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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Steve! May we ask your age? First, the Deamidated Gliadin Antibody was weakly positive. But it still can indicate celiac disease. But in the absence of any damage to the small bowel villous lining from the biopsy, I'm like you. I don't have a lot of confidence in that as a diagnosis. However, I don't think one week on...
  2. trents
    Looks like kk edited out that statement.
  3. trents
    There are several possibilities. 1. You transitioned rather recently from NCGS to Celiac Disease and there had not been enough time for damage to be done to the small bowel villous lining. 2. The damage to the villous lining was patch and the samples were taken represented areas of the small bowel lining that were still healthy. This is not uncommon...
  4. trents
    Find out from the endodontist's office where they purchase their materials for this procedure and then call that company to find out their manufacturing source. Then contact the manufacturing source and ask the gluten question. I would not imagine, however, that something as hard and durable as a crown would contain gluten. I would be more worried about adhesives...
  5. trents
    Welcome to the forum, Martin! In addition to checking the gluten free box on the online booking page, did you make a notation on the online form or mention after you got there that you were a celiac? I"m just wondering how they discerned you had celiac vs. NCGS (Non Celiac Gluten Sensitivity). Did they differentiate between the two? Most establishments...
  6. trents
    "Another misconception found in the survey was that 43% of Americans thought that attending social events and parties would be difficult for individuals limited to gluten-free food." Why is this a misconception? It is difficult!
  7. trents
    Do you eat a lot of night shades (tomatoes, peppers, potatoes)? They can cause inflammation in the joints. May we ask what is your age?
  8. trents
    B-complex, D3, Magnesium citrate or Magnesium glycinate (better absorbed than Magnesium oxide which is common in stores), zinc. Make sure all are gluten free. Do you have DH (dermatitis herpetifirmis)?
  9. trents
    Welcome to the forum, MisSkky! Celiac disease causes inflammation in the small bowel lining when gluten is consumed. It is an autoimmune disorder because gluten consumption causes the body to attack its own tissues. The inflammation wears down the villi of the small bowel and this is where all of our nutrition is absorbed. The wearing down of the villi...
  10. trents
    Yes, it looks like celiac disease to me with that high tTG-IGA and GI symptoms, family history of autoimmune disorders as well as improvement in symptoms with gluten free diet.
  11. trents
    It is possible that your celiac onset was only a few months ago and could have been activated by COVID. But if you had significant vitamin and mineral deficiencies by the time of diagnosis then I would suspect you've had it longer than that. The COVID may have kicked it into a higher gear. Thyroid hormone levels are kind of like blood pressure. They...
  12. trents
    Welcome to the forum, linko! It's hard to tell much since you did not include the ranges for positive vs. negative for each test. There is no standard for these things. Each lab develops there own test parameters. Please post back and include that additional piece of information. One month back on gluten is not sufficient to return valid blood antibody...
  13. trents
    You are not the first person on this forum to report negative serum antibody levels but a positive biopsy. Having said that, it's too bad that a more complete celiac panel was not run. There are other tests that could have been done and may have produced positive values. But we are finding out more and more with time that celiac disease/NCGS (Non Celiac...
  14. trents
    Welcome to the forum, Michele Ann! Can you post the complete names of the tests that were run, their scores and the reference ranges used for negative vs. positive? There are several tests that can be run in both the IgA group and the IgG group. By some chance were you already on a gluten free diet when the blood draws were taken? There are...
  15. trents
    I'm no expert but those pics look like DH to me. There are obvious blisters/pustules in the bumps. If you have DH, you have celiac disease, not NCGS. Celiac disease is the only known cause for DH. If you do have DH, I think that would trump all other tests when it comes to deciding between celiac and NCGS. That's my take on it anyway.
  16. trents
    "The patient showed no gastrointestinal symptoms, and had no family history of gastroenterological diseases." Highlights the reality of "silent" celiac disease which most doctors don't have a concept for but is very common in the celiac population.
  17. trents
    But you also need to reckon with the fact that once you have been on a gluten free diet for a significant time, you will likely lose whatever tolerance you had when consuming gluten regularly. Thus, your symptoms may be more intense when you go back on gluten prior to the biopsy. Before my diagnosis and starting the gluten free diet I could eat gluten and...
  18. trents
    Or at least, if NCGS is genetic we don't know what the genes are yet.
  19. trents
    Sounds reasonable given that the biopsy is so far away in the future.
  20. trents
    Emmy208, you typed, "Another interesting fact—my aunt and cousins also have celiac-like symptoms including a rash that goes away when they eat gluten." Did you mean to type the rash goes away when they stop eating gluten?
  21. trents
    Well, it does seem that your total serum IGA is low and that can generate negatives in the individual IGA scores, such as the IGA-tTG. There are other serum antibody tests that can be run for detecting celiac disease that were not run. The NIH is pretty inflexible in what tests they will pay for and the testing protocol they deploy is pretty minimal. Here...
  22. trents
    Welcome to the forum, noem11! IgA 0.57g/l (normal range 0.80 - 2.8) - Is this the score for the IGA-tTG or the total serum IGA? It looks more like the IGA-tTG. Total serum IGA normal range is usually a much larger number, like over a hundred. But the lab may be using a different test protocol than I'm used to seeing? You seem to have left out one or...
  23. trents
    Elevated liver enzymes are not uncommon in the celiac population. The last figure I have seen is 18% but that is now a rather dated study.
  24. trents
    Welcome to the forum, Parish! Elevated liver enzymes for at least 13 years was what finally led to my celiac diagnosis back around 2000. My GP had no clue that celiac disease could cause elevated liver enzymes. I finally booked an appointment with a GI doc and he tested me right away for celiac disease. After going gluten free for a few months my liver...
  25. trents
    Welcome to the forum, noem11! IgA 0.57g/l (normal range 0.80 - 2.8) - Is this the score for the IGA-tTG or the total serum IGA? It looks more like the IGA-tTG. Total serum IGA normal range is usually a much larger number, like over a hundred. But the lab may be using a different test protocol than I'm used to seeing? You seem to have left out one or...
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