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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
  2. trents
    There are a number of blood antibody tests that can be run that are designed to detect celiac disease: The most popular one doctors run is the tTG-IGA but that is not the only IGA-based test that can be run and there are other tests that are not IGA-based. Total IGA is not a test for celiac disease per se but a measure of the collection of of various...
  3. trents
    Welcome to the forum, @badastronaut! You say you were tested for celiac disease twice? Do you know what test or tests were run? Do you know if one of the tests was total IGA? Do you have access to the test records and can you post them along with reference ranges? For negative vs. positive. By any chance when the blood was drawn for the tests were you...
  4. trents
    Welcome to the forum, @LabLynnie! I too am a celiac migraine sufferer so I feel you pain. I have tracked this on a spread sheet for my physician and have found that I suffer headaches/migraines one out of every four days. I rate them as small, medium and large. You did not say what kind of Rx you are taking but for an analgesic I use sumatriptan (aka...
  5. trents
    Those numbers are meaningless to us without reference rangers since different labs use different reference ranges. There aren't industry standards. You need to understand how celiac disease works and why going gluten free invalidates testing. With celiac disease the immune system falsely interprets gluten as a threat when it comes in contact with the...
  6. trents
    Just a little terminology adjustment is in order here. Dermatitis herpetiformis, or DH, is associated with celiac disease and not gluten sensitivity. NCGS (Non Celiac Gluten Sensitivity) is not the same as celiac disease. Celiac disease is often referred to as gluten intolerance. Celiac disease is the only know cause for DH. A certain percentage of celiacs...
  7. trents
    Why does your dietician wish you to have a definite diagnosis? Since you have adopted the gluten free diet, have your symptoms improved? I so, don't you have your answer? The tTG-IGA blood antibody test is very sensitive and very specific for celiac disease. The chances of a positive test result being caused by something besides celiac disease are...
  8. trents
    My wife and I used to buy Safeway's rotisserie chicken at their deli and it was gluten free. Then later on we looked at the label and they had changed the formulation and it was no longer gluten free. Lessoned learned. Once gluten free not necessarily always will be gluten free. Labels still must be checked. Take nothing for granted. "poly" means "many...
  9. trents
    Those apps can be helpful in a broad sense but are only as good as the data base is kept current. Typically, they still do not cover all the bases in the sense of being able to report traces of gluten that might be found incidentally in ingredients such as spices and colorings that might be manufactured on equipment that is not dedicated to gluten free production...
  10. trents
    They are polysaccharides and hard to break down.
  11. trents
    You could also have NCGS (Non Celiac Gluten Sensitivity) instead of celiac disease. They share many of the same symptoms and NCGS is 10x more common. No test for it yet.
  12. trents
    It is unfortunate that you had begun a gluten-free diet one month prior to the blood draw for testing. That undoubtedly repressed the ttg-iga numbers which is the primary test used to detect celiac disease. The anti-gliadin igg test is a second tier test and not considered as reliable as the ttg-iga but it is helpful in situations where time has elapsed between...
  13. trents
    Berkan, what is the reference range for normal? We cannot comment until we have a scale. Different labs use different scales. There is no industry standard.
  14. trents
    Lawster, there is also the possibility you may have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease and is 10x more common but for which there is not yet a test. Celiac disease must first be ruled out.
  15. trents
    gums are not necessarily a problem from a gluten standpoint but many celiacs don't tolerate them well for other reasons. Personally, if I ate something with chicory root fiber and Monk fruit you wouldn't want to be around me. Those are famous "toot" ingredients.
  16. trents
    Ironically, gastric reflux is often caused by hypoacidity in the stomach rather than hyperacidity. PPI's reduce acidity or, to put it another way, PPI's increase the PH of the stomach which interferes with digestion and nutrient absorption and increases the risk of GI track infections. Personally, I have suffered with reflux for years, along with a hiatal...
  17. trents
    Just make sure all your vitamin and mineral supplements are gluten free. Costco is a great place to get many of them. Their Nature Made and Kirkland Signature brands are generally gluten free and will say so on the bottle/package if they are. Celiac disease affects the small bowel so the upper GI is what you want. However, large bowel and colon maladies...
  18. trents
    Ask the GI doc how many samples he/she will take from the small bowel. Several samples should be taken from both the duodenum and the duodenum bulb because damage can be patchy. However, with your long history of symptoms and high antibody levels I doubt the damage will be obscure. Your total IGA is quite low at ,<10. Low total IGA usually suppresses the...
  19. trents
    She could also have NCGS (Non Celiac Gluten Sensitivity) for which there is not yet a test but which shares many of the same symptoms with celiac disease and is 10x more common. If you take her in again for celiac disease testing make sure she has been consuming liberal amounts of gluten for several weeks beforehand. Also, insist that the doctors order not...
  20. trents
    Amazon.ca has Bob's gluten-free cornmeal version: https://www.amazon.ca/Bobs-Red-Mill-Gluten-Cornbread/dp/B094KRXKCB/ref=sr_1_2?crid=3NRKET5Y36QQF&keywords=gluten+free+cornmeal&qid=1704171052&sprefix=gluten+free+cornmeal%2Caps%2C139&sr=8-2
  21. trents
    Celiac disease is an autoimmune disorder that damages the villous lining of the small bowel, where essentially all nutrient absorption occurs from the food we eat. This damage compromises the nutrient absorption efficiency of the small bowel and typically creates vitamin and mineral deficiencies in those who go undiagnosed for years. One way to offset that...
  22. trents
    Good story, @DebJ14, and encourging! Thanks for sharing.
  23. trents
    I wonder if your headaches are caused by vitamin and/or mineral deficiencies. When you remove wheat products from your diet you remove a significant source of vitamins and minerals because wheat products are fortified. gluten-free facsimile flours are not. Try taking a high potency B-complex, sublingual B12, 5000 IU of D3, magnesium glycinate and zinc. This...
  24. trents
    https://www.livestrong.com/article/445850-what-is-bad-about-mono-diglycerides/ "Wheat dextrin used as dietary fiber may cause slight stomach pain, bloating or gas. While wheat dextrin is considered a gluten-free starch by the FDA's definition, small amounts of wheat may be digested or the product may contain some residual gluten. People with celiac disease...
  25. trents
    Welcome to the forum, MelissaLMandrick! Various neurological problems are known to be associated with celiac disease, including headaches/migraines and ataxia. Are you consistent in your efforts to eat gluten free? Are you taking any vitamin and mineral supplements. Vitamin and mineral supplements could be a great deal of help to you in finding relief...
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