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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Going gluten-free for a period of weeks or months before getting tested, either the antibody blood tests or an endoscopy with biopsy will sabotage the testing.
  2. trents
    Welcome to the forum! We routinely recommend and adult multivitamin, B-complex, sublingual B12, D3 (5000 to 10,000 IU daily), magnesium glycinate or magnesium citrate (not magnesium oxide), and zinc. The brand isn't necessarily important as long as you confirm they are gluten free. A lot of my vitamins I get from Costco. Their Kirkland Signature and...
  3. trents
    Yes. Having only a positive in the tTG-IGG test can still mean celiac disease. But there is a somewhat greater chance it could be something else.
  4. trents

    Withdrawal

    trents commented on shawn s's blog entry in Shawn s

    It can get so bad that many people can't stick it out. It would have been better to post in a relevant section of the forum rather than create a blog entry. You will get more exposure to your question in the general forum.
  5. trents
    Two weeks back on gluten would not likely raise antibody levels to give positives. The Mayo Clinic recommends the daily consumption of two slices of wheat bread (or the gluten equivalent) for at least 6 weeks before blood testing for celiac disease.
  6. trents
    Histamine intolerance and MCAS go hand in hand. If you have histamine intolerance, you will have MCAS and vice versa. I'm not saying they are exactly the same thing but I'm saying you really can't separate the two. Another way putting it is that MCAS is the root cause of histamine intolerance. If you want information on diagnosing MCAS just google it. Or...
  7. trents
    The distinguishing characteristic of DH is that the bumps have little blisters or pustules in them. When a biopsy is done for DH they should sample the tissue between the bumps and not on a bump. Many dermatologists don't know to do this correctly.
  8. trents
    For those celiacs who have the DH rash (Dermatitis Herpetiformis) we do know that they have celiac antibodies in the skin that will show up when a skin biopsy is done. In the absence of DH I would not expect a punch biopsy to reveal any connection to celiac disease. Again, I'm out of my league here so I could be totally wrong.
  9. trents
    Welcome to the forum, countrylass! Have you been diagnosed with celiac disease? I assume you have or are investigating this possibility or thinking their might be a connection between celiac disease and the symptoms you describe.
  10. trents
    I think you are confusing tTG-IGG with tTG-IGA. A very high tTG-IGA (10x normal or greater) has been used in the UK and other European countries as justification alone for declaring a celiac diagnosis and forgoing an endoscopy/biopsy. The tTG-IGA is the most popular test run by doctors because it combines good specificity with good sensitivity. The tTG-IGG...
  11. trents
    Wouldn't surprise me since we know that celiac disease itself must have a stress trigger to turn on the genes associated with it. We know that autoimmune disorders seem to cluster and that the genes for some of them are often located in the same area of the genome where the celaic disease genes are. I guess I see this as an extension of the process that started...
  12. trents
    "Other causes of this condition include a metabolic disorder called Fabry disease, immune disorders such as celiac disease or Sjogren syndrome, an inflammatory condition called sarcoidosis, and human immunodeficiency virus (HIV) infection." https://en.wikipedia.org/wiki/Small_fiber_peripheral_neuropathy Even when being faithful in our gluten free diet...
  13. trents
    Okay, I got lost in the lengthy thread and hadn't realized you probably posted that info earlier. If he had a positive biopsy that settles it.
  14. trents
    Gina, you might want to do some research on histamine intolerance/MCAS (Mast Cell Activation Syndrome) as it is very common in the celiac community.
  15. trents
    Of course. And I suspected you did not mean to imply otherwise. I just am not sure how much effect this would actually have on lower the antibody test numbers. With all the years I've participated in this forum, I'm thinking I would have run across that antibody suppression effect mentioned in a post by now if it was significant. Someone needs to do a study...
  16. trents
    MominWA, How confident are you in his celiac diagnosis? I mean your son's antibody score was very marginal and he did not have a biopsy to confirm the diagnosis did he? On top of that, going gluten free did not seem to bring improvement in his symptoms.
  17. trents
    That suggests to me that histamine therapy is an antidote for celiac disease. If the immune cells don't get called in there is no inflammation and no damage to the villi.
  18. trents
    Not having a background in the disciplines related to the cited research limited my understanding of some of the material but my overall impression was that none of it directly applies to the question at hand. And the second link doesn't even address antihistamine use.
  19. trents
    My bad. I didn't read your post about this carefully enough. I assumed you were supplementing with liquid B6 to increase his levels. But the problem I see now is that they were much higher than normal. So, why then were you supplementing with liquid B6 in the first place? Help me understand. So, I gather you suspect the elevated B6 levels were due to the...
  20. trents
    Even so, OP is not giving anywhere near that amount is she? She states she was giving him half the adult dose.
  21. trents
    @knitty kitty, can you link a specific study that ties antihistamine therapy with lower celiac antibody test scores? This is new information to me. @cluelesslycontaminated, if you ever have celiac antibody testing done again, make sure they include "total serum IGA" in the panel. When total serum IGA is low it will drive down other IGA scores and can...
  22. trents
    We actually know more about the immune system pathway of celiac disease than we do for NCGS. One thing you might consider if you are interested in exploring the matter further is to have genetic testing done to see if you have either of the two or three genes tied to the development of celiac disease (I think a third one has recently been discovered). About...
  23. trents
    The numbers do not suggest celiac disease but the weak positive Antigliadin IgG does suggest gluten sensitivity or NCGS. Although the two gluten disorders have crossover in their symptoms, the difference is that with celiac disease there is an autoimmune reaction when gluten is ingested that causes inflammation in the villous lining of the small bowel. Over...
  24. trents
    Welcome to the forum, Cluelesslycontaminated! First of all, whoever told you to cut back on gluten but that you don't have to eliminate it is full of bologna! If you have a problem with gluten, which means you either have celiac disease (gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity), you need to eliminate it from your life and not just...
  25. trents
    Gina, You might just give Bob's Red Mill a call and ask them if the gluten-free products you are interested in are in fact processed in the same facility or on the same equipment as nuts and your other allergen concerns. Might be a good idea to fact check it instead of relying on forum heresay.
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