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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Umm, yes, it does. From PubMed: Gliadin antibodies identify gluten-sensitive oral ulceration in the absence of villous atrophy. O'Farrelly C, O'Mahony C, Graeme-Cook F, Feighery C, McCartan BE, Weir DG. Department of Clinical Medicine, Trinity College, Dublin, Ireland. This study demonstrates gluten-sensitive recurrent oral ulceration (ROU) in...
  2. Fiddle-Faddle
    Open Original Shared Link
  3. Fiddle-Faddle
    I think you are absolutely correct. I also think that many of us (myself included) owe those of you who are extremely sensitive a HUGE thank-you. If you, ravenwoodglass, and many of the others had not posted about your experiences, I would never have known enough to go gluten-free in the first place. Because of your experiences, I didn't wait for a...
  4. Fiddle-Faddle
    Oops, you're right--it's not a precancerous condition in and of itself. "WHY IS IT IMPORTANT TO KNOW IF I HAVE BARRETT'S ESOPHAGUS? The main reason that it's useful to know whether you have Barrett's esophagus is that this is a premalignant condition, meaning that patients with Barrett's esophagus have a higher-than-average risk of getting cancer. Cancers...
  5. Fiddle-Faddle
    Is Kikkoman fermented differently than other soy sauces? It looks (from their pdf document) like their testing indicates about 100 times LESS gluten ppm than the Codex standard for gluten-free (which we all agree is too much). The other interesting thing is that it looks like they DO have the capability to test for practically zero gluten (they came...
  6. Fiddle-Faddle
    Aha! I did some detective work and found this: Open Original Shared Link Click on the above, then on the pdf link (I don't know how to copy it, or I would have copied it to this thread).
  7. Fiddle-Faddle
    I'd like to get back to the original poster's question--does the fermentation process in Kikkoman and other Asian soy sauces break down the gluten? I have also heard this through the grapevine, but have seen no research on this. Perhaps someone could contact Kikkoman to find out? Or maybe it's a celiac urban legend? However, I do have a celiac colleague...
  8. Fiddle-Faddle
    Tallforagirl, I never said that making antibodies to gluten means that you have celiac disease. Please read what you yourself quoted me as saying! I said that it means that you have a problem with gluten.
  9. Fiddle-Faddle
    From www.celiac.com: The excellent English researchers that made the discovery that they could detect the immunologic reaction to gluten inside the intestine before it was evident on blood tests or biopsies knew it was a breakthrough, testing it many times over in different ways, and further extending the clinical spectrum of gluten-induced disease to...
  10. Fiddle-Faddle
    Open Original Shared Link Andrew Wakefield was actually researching Crohn's, when he stumbled on a disturbing bit of evidence: the majority of the autistic children he was studying (ALL of whom had intestinal problems) had the MMR vaccine in the lining of their intestines, where it should not have been. The non-autistic children he was studying (the ...
  11. Fiddle-Faddle
    Many people with "just" gluten intolerance are actually in the early stage of celiac. They just don't have enough villi damage YET for a diagnosis. Others with actual celiac are not tested properly, or even with proper testing, still show up as negative. Then there are those who, according to current thought, are "only" gluten intolerant, but they...
  12. Fiddle-Faddle
    I just wanted to add that any baby with bowel/digestive issues should NOT receive vaccines until those issues are resolved. You might want to do some research: www.nvic.org, www.putchildrenfirst.org.
  13. Fiddle-Faddle
    Is there any possibility that either of you might have Celiac instead of Crohn's (rather than both, or just Crohn's)?? I ask because when I first joined this board, I lost count of the number of celiacs here who said that they had been initially diagnosed with Crohn's, and later found out that they didn't have Crohn's at all (though one had been initially...
  14. Fiddle-Faddle
    The mouthguard is similar to the mouthpiece of a snorkel, but it's a little bit bigger, so you have to open your mouth a bit wider. I understand about your gut saying to go ahead--best of luck for a smooth procedure, and I hope you get all the answers you are looking for!
  15. Fiddle-Faddle
    That was me--and I have a TERRIBLE gag reflex, but I did not want to be sedated. They sprayed my throat really well, and I pretty much warned them that I would probably gag a bit anyway (and I did). The whole thing took only 5 minutes or less. HOWEVER--I am of the opinion that, if you already have positive bloodwork for celiac, then you don't NEED a...
  16. Fiddle-Faddle
    I am blessed with a family who is very, very supportive. In addition, hubby is a chemist, so he REALLY understands the ins and outs of celiac, including the addictive aspect. Asking a celiac to live in a household containing plenty of gluteny goodies is like asking a heroin addict to live in a household with free and easy access to heroin. Now, once...
  17. Fiddle-Faddle
    I think the general rule for crockpot cooking is that they cook most efficiently when 2/3 full, and that raw meat needs 8-10 hours on low to fully cook, or you can do 5-6 on high. If you started with frozen chicken breasts, you would need more than that, I think, plus you might have to worry about bacterial nasties with such a long time between frozen and...
  18. Fiddle-Faddle
    I agree with the first sentence. I partially disagree with the second: celiac does not show up on a food allergy test, and neither does gluten intolerance, and the stool sample tests that most doctors run is for bacterial infections/parasites, NOT celiac (though it might be a good idea to check for infections and parasites). The actual blood tests...
  19. Fiddle-Faddle
    The foul-smelling burps could be related to acid reflux--which is STRONGLY linked with celiac/gluten intolerance. Yes, your son's problems could very likely be either celiac disease or gluten intolerance (which many people think is the same thing as celiac, just at an earlier stage). But they could be other things as well, such as a bacterial infection...
  20. Fiddle-Faddle
    :( Sorry... :(
  21. Fiddle-Faddle
    You need to speak to the doctor about the shots and tell him that you do NOT give your permission for the shots to be given at this time, and that you want it on your chart. Have your husband give it to the hospital patient advocate department IN WRITING, and, if necessary, attach a copy to your baby's chart (which should be hanging by his crib/incubator...
  22. Fiddle-Faddle
    Yikes, 1 am???? I'm not gonna be up! Is there anywhere we can see a transcript or have a podcast sent to iTunes??
  23. Fiddle-Faddle
    Thank you for posting this!
  24. Fiddle-Faddle
    If you can tolerate soy, there is very good soy sour cream. There is also a new dairy-free cream called "mimicreme," that people say is really good--it's shelf-stable until opened. I think it's nut based, so if you have nut-sensitivities, that would be out.
  25. Fiddle-Faddle
    We had to switch our cat off Iam's because it did contain wheat gluten (and miraculously, his diabetes was suddenly controllable with a grain-free diet). The bag really doesn't list any wheat or wheat gluten now? I'm not sure what a beef roll is. If that's something new that was introduced right before her downward spiral, that might be it. I've found...
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