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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    This was my experience, too. The dermatologist who ordered my tests told me everything was fine and that I did not have celiac (never mentioned a possibility of gluten intolerance). My endocrinologist looked at a copy of the same test results, and said, "this says that you have celiac." And my only "high score" was the IgG, which was through the roof...
  2. Fiddle-Faddle
    All these are equally true for those with gluten intolerance. I repeat what I said in my previous post: many people with a diagnosis of gluten intolerance are actually in the early stages of celiac disease, but don't have enough villi damage to receive an official diagnosis of celiac. Most doctors would not diagnose me with celiac. I did not have obvious...
  3. Fiddle-Faddle
    sbj, you are TOTALLY missing the fact that before a celiac person eats enough gluten to cause visible villi damage (and that differs from person to person), they will be diagnosed as gluten-intolerant! I, too, don't care what celiac group came up with your quote. They are simply wrong to generalize that way. By their definition, a celiac who for whatever...
  4. Fiddle-Faddle
    There are lots of great kid-friendly recipes here, including pizza (you can make them on corn tortillas, or make a crust with cornstarch, potato starch, and some other ingredients, still just as fast as take out), bread (DON'T buy Food for Life brand, it tastes and feels like sawdust--make your own, it's MUCH easier than making regular bread, all you do is...
  5. Fiddle-Faddle
    Don't forget that the diagnostic criteria for celiac (damaged villi or DH) does not happen overnight. That is why testing on young children is not accurate. Your body may produce antibodies to gluten (and to your thyroid, skin, joints, brain, whatever) well before you have damaged villi. If you think about it this way, then damaged villi (the gold standard...
  6. Fiddle-Faddle
    Actually last night I fell asleep watching TV, and woke up at 3 am with very loud ringing in one ear and the TV still on. I can't help wondering if my radio waves from the TV caused the ringing?
  7. Fiddle-Faddle
    I'm not yet convinced that there is such a thing as "IBS." The S stands for syndrome, which means it's a collection of symptoms. Something tangible CAUSES those symptoms, and just because the doctor can't figure out what the heck it is, doesn't mean that the tangible cause doesn't exist. If the IBS diet helps, go for it. Then add foods back in, 1 per...
  8. Fiddle-Faddle
    Looks like the cream of tomato soup is a UK product, but it does NOT contain wheat starch, they use corn flour (what we call corn starch in the US) instead! Ooh, I'm going to look for it!
  9. Fiddle-Faddle
    Heinz is based here in Pittsburgh, but I think they do have a UK branch. Time to check out their website!
  10. Fiddle-Faddle
    Well, in my job, I do have constant loud noise exposure, but usually wear earplugs when it's bad--except for last week. So it is certainly likely (but not guaranteed) that the noise had something to do with it. I started the prednisone tonight, and my ears are already much, much better. (And you know me, I'm usually one to pooh-pooh medication.) I just...
  11. Fiddle-Faddle
    I just came back from the ENT doc with a bottle of Prednisone. He doesn't feel it's autoimmune, but rather related to prolonged loud noise exposure, and I would guess he is correct. But I'm so used to blaming everything on celiac, I can't help wondering if it's somehow related! So I was wondering if anyone else here has had to deal with this. Being...
  12. Fiddle-Faddle
    Lis, sorry if you already know this, but I just wanted to make sure you knew you should be EATING GLUTEN until after the biopsy.
  13. Fiddle-Faddle
    In addition to watching what you are eating, and delaying any solids for Morgan, PLEASE research vaccines. A good place to start is www.nvic.org. Nobody seems to have done a study, but it seems that those with autoimmune disorders (such as celiac) are far more sensitive to the problems associated with vaccines. YOU DO NOT HAVE TO FOLLOW THE "MANDATED...
  14. Fiddle-Faddle
    Even if you are only making one antibody against gluten, that's pretty clear that you then SHOULD NOT EAT GLUTEN. "Normal" (as in non-celiac) people do not make antibodies against gluten.
  15. Fiddle-Faddle
    Besides for the upset and lack of necessity, it ought to be mentioned somewhere in this thread that there IS risk associated with biopsies, including reaction to the sedative (much, much higher risk if they have to do total anesthesia as opposed to light sedation, and with small children, they usually do total anesthesia, AFAIK), possibility of surgeon "nicking...
  16. Fiddle-Faddle
    I had the same blood test results, but was gluten-free at the time of the test. Also wondering if it could have something to do with Eastern European/Jewish heredity????
  17. Fiddle-Faddle
    Interesting. Do you think that this is only related to non-celiac gluten intolerance (like Lyme would be), or do you think this is a potential cause with possible treatment/cure for celiac?
  18. Fiddle-Faddle
    I had what was called an allergic reaction to a bee sting years ago. I was tested and told I was allergic to all kinds of insect stings, then tested a few years later and told that I was allergic to the body of the insect but NOT to the venom (?????). I do know of a GREAT treatment for bee stings, though-- ONION. Seriously--put a freshly cut slice...
  19. Fiddle-Faddle
    You probably don't have a heckuva lot of spare time, but if you do, you might consider sending her a REGISTERED letter, telling her that a) you never filled the Fosamax scrip the results of both the previous scan and the latest one showing significant improvement c) the fact that the only things that changed were diet and exercise, NOT meds d) your...
  20. Fiddle-Faddle
    Thanks for posting this!
  21. Fiddle-Faddle
    Way to go!!! I'm curious--did your doctor's jaw hit the floor? What did he (or she) SAY???? This is the sort of thing that can--and should--turn the whole pharmaceutical scam industry on its back, if doctors and the media would only REPORT these kinds of results!
  22. Fiddle-Faddle
    I'm in Pittsburgh!
  23. Fiddle-Faddle
    I hope you were able to convince her. If not, you might print out some info from the internet (and gently tell her that, although you appreciate her efforts and you know she would not intentionally make you ill, her misunderstanding could have had very bad consequences. From Wikipedia: "Gluten is a composite of the proteins gliadin and glutenin. These...
  24. Fiddle-Faddle
    If you have a firm diagnosis of celiac disease, the insurance companies see you as high-risk. and mark you up accordingly. Remember the University of Chicago study that came out in 2006 and said that it takes an average of 11 years to get a diagnosis of celiac? Well, that's 11 years of doctor visits, tests, and expensive (and totally unnecessary...
  25. Fiddle-Faddle
    I just use the recipe on the back of the corn meal box--but I substitute BetterBatter gluten-free flour for the flour called for in the recipe. YOu can also make ChiChi's Fiesta Sweet Corn Cake mix (sold at grocery stores in the Mexican section, and it's gluten-free!!!!)--it calls for adding a can of creamed corn (check labels to make sure it's gluten...
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