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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    When I was a child (late 1970's), the dad of my best friend was a chemist working for Searle, and he was one of the original chemists who was working on aspartame. He wouldn't let his family touch it. My friend told me that he thought it was carcinogenic and should never have been approved.
  2. Fiddle-Faddle
    In my case, I know that the gluten sensitivity came first--decades of subtle symptoms before the thyroid symptoms began. .
  3. Fiddle-Faddle
    Thanks so much for the clarification, neesee! This passage was about genetic markers, not genes. It did say that 4-5 % of the celiac population have neither DQ2 or DQ8 genes, and, as you pointed out, it did not say what genes OR genetic markers that population has. The way I see it, what they are calling "the celiac population" is a tiny percentage...
  4. Fiddle-Faddle
    Just to clarify, I didn't mean to imply that EVERYONE with Hashimoto's has celiac, or vice versa, just that for some of us, it's obvious that we have a gluten-induced autoimmune disease. I agree that there are probably many different causes and triggers for Hashimoto's. So, for those of us whose Hashimoto's is unquestionably triggered/caused by gluten...
  5. Fiddle-Faddle
    Looks delicious--but what kind of broth is glutino broth and where do you get it? Is there a substitute that is available outside of Lake Wobegone? Many Indian markets sell dhosa batter--ingredients are lentils, rice, water, and salt!
  6. Fiddle-Faddle
    MommaG, we were talking about celiac disease and gluten sensitivity! I brought up Hashimoto's to illustrate how many people with supposedly "non-celiac gluten sensitivity" do have an autoimmune disease directly triggered by gluten.
  7. Fiddle-Faddle
    Those of us with Hashimoto's CLEARLY have an autoimmune disease! And for those of us whose Hashimoto's either disappears or improves greatly on a gluten-free diet and gets worse on a gluten challenge--well, that makes it pretty clear that it's gluten-induced. Hashimoto's is diagnosed by bloodwork, measuring anti-thyroid antibodies. It is not diagnosed...
  8. Fiddle-Faddle
    Well, maybe I'm misreading it, but it looks like there are SEVERAL genetic markers clearly associated with celiac disease, not just 2.
  9. Fiddle-Faddle
    MommaG, by the definition you've quoted, many people don't fit in either category, because they are not biopsy-diagnosed as celiac, yet they have autoimmune diseases directly caused by gluten ingestion (those diseases either improve drastically or completely disappear on a gluten-free diet). So they fit the mold for celiac in every conceivable way except...
  10. Fiddle-Faddle
    And we already know that symptoms can be silent, as many DH sufferers who are otherwise asymptomatic DO have damaged villi, while others have none, and still others have severe intestinal symptoms in addition to DH. I think the problem lies in attempting to define and diagnose CELIAC so narrowly, when it seems to be more and more apparent that celiac encompasses...
  11. Fiddle-Faddle
    I'm with ya--I was on prednisone for the "idiopathic rash" (which I'm SURE was DH), before I was finally able to convince (beg, really) someone to order blood work and a skin biopsy, and the only positive was the IgG (which was sky-high). And, yes, I had Hashimoto's, reflux, the beginnings of joint pain, and intestinal symptoms that I barely noticed until...
  12. Fiddle-Faddle
    From Open Original Shared Link HLA Typing and Celiac Disease The three markers DR3, B8 and DQ2 are all associated with Celiac Disease. The reason for this is that the genes which code for B8, DR3 (also termed DRw17) and DQ2 are in linkage disequilibrium. They are part of a gene segment that is usually maintained as a gene block. This fact has posed...
  13. Fiddle-Faddle
    Nope--all symptoms of celiac can appear as NCGI. One reason for this is that even for biopsy-diagnosed celiacs, BEFORE there is enough villi damage to give the so-called "gold standard" diagnosis of celiac, there are almost always symptoms, and usually positive results for the blood tests. But most doctors call that NCGI instead of early-stage celiac...
  14. Fiddle-Faddle
    One of my kids had a rash that was a lot like wht you describe. Our ped sent him to a dermatologist, who took one look and said, "This is definitely a drug rash, what's he on." He was on breast milk, that was it--BUT he had just had his 4-month immunizations 24 hours before the rash started. According to the dermatologist, that was definitely the...
  15. Fiddle-Faddle
    You can grind millet in a coffee grinder! It works quite well, but does take longer than opening a package of millet flour.
  16. Fiddle-Faddle
    I was wondering about the metallic taste in your mouth--do you have mercury amalgams (silver fillings in your teeth)? My dentist told me to let her know immediately if I had a metallic taste in my mouth, as that would mean that mercury was leaching from the fillings and the fillings would need to be removed and replaced (which is something VERY tricky, and...
  17. Fiddle-Faddle
    Thanks so much for posting this! It's nice to know that there is at least one reasonable option at Red Lobster! Does the viola in your name mean that you play viola?
  18. Fiddle-Faddle
    Oh, how sad. What happened? Is the baby okay? Prayers sent for Dan, his family, and friends.
  19. Fiddle-Faddle
    Oooh, can you tell us what a New Zealand egg pie is and how to make it????
  20. Fiddle-Faddle
    I am not knowledgeable about prescription medications, but can offer the following advice, which DOES have peer-reviewed studies in its favor: 1) Do your very best to be outside (preferably exercising, like walking) for a good hour every day even in lousy weather. (But half an hour is better than nothing!) 2) AVOID CAFFEINE: there are studies linking...
  21. Fiddle-Faddle
    If you have candida issues, could the sugar in the rice milk be enough to cause problems? Also, rice is usually "prescribed" as a stopper-upper, especially white rice. I don't know if rice milk would have the same effect, though.
  22. Fiddle-Faddle
    Thank you so much for posting that, Richard. My 10-year-old son lost a friend exactly 1 year ago (December 20th), and he has been going to the cemetery every time it snows, to build a snowman to stand guard over his friend....
  23. Fiddle-Faddle
    Welcome aboard! It IS daunting at first. I was diagnosed nearly 3 years ago, and I remember crying for 2 days, as I thought I would never get to taste anything good ever again. I was SO wrong! There are brilliant people out there, who come up with flour blends and recipes for EVERYTHING--and it all tastes wonderful, just as good as the gluteny originals...
  24. Fiddle-Faddle
    I would not only fire the idiot doctor, I would write a formal complaint to the insurance company that paid for both endoscopies, bloodwork, etc. He cost them thousands of dollars, AND CAUSED YOU CERTAIN RISK TO YOUR HEALTH AND YOUR DAUGHTER'S, by not diagnosing you celiac based on positive tests (in every way!) THREE years ago. Normally, I am against...
  25. Fiddle-Faddle
    Fran, this is almost funny! You already HAVE the gold standard diagnosis: damaged villi. With a positive dietary response, you don't need more tests. Most people who go gluten-free as a result of bloodwork are hounded by others who say they need an endoscopy! As far as your children are concerned, they don't need a doctor's permission to try a gluten...
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