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trents

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Everything posted by trents

  1. trents
    How about peanut butter? Some of the mainline brands are labeled gluten free. Skippy is I think.
  2. trents
    Healthy fats can be found in things like nuts and seeds. Eggs too. Fats are calorie dense and are burned up as quickly as carbs. They have staying power. https://www.glutenfreesociety.org/gluten-withdrawal/
  3. trents
    Three things I would have you think about: 1. Is the hunger tied to nutritional deficiency? Are you taking any potent vitamin and mineral supplements? 2. Gluten behaves in some ways like an opiate in our bodies. When it is removed, there are often withdrawal effects. 3. Try adding more fats to your diet. All the things you mention in your post...
  4. trents
    Plumbago, are you suggesting that both fasting and oral glucose tolerance tests be done?
  5. trents
    @KSMarcuson, many celaics do not have diarrhea as a symptom. I was one of them, essentially. We call them "silent" celaics. Unfortunately, many doctors do not consider a diagnosis of celiac disease in the absence of diarrhea because they are operating on outdated information. This is especially true for those who have been out of med school for a long time...
  6. trents
    Hold on there, Newhike! The blood antibody tests are normally the first stage of testing for celiac disease. The second stage of testing is an endoscopy of the small bowel to check for damage to the small bowel villous lining that is typically caused by celiac disease. Don't start eating gluten free yet as you will likely compromise the results of the biopsy...
  7. trents
    Welcome to the forum, @KSMarcuson! Nearly all of your symptoms scream of celiac disease and the nutritional deficiencies that accrue from long-term undiagnosed celiac disease. I hope you are not still taking a PPI. They raise gut pH which has a negative effect on nutrient absorption which a celiac whose gut is already damaged doesn't need. It's a double...
  8. trents
    Welcome to the forum, @mollianderson224! A week off of gluten is not ideal before the testing but it may not invalidate the tests. Kind of depends on the levels of the antibodies to begin with. If they are borderline then it could create a false negative. Do you know what test or test were ordered by the doctor? Young children's immune systems are immature...
  9. trents
    I am a celiac and have used Delsym, both grape and orange, numerous times over the years and have not been aware of any gluten-related reactions. However, I am not a particularly sensitive celiac.
  10. trents
    I note that OP has had a barium swallow done but she doesn't mention an endoscopy. That certainly would be a wise thing to have done.
  11. trents
    Like knitty kitty, I am concerned about this as well. The ENT was probably trying to heal what he thought was a wound in your esophagus from acid reflux but taking proton pump inhibitors and/or acid blockers long term can cause other damage to the body because they dramatically raise gut pH which inhibits digestion of food and absorption of nutrients. Are...
  12. trents
    @HayleighNoWhey, this sounds to me like some kind of neurological problem. May we ask your age? Please refresh our memories as to your experience with gluten and celiac disease or NCGS. How long do you estimate you were suffering from a gluten disorder before being diagnosed or before going gluten free and how long have you been gluten free?
  13. trents
    I did not intend to communicate that but it is true that the celiac.com community is focused on non allergic gluten disorders. A high percentage of our forum participants have not yet been diagnosed with celiac disease but suspect they might have it (or NCGS) and come here for advice and direction to explore that possibility. If an allergy to gluten containing...
  14. trents
    Then it may just be an allergy to wheat or the gluten in wheat. Celiac disease is actually an autoimmune disorder, not an allergy. It uses and entirely different immune system pathway than do allergies.
  15. trents
    Welcome to the forum, @PinaKnudson! The gluten rash is known as dermatitis herpetiformis (DH). It is the epidermal (skin) expression of celiac disease. Does your rash have blisters or pustules in the bumps? That is a defining characteristic of DH. It's too bad you did not have celiac disease testing done before you embarked on your gluten free diet....
  16. trents
    I'm concerned that she might need some mental health counseling. It sounds like it might be a bigger problem than a phobia of gluten.
  17. trents
    Gluten itself is a protein. It is the principle protein found in wheat and is also found to a lesser degree in barley and rye. After rereading your first post, I tend to agree with Scott Adams. Your girlfriend's reactions sound much more like anaphylaxis than either a celiac or NCGS reaction. Does she have other symptoms when eating wheat products in...
  18. trents
    Welcome to the forum, Steve P! People with celiac disease vary tremendously with regard to how sensitive they are to small amounts of gluten exposure. Yes, some do react to transdermal exposure. Some even have reactions to the smell of freshly baked wheat bread while walking down the supermarket bread isle. Unfortunately, testing for celiac disease...
  19. trents
    The three gluten containing grains are wheat, barley and rye. Celiac disease is not an allergy to gluten. It is an autoimmune reaction that is triggered by the ingestion of gluten and utilizes an entirely different immune system pathway than do allergies. However, it is certainly possible to also have an allergy to wheat, barely or rye along with celiac disease...
  20. trents
    What are your son's other symptoms? Did they also improve when he cut back on gluten? If so, you may already have a partial answer as improvement in symptoms would strongly indicate he has either celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no testing available for the latter but it shares many of the same symptoms with celiac disease...
  21. trents
    @Isabella19, welcome to the forum! Yes, the fact that your son has already cut way back on his gluten will likely sabotage any testing for celiac disease. However, since he has no other apparent symptoms, or at least you didn't mention them, a gluten challenge to prepare for the blood antibody testing is a reasonable option. Guidelines for a pretest...
  22. trents
    kk, I think the blood test results are in the OP's first post.
  23. trents
    Do you have any more detailed information than the bloodwork being "abnormal". Was this bloodwork specifically for celiac antibody testing?
  24. trents
    Welcome to the forum, @Panagiotis! One suggestion for grammar and that is to remove the definite article ("the") before "C.D.". It's more natural in English to say, "I have C.D."
  25. trents
    Welcome to the forum @NovemberNewbie2023! I have not heard or read that Hashimotos can cause a false positive in celiac disease antibody testing. But I am aware that Hashimotos is more common in he celiac population than in the general population. Also, the tTG-IGA is highly specific for celiac disease and it is highly unlikely that something else is...
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