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trents

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Everything posted by trents

  1. trents
    Have you had total IGA level tested? If total IGA is low, it will often cause false negatives in other celiac antibody tests such as the tTG-IGA.
  2. trents
    Welcome to the forum, Stumplet! Just curious. Why do you want just an EMA? Have you had other celiac antibody testing done already? EMA is very specific for celiac disease but less sensitive than, say, the tTG-IGA.
  3. trents
    The headaches are possibly related to gluten withdrawal. If so, you are three weeks out now and that should subside soon. In general, headaches/migraines are more common in the celiac population than in the general population. I personally suffer from them and have for 20 years beginning soon after diagnosis and I'm careful about avoiding gluten. So, the...
  4. trents
    Yes, look into magnesium glycinate. It is absorbed much better than magnesium oxide and this also makes it much less likely to cause diarrhea.
  5. trents
    Welcome to the forum, Juliehemann! First, let me correct something you said that is a common misconception. The blood tests don't measure gluten levels. They measure antibody levels in reaction to the ingestion of gluten over time. Gluten causes inflammation in the villous lining of the small bowel for those with celiac disease. The reason is because...
  6. trents
    I would also add that the genetic mapping for celiac disease is still somewhat if a work in progress.
  7. trents
    Thanks for the update. It's good to know what you don't have some times.
  8. trents
    Welcome to the forum, Abdel Rahman Al-Shami! You would need to contact the company and ask the source of some things in the recipe: Emulsifiers Of Plant Origin (e471 • E472e), Agent (e551), and Acidity Regulator (e500). Those are the only ingredients that, to me, look like they could be wheat derivatives. Does the use of this product cause you d...
  9. trents
    Unless you are willing to undergo a "gluten challenge," any retest of blood antibodies is likely to yield marginal results as it already has. The Mayo Clinic guidelines for a pretest gluten challenge is the daily consumption of at least two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw. If you really...
  10. trents
    So it sounds like you are eating a "low gluten" diet but are not gluten free. Yes, you can still be experiencing damage to the small bowel villi even with low levels of gluten intake. Lack of symptoms is not necessarily synonymous with no damage.
  11. trents
    If you have MCAS/histamine intolerance then the problem may be that it is fermented.
  12. trents
    But are quail eggs available commercially? I assume they are where you live but I've never heard of anyone raising quale commercially for egg production.
  13. trents
    My wife is currently struggling with that same issue after three rounds of antibiotics for another problem but she is not a celiac. Have you encountered creams or meds that do have gluten in them? My wife usually has to resort to the prescription med fluconazole to conquer her yeast infections. It's a pill. I don't know that it has gluten but we've never...
  14. trents
    Please get back to us when you know the biopsy results.
  15. trents
    Statistically speaking, there is a small possibility that the antibody blood tests were falsely positive or that the positive is due to something other than celiac disease. That is why they do the endoscopy/biopsy. It is something to check the antibody scores against. Sometimes the bloods are positive and the biopsy negative and even visa versa but this is...
  16. trents
    Quail eggs? I've never heard of anyone eating them. How many does it take to make a meal?
  17. trents
    You say test levels were on the low side. Were any of the tests in the positive range, even low positive? Do you have a record of what tests were done and their scores? We would also need the reference ranges for negative vs. positive.
  18. trents
    The reason they run a number of antibody tests is because not everybody's immune system responds exactly the same way to a given disease. This true for many diseases. The most common single test run to check for celiac disease is the tTG-IGA. It catches most people who have celiac disease but not all. That's why they sometimes run other antibody tests. One...
  19. trents
    Most with DH also have gut involvement but there is a small percentage who only have the skin rash.
  20. trents
    Wheatwacked's suggestion is valid. No other known cause for DH besides celiac disease. And he is correct in that many or most derm doctors do not know how to properly biopsy for DH. Find one that does or at least take along instructions for him/her.
  21. trents
    Many of us will tell you that many or most primary care physicians are relatively uninformed when it comes to advising their patients about gluten disorders. I wish I had a buck for every person joining this forum whose physician did not warn them to hold off on the gluten free diet until all testing is complete. So, they start the gluten free diet ahead...
  22. trents
    About every 6 months I would say until you start to see them normalize.
  23. trents
    Welcome to the forum, kenedalbnrot! The pic in the lower left corner of the group definitely looks like it could be DH because of the blisters/pustules present. You should not have started the gluten-free diet until all testing is over. You should be consuming at least 2 slices of wheat bread daily, or the gluten equivalent, for 6-8 weeks before...
  24. trents
    It often causes pain or discomfort in different areas of the abdomen. Are you practicing a strict gluten free diet?
  25. trents
    Most likely.
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