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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Hold on there, Newhike! The blood antibody tests are normally the first stage of testing for celiac disease. The second stage of testing is an endoscopy of the small bowel to check for damage to the small bowel villous lining that is typically caused by celiac disease. Don't start eating gluten free yet as you will likely compromise the results of the biopsy...
  2. trents
    Welcome to the forum, @KSMarcuson! Nearly all of your symptoms scream of celiac disease and the nutritional deficiencies that accrue from long-term undiagnosed celiac disease. I hope you are not still taking a PPI. They raise gut pH which has a negative effect on nutrient absorption which a celiac whose gut is already damaged doesn't need. It's a double...
  3. trents
    Welcome to the forum, @mollianderson224! A week off of gluten is not ideal before the testing but it may not invalidate the tests. Kind of depends on the levels of the antibodies to begin with. If they are borderline then it could create a false negative. Do you know what test or test were ordered by the doctor? Young children's immune systems are immature...
  4. trents
    I am a celiac and have used Delsym, both grape and orange, numerous times over the years and have not been aware of any gluten-related reactions. However, I am not a particularly sensitive celiac.
  5. trents
    I note that OP has had a barium swallow done but she doesn't mention an endoscopy. That certainly would be a wise thing to have done.
  6. trents
    Like knitty kitty, I am concerned about this as well. The ENT was probably trying to heal what he thought was a wound in your esophagus from acid reflux but taking proton pump inhibitors and/or acid blockers long term can cause other damage to the body because they dramatically raise gut pH which inhibits digestion of food and absorption of nutrients. Are...
  7. trents
    @HayleighNoWhey, this sounds to me like some kind of neurological problem. May we ask your age? Please refresh our memories as to your experience with gluten and celiac disease or NCGS. How long do you estimate you were suffering from a gluten disorder before being diagnosed or before going gluten free and how long have you been gluten free?
  8. trents
    I did not intend to communicate that but it is true that the celiac.com community is focused on non allergic gluten disorders. A high percentage of our forum participants have not yet been diagnosed with celiac disease but suspect they might have it (or NCGS) and come here for advice and direction to explore that possibility. If an allergy to gluten containing...
  9. trents
    Then it may just be an allergy to wheat or the gluten in wheat. Celiac disease is actually an autoimmune disorder, not an allergy. It uses and entirely different immune system pathway than do allergies.
  10. trents
    Welcome to the forum, @PinaKnudson! The gluten rash is known as dermatitis herpetiformis (DH). It is the epidermal (skin) expression of celiac disease. Does your rash have blisters or pustules in the bumps? That is a defining characteristic of DH. It's too bad you did not have celiac disease testing done before you embarked on your gluten free diet....
  11. trents
    I'm concerned that she might need some mental health counseling. It sounds like it might be a bigger problem than a phobia of gluten.
  12. trents
    Gluten itself is a protein. It is the principle protein found in wheat and is also found to a lesser degree in barley and rye. After rereading your first post, I tend to agree with Scott Adams. Your girlfriend's reactions sound much more like anaphylaxis than either a celiac or NCGS reaction. Does she have other symptoms when eating wheat products in...
  13. trents
    Welcome to the forum, Steve P! People with celiac disease vary tremendously with regard to how sensitive they are to small amounts of gluten exposure. Yes, some do react to transdermal exposure. Some even have reactions to the smell of freshly baked wheat bread while walking down the supermarket bread isle. Unfortunately, testing for celiac disease...
  14. trents
    The three gluten containing grains are wheat, barley and rye. Celiac disease is not an allergy to gluten. It is an autoimmune reaction that is triggered by the ingestion of gluten and utilizes an entirely different immune system pathway than do allergies. However, it is certainly possible to also have an allergy to wheat, barely or rye along with celiac disease...
  15. trents
    What are your son's other symptoms? Did they also improve when he cut back on gluten? If so, you may already have a partial answer as improvement in symptoms would strongly indicate he has either celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no testing available for the latter but it shares many of the same symptoms with celiac disease...
  16. trents
    @Isabella19, welcome to the forum! Yes, the fact that your son has already cut way back on his gluten will likely sabotage any testing for celiac disease. However, since he has no other apparent symptoms, or at least you didn't mention them, a gluten challenge to prepare for the blood antibody testing is a reasonable option. Guidelines for a pretest...
  17. trents
    kk, I think the blood test results are in the OP's first post.
  18. trents
    Do you have any more detailed information than the bloodwork being "abnormal". Was this bloodwork specifically for celiac antibody testing?
  19. trents
    Welcome to the forum, @Panagiotis! One suggestion for grammar and that is to remove the definite article ("the") before "C.D.". It's more natural in English to say, "I have C.D."
  20. trents
    Welcome to the forum @NovemberNewbie2023! I have not heard or read that Hashimotos can cause a false positive in celiac disease antibody testing. But I am aware that Hashimotos is more common in he celiac population than in the general population. Also, the tTG-IGA is highly specific for celiac disease and it is highly unlikely that something else is...
  21. trents
    Welcome to the forum, CookiesGem! Genetic testing cannot be used to establish celiac disease. It can be used to establish that you have the potential for celiac disease. About 40% of the population carries one or more of the genes tied to celiac disease but only about 1% of the population actually develops celiac disease. It takes a combination of genetic...
  22. trents
    Doesn't sound like your diet has sufficient variety to provide the vitamins and minerals your body needs.
  23. trents
    Welcome to the forum, Erakhan! With only three months of experience in the gluten free journey it is likely you are still getting gluten from somewhere. Studies have shown that most people who believe they are eating gluten free are only eating lower gluten. Gluten is found in many commercially prepared food products that you would never expect to find...
  24. trents
    Is there any particular reason you need an "official diagnosis"? If you lived in the UK there would be a reason since you would be eligible for government stipends to buy gluten free food and additional follow-up care. But I think you know what you need to know already since you have the tTG-IGA elevated scores and your symptoms improved significantly when...
  25. trents
    You are not alone in your struggle: https://vimeo.com/486284734 I think it is an imperative that you stand strong and not allow others to brow beat you and make you feel that you are raining on family gatherings. Remind yourself that their attitudes are their problem and not yours. I would also suggest you make up some bulleted fliers with concise...
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