trents
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Latest Celiac Disease News & Research:
Everything posted by trents
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Welcome to the forum, Mads98! Could also be a cross reaction (different than cross contamination) to another food whose protein component is similar enough to gluten that it triggers the same reaction. Common cross reactors in the celiac community are oats, dairy and eggs. The transglutaminase (aka, "meat glue") in formed meat products is also a cross reactor...
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Welcome to the forum, ballerina96! We sometimes see this pattern of antibody test results for those who have already started on the gluten free diet or who just don't eat much gluten anyway. That is, elevated IGG with other antibody tests being negative. And five days of concentrated gluten intake prior to the antibody testing blood draw is not likely... -
Help with recent test results
trents replied to Ellis Aust's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Ellis Aust! Yes. If I was a betting man I'd put my money on you having celiac disease. Several of the symptoms you describe (low iron, elevated liver enzymes and Hashimotos) are associated with celiac disease rather than NCGS (Non Celiac Gluten Sensitivity). My feeling is that the reason your blood antibody levels are subclinical... -
@Teresa Dean, we want you to understand that genetic testing for celiac potential is just that. It can only establish the potential for celiac disease. About 40% of the population has one or more celiac genes but only about 1% of the population actually develops celiac disease. So, genetic testing serves the purpose of a rule out.
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If you want to ensure that you are getting 10 gm. of gluten daily, you can buy pure powdered gluten at natural food stores and then you can weigh it on a scale. Before I was diagnosed with celiac disease my wife used to buy gluten and add it to the homemade bread she made in order to make it stick together better. We now joke how she was poisoning me.
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Welcome to the forum, rmcozart22! The Mayo Clinic guidelines are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw for celiac antibody testing. Different medical entities have different guidelines so if you research this you will find different recommendations and some...
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Welcome to the forum, Teresa! What I can tell you is that the celiac population has a higher statistical chance to develop other intestinal diseases. I certainly think it would be wise to get tested for celiac disease. But for the testing to be valid you need to have been eating regular amounts of wheat for 6-8 weeks (for he blood antibody tests) and...
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Welcome to the forum, Carmen22! The two years of healing time you reference speaks of complete healing. Normally, those adhering to a strict gluten free diet start to feel much better well before then. You are only one week into it so if you are truly eating gluten free you should start to feel better soon. I, too, suffer from GERD. If at all possible...
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There is some evidence that Gilbert's can actually lower cardio vascular disease risk. Low testosterone can lead to difficulty in concentration and low energy levels. Talk to the urologist about testosterone supplementation. It can really help but it also has some risks.
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The brain fog and fatigue can be associated with the Gilbert's syndrome. "As far as getting glutened, I feel I stay pretty consistent with my diet. It seems like getting glutened for me is random. I will go for a while I do fine for a month or so and then have a bad week or two." That is way too often. My feeling is you need to double down on your efforts...
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Welcome to the forum, KWX525! When you say you have been dealing with celiac for around 2 years, do you mean it has been that amount of time since you were diagnosed or do you mean since the onset of symptoms? It is typical that the onset of the disease happens years before we get an official diagnosis. How often would you say you get "glutened...
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This was not handled well by Tim's parents IMO. They handled it in a way that was sure to generate a relational conflagration. This incident could have been a learning experience for the god father had Tim's parents kept their cool. Becoming hostile did not make Tim any safer on this occasion. This was a classic example of poor communication and the danger...
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I will attach an article which is a primer for learning to eat gluten free an not just lowering gluten consumption. It's easy to eat a lower gluten diet by cutting out the big sources of gluten but it's the hidden and unexpected sources that secretly undermine our attempt to live gluten free. Cross contamination is something that is hard to control when eating...
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Thanks for the additional information. Celiac disease is the only known cause for DH. So, if you have DH, you have celiac disease. Some celiacs have only DH with no gut involvement but most with DH have gut involvement as well. Is your only symptom the DH rash? Also know that if you are on a gluten free diet there is no point in pursuing conventional...
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Welcome to the forum, night mare! Just to be clear, when you say you have recently been diagnosed with gluten intolerance, do you mean celiac disease? There is also a gluten disorder known as NCGS (Non Celiac Gluten Sensitivity) or just gluten sensitivity for short. You have posted in the DH section. DH (Dermatitis Herpetiformis) is the skin manifestation...
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Pancreas exocrine insuficiency ( suspected )
trents replied to Liam R's topic in Related Issues & Disorders
I wonder if you are cross reacting to some other food or foods whose proteins closely resemble gluten such as oats, dairy or eggs. Also, have you looked into MCAS (Mast Cell Activation Syndrome) and histamine intolerance which are common in the celiac population? -
Pancreas exocrine insuficiency ( suspected )
trents replied to Liam R's topic in Related Issues & Disorders
Welcome to the forum, Liam! You do not say so but we assume you are making a serious attempt to eat gluten free. Since being diagnosed with celiac disease, have you had either a follow-up blood antibody test or a follow-up biopsy to confirm that healing of the small bowel villi has occurred or is occurring? Studies show that most people who believe... -
I developed RLS some years ago and was taking Ropinirole for it which mostly controlled it but it was getting slowly worse. Independent of that issue, I made a decision to discontinue the statin I was on, much to the chagrin of my physician. As soon as I stopped the statin the RLS also stopped.
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Why did you take diphenhydramine for a celiac reaction? Diphenhydramine is an antihistamine and is useful for allergic type reactions. Celiac disease is an autoimmune disorder, not an allergy to gluten or wheat. However, one can be allergic to wheat as well if they have celiac disease.
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B-complex gluten free can be had also at Costco. Most of their Kirkland Signature and Nature Made products are gluten free and it will state so in the bottle if it is. You needn't worry about overdosing on B vitamins. They are water soluble and you pee out the excess. You will likely notice your pee being a brighter yellow. Normal. All good!
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Which Vitamin B? There isn't just one. There are 12 of them. That's why we recommend a gluten free B-complex as a supplement.
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I don't know that it is more of a problem in South Africa than it is in most places in the world. Studies show that the most people who claim to be eating gluten free are actually eating lower gluten in reality because of cross contamination and the biggest culprit is eating out.
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Did they check B vitamin levels? What about D? Ditch the Magnesium oxide. It's not absorbed very well and often causes loose stools when taken in higher amounts to compensate for poor absorption. Take magnesium glycinate or magnesium citrate instead.
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Welcome to the forum, CeliacChica! Are you on any vitamin and minerals supplements to speed up recovery from the neurological damage often seen in celiac suffers those with NCGS (Non Celiac Gluten Sensitivity) as well? Long term undiagnosed/untreated (noncompliant with the gluten free diet) Celiac disease invariably results in vitamin and mineral...
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DQ2 is one of the genes that have been proven to be connected to the potential to develop celiac disease. People with the DQ2 who do develop celiac disease tend to be in the most sensitive, severe reaction to gluten group.
