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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    No worries, ptkds! I am not searching, but appreciate the link nonetheless. I had no idea that such a link existed, and it's always a good thing to learn about religions other than one's own. It's also nice to hear that some churches are handling food allergies well! Thanks for sharing.
  2. Fiddle-Faddle
    Look for work at Disneyworld or Disneyland--they are AWESOME with food allergies!
  3. Fiddle-Faddle
    Hi, everyone, I am trying to help a colleague's sister (someone I don't know well at all); I think she should at least rule celiac/gluten sensitivity out. She seems interested in the possibility (she wanted to know how I'd lost my weight), but her family thinks that she is just weak and undisciplined--can't keep from eating cookies, etc. But I remember...
  4. Fiddle-Faddle
    Can't they use gluten-free Rice Chex for the cereal? Are they using peanuts, too, and telling those allergic to peanuts to stay home? I'm sorry, I think the teacher is wrong. When I bring in a birthday snack for my kids' classes, I ask about allergies, and I talk to the moms of those who are allergic, and come up with something EVERYONE can...
  5. Fiddle-Faddle
    You put your finger on it. That's the nature of "modern" medicine. YES, gluten is passed through breast milk. Any doctor who says it isn't is simply wrong.
  6. Fiddle-Faddle
    Shan. reflux is a VERY common symptom of celiac/gluten intolerance (yes, even in 1-year-olds). Given that the celiac/gluten intolerance tests in babies are notoriously inaccurate (lots of false negatives, though very few if any false positives), if your 1-year-old tested negative for celiac, that doesn't mean he doesn't have it. And, since his sibling...
  7. Fiddle-Faddle
    It's not the gluten I miss, but the convenience. It would be nice not to have to make every single thing we eat from scratch! On the other hand, the from-scratch foods I make taste better than pre-packaged gluteny originals (for example, homemade gluten-free chocolate chip cookies taste way better than anything Keebler makes).
  8. Fiddle-Faddle
    Hi, Skinnyasparagus, Elevated gluten-specific IgA is considered a positive diagnosis for celiac--you are not a lunatic!!!!! And, as explained above, the reason all your recent tests were negative is that they were testing (again) for antibodies to gluten. If you have been gluten-free since January, you absolutely should not be making antibodies for...
  9. Fiddle-Faddle
    You say you know your problems are not dairy because you are lactose-free? I'm sorry, but many people with dairy problems react to the CASEIN, not the lactose. You need to be dairy-free, not lactose-free to be sure that your problems are not dairy. And if you had villi damaged from celiac/gluten intolerance, the villi might not heal completely if you...
  10. Fiddle-Faddle
    Please look into Lyme Disease. There is a thread on this board devoted to Lyme Disease, as so many celiacs here have been diagnosed with it. The father of one of my students had it for years, and the neurologist couldn't find anything wrong (and like you, he was having seizures). Finally, the neuro said, "well, we've run every other test there is...
  11. Fiddle-Faddle
    I jsut wanted to add that the healthiest diet for a newly diagnosed celiac does NOT include gluten-free breads, pastas, cakes, cookies, etc., anyway, just like the healthiest diet for NORMAL people doesn't include them. Those items are not for nutrition, they're for snacks and fun--but the gluten-free versions are difficult to digest for a newly diagnosed...
  12. Fiddle-Faddle
    Honestly, I wouldn't bother with the financial support. In the first place, it's the pre-made breads, cakes, and cookies that are ridiculously expensive--but none of them are great, and most of them are downright awful. It is VERY simple, and way, way less expensive to make your own. The flours are more expensive than gluten flours, but the homemade...
  13. Fiddle-Faddle
    Just thought of another analogy--it's like a diabetic continuing to eat sugar, but taking meds so he doesn't FEEL the effects of dangerously low/high blood sugar. Of course, the choice is ultimately up to you.
  14. Fiddle-Faddle
    I wouldn't even consider masking symptoms with a medication (whose long-term side effects have not been studied amongst the general population) while still consuming the substance that directly CAUSES the illness. That would be like being allergic to peanuts, but continuing to eat them while taking medication to block out the sensation that one's throat...
  15. Fiddle-Faddle
    I still think she might be losing her hair from the fluoride. How MUCH is she getting, and why is she getting it at school? Please do some research on fluoride poisoning. Especially if she is already drinking fluoridated water, extra fluoride could be a real problem. I'm assuming she has tooth enamel problems due to celiac ? That's common amongst...
  16. Fiddle-Faddle
    Alopecia can be a symptom of celiac. Alopecia means hair loss; the cause is unspecified and can be from many different things, including diet, stress, and (as listed in links above) fluoride.
  17. Fiddle-Faddle
    If the ped diagnosed her, you HAVE your diagnosis!!!! You don't need anything else! BTW, my children are all gluten-free. None of them have been tested. Two of them are no-brainers, based on consistent symptoms that are GONE on a gluten-free diet. The third is iffy, but we figured, a gluten-free diet is NOT going to hurt her in any way, shape, or...
  18. Fiddle-Faddle
    I think you should post a separate thread on this board, asking if anyone within 200 miles of you can recommend a doctor who is familiar with celiac. Your doctor obviously is not--he is only diagnosing it in its extreme end stage. That's like not diagnosing someone with a peanut allergy until they have a severe anaphylactic reaction, instead of diagnosing...
  19. Fiddle-Faddle
    I'm sending this to the father of one of my students--he's a GI doc. Everyone, a framed printout of this would be a great Christmas gift for your doctor!
  20. Fiddle-Faddle
    Is it cancer CELLS that they can sniff out, or are they just detecting the difference in odor of the sweat produced by people with cancer? I know when I am sick, my sweat smells very different than when I am healthy. While it's a fascinating idea, I don't think it's going to be practical/practiceable for gluten detection. The latex idea, though,...
  21. Fiddle-Faddle
    The biopsy was branded the "gold standard" for diagnosing celiac before the blood work was as advanced as is today, and before they knew as much as they do today. It's been at least 30 years since the biopsy was determined to be the diagnostic tool for celiac. We know much more about celiac today. For example, we know that those with DH do not always...
  22. Fiddle-Faddle
    I do see European brands of chocolate list "glucose syrup (from wheat)"--I assume (perhaps wrongly?) that there are celiacs who would react to that, even if it is supposed to be free from gluten. They do say the same thing about wheat starch--that it is supposed to be gluten-free due to the processing, and in Europe, it is considered safe for celiacs,...
  23. Fiddle-Faddle
    If they derive maltodextrin from barley (which I THINK is unusual, but am not sure), they would NOT be required to list that on the label.
  24. Fiddle-Faddle
    Kamut is wheat. Print out info from the internet, and bring it to Whole Foods. Tell them that if someone with celiac has a severe reaction, Whole Foods could be liable. Email the company, and tell them the same thing (include a cut and paste from a website listing kamut as gluten).
  25. Fiddle-Faddle
    Oh, I'm so sorry. Our synagogue has been great--they tell me in advance, and my kids (who aren't nearly as severe-reacting as your daughter) bring snacks or gluten-free pizza to Sunday school. I know this wouldn't be the wisest thing, necessarily, but I'd be AWFULLY tempted to call your Sunday School Director (or whoever the "they" is that you refer...
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