac disease and gluten sensitivity if you yourself do not suffer from a gluten-related disorder. Do you have a friend or family member who has a gluten disorder that you are trying to accommodate or protect?
  3. trents
    I get bad headaches/migraines about 1 out of every 4 days. I track it with a spread sheet. I take a high potency B-complex daily and 400 mg of mag glycinate daily as well. Fortunately, sumatriptan works well for me as an analgesic. Nothing else will touch the pain. Not advil, not tylenol. Not even percoset.
  4. trents
    Yes, he could be. These are decisions he will have to make for himself. He might trial a period of more intense isolation to see if his symptoms improve and go from there.
  5. trents
    Welcome to the forum, @EdenK! Shared cooking equipment and preparation surfaces that have porous surfaces or that are easily scratched are the biggest concern. Things lined with ceramic or glass like crock pots and instant pots shouldn't be a problem as long as they are washed thoroughly between uses. You should probably have your own measuring spoons...
  6. trents
    I can't give you a specific time frame but what I can tell you is that once you become truly consistent in your gluten free diet you will soon lose whatever tolerance you may have had to gluten when you were still consuming it, even if irregularly. When I say "irregularly" I am not meaning the two or three times a year that it might happen accidentally to...
  7. trents
    Welcome to the forum, @OhDeer! It might surprise you to know that many celiacs are asymptomatic. We call them "silent" celaics. I was one of them, essentially. It usually is due to what stage of damage there is to the small bowel villous lining. It is also common, as you learn more about the wide range of symptoms associated with celiac disease, to look...
  8. trents
    Concerning time between bowel movements, your current diet is probably pretty low in fiber. Grains supply a significant percentage of fiber in most people's diets.
  9. trents
    The blood work results you describe combined with the symptoms you list could point to either celiac disease or NCGS (Non Celiac Gluten Sensitivity) or a transition from NCGS to celiac disease. The two share many of the same symptoms and some experts feel that NCGS can be a precursor to celiac disease. The blood work results you describe and the symptoms...
  10. trents
    Elevated liver enzymes and anemia are consistent with celiac disease rather than gluten sensitivity (aka, NCGS or Non Celiac Gltuen Sensitivity). You are in that Catch 22 situation where you are afraid to continue eating gluten because of the violent illness it sometimes produces but you know you most do that to render valid testing for celiac disease...
  11. trents
    You seem to have considered all the viable options. How can we help you? It would seem to me your next logical step would be to get serious about going totally gluten free for several months and see if your symptoms improve significantly.
  12. trents
    Not sure where you live but in the UK 10x normal limit would qualify you for a celiac diagnosis without an endsocopy/biopsy. Your ttg antibody level isn't nearly that high but it isn't borderline either. It is unlikely that this elevated ttg is caused by something besides celiac disease as the tTG-IgA is very specific for celiac disease. Although the endomysial...
  13. trents
    Welcome to the forum, @awright24! You left out one important piece of data. What was the reference point used for negative vs. positive for the ttg? You state the test score but not the scale used by the lab. You may not know this but there is no industry standard. Different labs use different scales. We assume from what the tenor of your post that this...
  14. trents
    Welcome to the forum, @Hotpotrae! Sounds like your blistery bumps could be DH and many of your other symptoms are classic for celiac disease. Just be aware that if you go in for formal testing for celiac disease then you must have been eating significant amounts of gluten for (equivalent of 3-4 pieces of wheat bread daily) for several weeks in order...
  15. trents
    Welcome to the forum, @JBeth! Have you been officially diagnosed with either celiac disease or NCGS (Non Celaic Gluten Sensitivity)?
  16. trents
    I agree with Scott. You have your answer from the fact that your symptoms all scream of celiac disease as well as the one positive blood test that was done while consuming enough gluten to produce a valid test result, combined with the fact that your symptoms dramatically improved when you stopped eating gluten! If it looks like a duck and quacks like a duck...
  17. trents
    Welcome to the forum, @Ckluwho! Other autoimmune bowel diseases such as IBS and Crohn's are more common, statistically, in the celiac population than in the general population but it's not that they develop from celiac disease. It's just that autoimmune diseases tend to cluster. That is, when you develop one autoimmune disease you are likely to develop...
  18. trents
    To echo what kk said, you should not put her on a gluten free diet until all testing for celiac disease is complete. Usually, there are two stages of testing, the first being blood antibody screening and the second being an endoscopy with biopsy of the small bowel lining to check for damage to the villi. The endoscopy/biopsy is the gold standard test and...
  19. trents
    I agree with Scott. The proof is in the pudding. Commit yourself to a truly gluten free diet for a few months and see if your symptoms improve. Whether or you have celiac disease or NCGS, the antidote is the same, total abstinence from gluten for life. If the symptoms don't improve on a strict gluten free diet, bark up another tree.
  20. trents
    No benefit unless you are in the UK or some country where they offer government stipends and healthcare follow-up for those officially diagnosed with celiac disease. Also, some people psychologically need the official diagnosis to stay on track with their gluten free diet and not rationalize it all away. As far as finding a dermatologist who knows what...
  21. trents
    Welcome to the forum, @Samantha TH! There is no test for celiac disease that the GI doc can run if you have been on a gluten free diet. For any celiac disease test to be valid you would have to go back on regular amounts of gluten for a period of weeks. But I think you have the answer that you need by the improvement of your symptoms since removing gluten...
  22. trents
    "blitzed"?
  23. trents
    Welcome to the forum, @1268918! I doubt such a small amount of gluten as contained in the communion wafer would produce enough celiac antibodies in the blood to produce a positive reaction in a blood test. However, celiac disease is the only known cause of DH. So, if you could get a skin biopsy done in conjunction with an outbreak that might work. But you...
  24. trents
    @Yvonne Pettersen, welcome to the forum! Do you have either celiac disease or NCGS? you don't say.
  25. trents
    Amy's dinners are loaded with sodium as well.
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