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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    We know something about the genetic basis of celiac disease and are discovering more as time goes on. But the genes lie dormant until there is some kind of triggering stress event that turns them on, for example a viral infection. Once they are turned on they stay on. Once this has happened the immune system mistakes gluten as an invader and attacks it as...
  2. trents
    Your doctor told you that once your small intestine heals you should be able to eat gluten again? That is absolutely wrong! The intestines should heal but the autoimmune condition known as celiac disease will be with you for life! It too has a genetic base and the genes won't change. You should never go back to eating gluten.
  3. trents
    Undiagnosed celiac disease typically causes many problems. It has long fingers. And when you have one autoimmune disease you can expect to develop other autoimmune conditions. They tend to cluster, to bring their cousins along. Some things are often corrected when we go on a gluten free diet (e.g., intolerance to dairy) but other things we live on with.
  4. trents
    Most of us are struggling with more than one chronic disorder. I have GERD and celiac. After taking a PPI for many years I was finally able to wean myself off of them with some diet and lifestyle changes. I still get heartburn occasionally but I take a TUM when I do and it seems to take care of it. Struggling with migraines right now, however.
  5. trents
    Those two are the bare minimum of tests that should be run.
  6. trents
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC549312/ So, kk, is this saying that the tTG-IGG is less accurate as a predictor of celiac disease in IGA sufficient patients than it is in IGA deficient patients? This is our question since the OP is not IGA deficient, had negative tTG-IGA but positive tTG-IGG.
  7. trents
    Now that I read it again and think about it, it all depends on what is meant by ("people who don't have this condition") Is that referring to celiac disease or low total IGA? And note the words "This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition.” So, I'm guessing "this condition" refers t...
  8. trents
    Whether or not someone is IGA deficient should have no impact on the IGG test. It's simply saying that although the tTG-IGA is the better test under normal circumstances (people with normal total IGA levels) for IGA deficient people the tTG-IGG is better.
  9. trents
    This is probably a repeat post but nonetheless: tTG-IgG (tissue transglutaminase IgG) Blood Test for Celiac Disease This test measures the levels of antibodies to tissue transglutaminase, but it specifically measures IgG antibodies rather than IgA antibodies which are produced in people who eat gluten and have celiac disease. It is not as sensitive...
  10. trents
    That would be my guess. But since the AIP is a shotgun approach you can't be sure.
  11. trents
    It would be interesting to see if you stayed on the AIP diet with the exception of adding gluten back in to see what impact it would have on your TTG-IGG.
  12. trents
    The testing is not for the purpose of measuring gluten levels in the body. It is for the purpose of measuring antibody levels caused by the inflammation in the small bowel lining that gluten consumption causes in celiacs. It takes weeks or months for these antibodies to build up to detectable levels in the blood stream.
  13. trents
    Since you had already cut back on gluten you cannot trust the blood work that was done to check for it. Mayo Clinic guidelines are two slices of wheat bread or the gluten equivalent daily for 6-8 weeks leading up to the blood draw. You symptoms certainly align with celiac disease or possibly NCGS (Non Celiac Gluten sensitivity). Yes, depression and...
  14. trents
    You could also get genetically tested for having any of the genes that connect to celiac disease. 40% of the general population have one or both (there may have been another discovered more recently so there may be more than two) but only about 1% of the population actually has active celiac disease. It also takes a stress event of some kind, e.g. a viral...
  15. trents
    The GI doc's report indicated possible celiac disease even though you didn't mention to him/her that you had been gluten free because he had access to your records that did say that and because of the lymphocytes and possibly family history of celiac disease.
  16. trents
    The link about barley malt says the fermentation process breaks down the gluten into smaller particles (i.e., it becomes a different molecule) and therefore is safe but that may be begging the question. Apparently, even when gluten is altered and broken down, the immune system of some celiacs seems to recognize it as gluten. This also may explain cross reactions...
  17. trents
    Now, I am assuming you have been diagnosed with celiac disease or at least NCGS. Given that assumption, you would seem to be in that subset of people with a gluten disorder who are quite sensitive such that even traces of gluten cause a reaction. On this forum we see this with people who seem to have a celiac reaction when consuming distilled spirits and...
  18. trents
    Bear with me here. So, your talking about pre-packaged manufactured things like energy bars. I assume on the ingredient labels it gives the source of the glucose as being wheat or you have contacted the manufacturer to investigate the source? You question is an interesting one as it has a parallel in this forum community in the debate about the possibility...
  19. trents
    Welcome to the forum, petsgalore! May I ask in what context are you encountering glucose? Is this in a medical setting like what is given to counteract insulin overdoses? Glucose is the simplest of all sugars and is normally not found in high concentrations in foods. It is a metabolite of more complex sugars that are found in grains, fruit and vegetables...
  20. trents
    Your anal burning seems to be tied to the texture of your stool rather than what you are eating. I would suggest you try taking a psyllium-based fiber bulking agent like Metamucil to get more consistency in your BMs. I would also suggest you get tested for celiac disease if you have noticed you have problems after eating wheat-containing meals.
  21. trents
    Welcome to the forum, Nickyde! First of all, it sounds like you actually need to get tested specifically for celiac disease and not just a general food intolerance. There are specific antibodies produced by the damage done to the small bowel villous lining in celiac disease that cannot be detected except by tests specifically designed to detect celiac...
  22. trents
    Welcome to the forum, Irishgirl5@ First and foremost, you should not put your son on a gluten free diet until all testing is complete. Doing so beforehand will sabotage any tests for celiac disease. If you trial a gluten free diet now, he would need to go back on gluten for at least 6-8 weeks before the next blood draw. These are the guidelines of the...
  23. trents
    RDLiberty, it would be a good idea I think to look into the low histamine diet.
  24. trents
    Just some quick googling did confirm that swollen glands can be associated with autoimmune diseases and certainly, celiac disease is an autoimmune disorder. However, the only thing I could find that specifically connected lymphatic problems to celiac disease was NHL. I could be wrong but my impression is lymphoma of the small bowel rather than head or neck...
  25. trents
    It varies tremendously from person to person. Some become ill immediately while others the next day. It takes me two hours from the time I consume a significant amount of gluten. About the time it takes for my stomach to empty into my duodenum. Then I get intractable vomiting for a couple of hours and then diarrhea for a couple of hours. Before diagnosis...
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