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trents

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Everything posted by trents

  1. trents
    Welcome to the forum, toothdoc! It is best to be a 100% gluten free household for a couple of reasons. First, is the one you have already mentioned. Supportiveness. If the whole family is gluten free, your celiac member is less likely to feel deprived and the odd one out. Second, and very importantly, is that a 100% gluten free household will make cross...
  2. trents
    @Russ H, This is simply not true for many celiacs. Many of us reliably get violently ill in a short time after consuming gluten. With me, it's predictably about 2 hr. if I get a good slug of it. This is in contrast to being almost a silent celiac before diagnosis and going gluten free.
  3. trents
    I hope you will keep us posted.
  4. trents
    Yes. "Other conditions related to digital clubbing Ascariasis. A roundworm infection of your intestines. Celiac disease. An autoimmune disease that can damage your small intestine." https://my.clevelandclinic.org/health/diseases/23957-clubbed-fingers
  5. trents
    "but I don't know if that's the lack of gluten for so long and my body is just like what the heck or if it's celiac. " It's most likely both and. Forgive me for being so frank and judgmental but it seems to me you are in denial about having celiac disease and there is no point in pursuing an endoscopy and the two weeks of torture you are likely...
  6. trents
    Constipation is one of the classic symptoms of celiac disease and celiac disease is often misdiagnosed as IBS. It is also true that there is a higher incidence of IBS in the celiac population than in the general population.
  7. trents
    1. Besides wheat, barley and rye also contain gluten. Look for terms like "malt flavoring". Also watch out for this in the allergen information section of the ingredient list: "manufactured in a facility or on equipment that also processes wheat" or similar statement. There is potential for cross contamination there. 2. Absolutely not okay to eat gluten...
  8. trents
    Sobiha, Genetic testing for celiac disease has value for ruling out celiac disease, not demonstrating that you have it. About 40% of the general population has one or more of the genes associated with celiac disease but only about 1% of the general population has active celiac disease. So, most people who have the genetic potential for celiac disease...
  9. trents
    The Mayo Clinic guidelines for a pretest gluten challenge is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to blood antibody testing and the same amount for two weeks leading up to an endoscopy/biopsy. It generally takes around two years for thorough healing of the small bowel lining once a gluten...
  10. trents
    Congratulations! You apparently have been successful with your gluten free diet. Your gut has fully healed and there is no damage to see when an endoscopy is done. Do you know if biopsies were taken when the endoscopy was done? Normally, biopsies of the small bowel lining are taken and set to a lab for microscopic inspection. If damage is minimal it may not...
  11. trents
    Table salt typically has iodine in it but you can get it without iodine. A lot of seafood is high in iodine as are kelp snacks. But, yes, it should be easy to research.
  12. trents
    Welcome to the forum, Kirbyqueen! Try cutting down on your iodine intake. Some celiacs who suffer from the DH rash report that this helps a great deal. The one medication that seems to really work for the DH rash is dapsone.
  13. trents
    Do children not have a sense of smell at birth? I don't know. I'm certainly not a pediatrician.
  14. trents
    Some countries, for example, the UK, offer gluten-free food subsidies and follow-up medical care if you have an official diagnosis of celiac disease. If it applies, it is something to factor in. Otherwise, no, you don't have to submit to official testing and torture yourself by going back on gluten for 6-8 weeks of eating 2 slices of wheat bread daily or...
  15. trents
    Welcome to the forum, Heidi! One of the well known effects of untreated (by a gluten free diet) Celiac disease is neurological damage. An example is gluten-induced ataxia. Could this neurological damage also effect the sense of smell? Your post is the first one to report loss of sensory function that I can remember on this forum but it just made me think...
  16. trents
    Let me reiterate that Max should not reduce his gluten intake (wheat, barley and rye) until all testing for celiac disease is done. Withdrawal of gluten before testing will compromise the test results as it will allow inflammation of the small bowel lining to subside (if Max in fact has celiac disease) and antibodies will therefore cease to be produced. ...
  17. trents
    Welcome to the forum, Mel43. Can you provide the negative vs. positive range for the DGP-IGA? There is no industry standard and each lab uses their own ranges. The tTG-IGA test can generate a false negative if total IGA is low. I would ask your physician to run this test. It is often omitted but especially for children it should be run along with...
  18. trents
    Welcome to the forum, AnnK73! You have done your research and have come to that dead end where we usually wind up when contacting companies with the question of "Is this product gluten free?" Namely, they cannot rule out CC. This might be one of those things where you just have to experiment with different denture adhesive products until you find one...
  19. trents
    Inflammation of your facial tissue could be caused by an allergic reaction to a milk protein. But it is also possible you have developed lactose intolerance or an intolerance to the protein (casein) in dairy. These are common in the celiac population. Note that an allergy is not the same as intolerance. The knotted up tense shoulder could be a neurological...
  20. trents
    No. What I meant was that not having either HL-DQ2 and HL-DQ8 may not in fact rule out celiac disease.
  21. trents
    Welcome to the forum, Jason! "diarrhea, stomach pain mostly in my liver area, dizziness . . . nausea and fatigue" are common symptoms with celiac disease but "inflammation in my face tissue, knotted up tense shoulder . . . and insomnia" are not symptoms that I can remember being reported by other celiacs. About 20% of celiacs have elevated liver enzymes...
  22. trents
    Or, there are other genes that haven't been discovered yet. For years it was thought there were only two but I read somewhere about a year ago that medical scientists in Irsael? believe they found another.
  23. trents
    No, NCGS should not cause malabsorption. You are correct. There currently are no test for NCGS. But some gluten disorder experts believe NCGS can be a precursor to celiac disease. Seronegative celiac disease? Is that a thing? We have some reports on this form of people who, symptomatically, scream celiac disease and have other laboratory indicators such...
  24. trents
    Have you considered NCGS?
  25. trents
    IgM?
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