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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The weak positive DGP could mean celiac disease but there are other possible causes. It is so close to normal that if you were retested it might be negative on any given day. Nonetheless, I would as for a total IGA test to be ordered.
  2. trents
    So, you've had: tTG-IGA - normal DGP-IGA - weak positive DGP-IGg - negative I would suggest you ask your physician to order a total IGA test. If total IGA is low, it can push individual IGA scores down toward negative. The next round of diagnostic work would be an endoscopy with biopsy of the small bowel villous lining. Typically...
  3. trents
    Which IGA measure do you refer to that has the score of 21? There is more than one IGA test that can be run when checking for celiac disease. Can you repost the results exactly as they appear on the report, along with ranges? Here is a primer that outlines the tests that can be run when checking for celiac disease: Was there a result for Total Serum...
  4. trents
    It's pretty rare, actually. Most cases of RCD turn out to actually be incomplete elimination of gluten. Are you on any vitamin and mineral supplements to correct nutritional deficenies? How many calories are you consuming daily on the average? Do you rely heavily on commercially prepared gluten foods? They are largely devoid of nutrition because there is...
  5. trents
    Both are autoimmune conditions and it is a well known fact that AI diseases tend to cluster. Once you get one, you can expect others to come along. Concerning the weight issue, have you had a follow-up biopsy to check the condition of the small bowel villi? There is something called refractory celiac disease in which villous damage continues even after withdrawing...
  6. trents
    One test that should have been run and was not is the "total IGA" which is not per se a celiac antibody test but if it is low it will likely drag down the scores of the celiac antibody tests toward the negative range. There is also the possibility that you have NCGS (Non Celiac Gluten Sensitivity) for which there is no test but there is much symptom...
  7. trents
    I am aware that in many European countries the comma is used like we would use a decimal point in the USA in medicine and science. So, I guess the easiest thing to do is just to ask you if any of those tests were positive. Or do you know? Has there been any input from the physician since the tests were ordered?
  8. trents
    Make sure those Rice Krispy treats are made from a rice cereal that does not have "malt extract" or "malt flavoring" in the ingredients.
  9. trents
    Those test ranges and results are presented in a different format than we are used to seeing. How can a test result be less than 0? Is the comma in each couplet equivalent to a decimal point? So like <0,30 is the same as less than 0.3?
  10. trents
    Welcome to the forum, Kaiser 613! You mention that you have started the gluten free diet. How long have you been on it and do you see any improvement in your symptoms? I would make you aware that being on a gluten free diet will invalidate any testing for celiac disease should your financial circumstances allow you to pursue that in the future....
  11. trents
    Welcome to the forum, PhoMu! With those high numbers in the celiac antibody tests there is not much question that you do have celiac disease and your conclusion that you may be a silent celiac certainly makes sense if you have not GI symptoms. However, that does not equate to having no villous atrophy in the small bowel lining. Your GI doc may want to...
  12. trents
    Allegria, in order to make any sense of your tTG-IGA and your DPG IGA scores we would need both the raw score (what you seem to have provided) and the ranges for both (i.e., what is considered negative vs. positive). There is no industry standard for these. Each lab uses their own ranges. That your total IGA is high is insignificant. If it were low, it would...
  13. trents
    Many people do not have much of a delayed response. If I get a good dose of gluten I get violently ill with intense cramping, repeated emesis followed by diarrhea all starting within two hours of consumption.
  14. trents
    Allegria, Cristiana gives good advice. Some experts believe that NCGS (Non Celiac Gluten Sensitivity) can be a precursor to celiac disease and, as Cristiana said, there are overlapping symptoms between the two. It takes both the genes and some triggering stress event, such as a viral infection, to turn the genes on in order for celiac disease to...
  15. trents
    Welcome to the forum, Mac63! The scale that you supplied and the result . . . for which celiac antibody test is that for? Do you have the name of the test? Some antibody tests for celiac disease are more specific than others. More than than likely, it was the tTG-IGA test as that is the most common one physicians order initially.
  16. trents
    I believe the instructions given serve to prevent you from eating things that might get caught in your diverticuli such a nuts and whole grains. I think you would be okay as long as the grains are in flour form. That is my take on the intent of the instructions but I am not a doctor.
  17. trents
    Welcome to the forum, nayr! The EMA is the most specific of all the antibody tests for celiac disease but is less sensitive than the tTG-IGA. So, when tTG-IgA is negative and EMA is positive, that reinforces a celiac disease diagnosis. It is not abnormal at all to have some celiac antibody tests to be negative while others are positive. This is more...
  18. trents
    Eating truly gluten free is harder than most people imagine. It's easy to adopt a lower gluten diet where major sources are eliminated. It's much harder to avoid hidden sources of gluten and CC (cross contamination). Perhaps this will help you get off on a fast track:
  19. trents
    Exactly, my point! Physicians need to be made more aware of the range of presenting symptoms that can be experienced within the celiac population and not just focus on enteric symptoms. There's a real need for education in this area.
  20. trents
    louai1920, When you become a doctor, perhaps you can use your status and your professional connections to promote a greater awareness of celiac disease in your country. Even in the USA, there is significant "unawareness" about gluten-related disorders within the medical community at large. It's just on most general practitioners' radar and so there is...
  21. trents
    Dole's bananas are no different than any other brand. I suspect your reaction has more to do with how ripe the banana is and the level of histamines in your body at the time of consumption. You really should look into MCAS and histamine intolerance.
  22. trents
    This is a controversial issue and in part it depends on how you define "cross reaction". We know, for instance, that the protein, casein, in dairy can blunt small bowel villi in some people just as gluten does.
  23. trents
    Welcome to the forum, Kasini! The only thing I would suggest would be to consider getting a genetic test done to see if you carry one or more of the genes associated with celiac disease. About 40% of the general population will carry one or more of the genes but only about 1% will develop active celiac disease. So, having the genes doesn't equate to having...
  24. trents
    My physician put me on 25mg daily of nortriptyline and it seems to have dramatically cut down the frequency of my migraines. I have had 2-3 migraines in about a three month period as opposed to several a week before. I am still with holding final judgement, however, because mine are somewhat seasonal.
  25. trents
    Welcome to the forum, louai1920! Thanks for sharing your dilemma. One question I have. When you are at home, is your family sensitive to your need to eat gluten free?
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