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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    su20299, are you taking any vitamin and mineral supplements to correct the deficiencies that are inevitable with long-term undiagnosed celiac disease? How's your appetite? How often would you estimate CC (cross contamination) is occurring? If often enough, it will prevent healing of the gut.
  2. trents
    Welcome to the forum, Sobiha! You cannot be tested for celiac disease after having started the gluten free diet. If you want to be tested you must go back to eating regular amounts of gluten for two months (two pieces of wheat bread daily or the gluten equivalent). This is called a "gluten challenge". For many of us it took 10+ years to get a correct...
  3. trents
    Yes, a DH biopsy should be done between the bumps, not on them. The original dermatologist seems to acknowledge that she did it incorrectly the first time and knows better now so I wouldn't hesitate to use her again. Sorry, I can't help you with the genetic testing question but the explanation given by the report seems pretty straight forward. When you...
  4. trents
    No. They only ran two tests for celiac disease and one for total serum IGA (Immuglobulin A). If total serum IGA is low it can cause false negatives in the actual celiac IGA tests. Your total serum IGA is not low. However, there are a number of other tests that can be run to detect celiac disease. Here is an overview: No DGP and IGG tests were run.
  5. trents
    Most prepared gluten free baked foods contain rice flour but also other ingredients to create more bread-like cohesiveness and texture that might be upsetting you, like xanthan gum for instance.
  6. trents
    Had this issue been the focus of the article it would have more relevance.
  7. trents
    It is extremely common for those with celiac disease to have one or more non-gluten food intolerances. Dairy, oats (even gluten free), and eggs. But it can be almost anything. This tendency to develop non-gluten food intolerances is likely due to the "leaky gut" syndrome that goes hand in hand with celiac disease. In addition to food intolerances there are...
  8. trents
    I don't think it's accurate to say that the blood tests are more reliable than the biopsy. At this point in time at least, the biopsy is still considered the gold standard test, though there are some instances where it does miss the mark. In the UK and other countries, many docs will declare a celiac diagnosis without a biopsy but the tTG-IGA must be 10x...
  9. trents
    Has your husband been tested for celiac genes?
  10. trents
    Leaky gut goes hand in hand with celiac disease. Which one is the basis for the development of the other? It's a chicken or egg question at this point. Can you post your panel results with ranges for negative and positive for each test included?
  11. trents
    When you post results, please include the ranges for negative vs. positive for each test ordered. Unless we have the ranges we can comment much because each lab uses their own test parameters. There is no industry standard for celiac antibody test ranges.
  12. trents
    I don't think there is a test for gluten levels. But there are tests for gluten induced antibody levels in the case of celiac disease.
  13. trents
  14. trents
    Have you had the ALCAT food sensitivity test done?
  15. trents
    I think lupine is a wild flower.
  16. trents
    Yes, but purchasing bread online may not give you a fresh loaf and it may be "reshaped" during shipment.
  17. trents
    Welcome to the forum, Nikibonkers! Where are you geographically? The thing about many bread products is that they can be marketed only regionally and not available in other regions or countries. My favorite brand of gluten free bread is Franz, which also comes in several varieties, but it's not available in the eastern states of the U.S. I'm in Washington...
  18. trents
    If you are male there is also the possibility of frequent urination being caused by an enlarged prostate which restricts flow and makes it difficult to empty the bladder completely.
  19. trents
    Welcome to the forum, NFecht24! Have you been checked for diabetes? I am no aware of a connection between gluten-free eating (or reduced gluten eating) and frequent urination. When you void, do you feel like you are getting your bladder good and empty? Are you male or female? Are you confident that your UTI is gone?
  20. trents
    As the PCP explained, even if the GI doc won't give you a diagnosis without the procedure, you're only out the cost of an office visit if you decline. Then you institute a gluten-free diet and see if your symptoms improve. Symptom improvement is really the proof of the pudding. This may be helpful when you start the gluten-free diet: Attaining to a...
  21. trents
    Welcome to the forum, Krisgideon! Your blood work definitely looks like celiac disease. Sounds to me like the doc who ordered the bloodwork is saying the GI doc may not see a need to do an endoscopy/biopsy when he/she sees your blood work scores. So, you may only be looking at an office visit, resulting in the GI doc giving you a celiac disease diagnosis...
  22. trents
    Has anyone seen these products in the wild yet?
  23. trents
    Steve, glad to hear our vitamin D level is improving. Keep taking those D3 supplements as, although 41.4 may be within normal range, it is not optimal. Shoot for 80. Don't be afraid of overdosing on D3. D3 toxicity is much less of an issue than was once thought. https://www.mayoclinicproceedings.org/article/S0025-6196(15)00244-X/pdf
  24. trents
    They remove them from the gluten free list most likely because they wanted to distance themselves from any possibility of litigation brought by some celiac who got sick after drinking a soda. A lot of companies who produce many naturally gluten free food items do this routinely so it is not necessarily evidence that something is not gluten free.
  25. trents
    Well, when you get a lot of your calories from alcohol it stands to reason vitamin deficiencies will occur. But that is probably only one factor. "Corn won't grow at all on Rocky Top Dirt's too rocky by far That's why all the folks on Rocky Top Get their corn from a jar."
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