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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Bumbershoot! I remember Bumbershoot! (My first job was with the Seattle Symphony, many, many years ago...I miss Seattle!!!!) Thanks for the good wishes. The ringing is much, much better, and I thought my hearing was coming back--but now I have a pretty nasty cold, and my head is all plugged up, so I can't hear anyway, thanks to the Prednisone turning...
  2. Fiddle-Faddle
    Bell, there is more than enough research AND anecdotal evidence to for this to be compelling evidence, not bad science. Perhaps you might search in local autism/celiac support groups and find people in your vicinity who have tried the diet on their autistic child WITH GOOD RESULTS. Nothing convinces like visible success.
  3. Fiddle-Faddle
    Thanks, Tiffany--we must be related, I have the pediatric-sized ear canals, too.
  4. Fiddle-Faddle
    No, Rice Chex is now gluten-free! It used to have barley malt, but they now use molasses instead. It even says "now gluten-free!" on the box.
  5. Fiddle-Faddle
    Your fresh beans do sound good. But maybe you've never had GOOD green bean casserole? I do dislike it when it's prepared with canned beans, but with frozen (especially if you only THAW them before baking, don't cook them first) beans, it's definitely comfort food! You can also jazz it up with chopped red peppers, almonds, cheese, artichoke hearts...
  6. Fiddle-Faddle
    For the cream of mushroom soup, I buy (at Sam's Club) a plastic jar of dried mushrooms. I use a bunch of those, a cup of chicken broth, and a cup of cream. Bring to a boil, and thicken with a little cornstarch dissolved in water. Add whatever spices you like. I add garlic, tarragon, and pepper. No salt, because the broth is plenty salty.
  7. Fiddle-Faddle
    Actually, there are 15 emoticons, not, 10, but I agree--we need MORE! However, I think we would be more constructive if we tell Scott what exactly we need. We need one on the toilet with stomach cramps. We need one that's about to puke. We need a lovey-dovey one. We need one with a light bulb over its head. And we need one that...
  8. Fiddle-Faddle
    Wow. I don't have a problem with dairy, but I like almond milk so much,I could easily finish it off in one day.
  9. Fiddle-Faddle
    I am so happy I discovered these! Funyuns are kinda like French-Fried Onions--they're onion-flavored, potato-based chip-thingies, shaped like onion rings. They're sold in big bags in the chip aisle, and sometimes in little single-serve bags near the check-out. AND THEY'RE gluten-free!!!!!!!! (But they're not MARKETED as gluten-free, which is good...
  10. Fiddle-Faddle
    From Wikipedia: As a food additive, it serves a dual purpose in the food industry since it both alters the color of preserved fish and meats and also prevents growth of Clostridium botulinum, the bacteria which causes botulism. In the European Union it may be used only as a mixture with salt containing at most 0.6% sodium nitrite. It has the E number E...
  11. Fiddle-Faddle
    Woolygimp, if you look closely at the tiny little writing on the hot dog packaging (use a magnifying glass!), you'll see that it's sodium nitrite, not sodium nitrate. Nitrites and nitrates are different. Nitrites are WORSE. When I was a teenager, ANYTHING with sodium nitrite gave me zits. My teenage son is going through the same thing. I did outgrow...
  12. Fiddle-Faddle
    Many of us did go through testing--but the doctors screwed the tests up. I was gluten-free for a month before blood work, and the dermatologist (whom I had to BEG for a celiac panel) not only told me that being gluten-free meant nothing to the blood test results, but told me that a ridiculously high IgG (in spite of being gluten-free) meant nothing. ...
  13. Fiddle-Faddle
    Ah--but you're assuming too much about the process of self-diagnosis. For most of us, our rashes, digestive disorders, and autoimmune disorders all cleared up on a gluten-free diet, reappeared upon challenge, disappeared again with a gluten-free diet, reappeared upon challenge, and disappeared on a gluten-free diet. I think there are very few people...
  14. Fiddle-Faddle
    sbj, I think the problem is the defining of when one HAS celiac disease. If you say that you only have celiac disease after the villi are damaged enough to show up in the endoscopy, then you're saying that the first, I don't know, 10 years of the mechanism of celiac disease occurring in the body and causing damage doesn't count as celiac disease! (did...
  15. Fiddle-Faddle
    Not to worry, sbj, I think you are asking a totally valid question! Lack of positive bloodwork and/or positive endoscopy does NOT mean you don't have celiac. There are people whose first biopsy was negative and second was positive--and they had negative blood tests. Does that mean that first they didn't have celiac and then they did 6 months later...
  16. Fiddle-Faddle
    I think there are degrees of damage from gluten intolerance (including but not limited to official celiac). Those who have not suffered years and years of the truly debilitating symptoms don't seem to get as severe a reaction once they have healed. As long as the only culprit is gluten (i.e., we're not talking about other food intolerances, Lyme, or any...
  17. Fiddle-Faddle
    Great advice from april, but make sure NOT to use Rice Dream if you want to be gluten-free--Rice Dream claims to be gluten-free (even says so on the box), but they use barley enzymes in the processing. They are allowed to list it as gluten-free because it supposedly has less than 200 ppm of gluten, but it's still gluten.
  18. Fiddle-Faddle
    It's possible to have celiac, yet not test positive in any way, including genetically. As far as the continuing symptoms go, I would suggest 1) posting your current typical day's diet--maybe someone will spot something that is either gluten (such as Rice Dream rice milk, which claims to be gluten-free but isn't), or something that explains the continuing...
  19. Fiddle-Faddle
    You can order practically anything on Amazon for less than most grocery stores charge, and have it delivered to your front door. It does seem like, with the results of the endoscopy, that there IS a diagnosis of celiac, and the most important thing to do now is a gluten-free diet, which is likely (but not guaranteed) to address ALL problems. While Crohn...
  20. Fiddle-Faddle
    They may or may not be two different things, but I'd bet that in your case, gluten may very well be causing everything, including bipolar syndrome. You might try googling "gluten bipolar" "celiac bipolar" "glulten migraines" etc, and see what comes up. If you need to convince your mom further, you might google any of those along with the word "study...
  21. Fiddle-Faddle
    And you say you TRUST these doctors? WHY? They don't listen to you, they dismiss your experience. Good doctors don't do that. Period. I think this is a red flag that you need new doctors. Are you in a city that has a celiac clinic (sometimes attached to a major teaching hospital), or at least, a doctor with celiac experience? You might want...
  22. Fiddle-Faddle
    Please call your doctor ASAP if you have chest pain, even if it is on the right side. Heart attacks can involve pain on the right rather than left side, and arm pain as well. Women tend to not call in with chest pain, and doctors used to not take womens' chest pains seriously, with the result that heart attacks in women have a much higher mortality...
  23. Fiddle-Faddle
    See if you can get the NUMBERS from the blood tests. They should have run 5 tests, including IgA, IgG, total IgA, and TtG. If ANY of them were above 0, that is NOT within normal limits, no matter what the lab or doc say. Another thing--many doctors believe that an endoscopy is no longer necessary to diagnose celiac. This is because it can only diagnose...
  24. Fiddle-Faddle
    Beautiful story, Shay. I hope you have an opportunity to tell her that bipolar syndrome and depression have been firmly linked with gluten intolerance. You two might still have quite a lot in common!!!!
  25. Fiddle-Faddle
    The thing about a Syndrome is that it is a collection of symptoms (or in this case, a collection of diseases), and the implication is that the doctors have no clue what is CAUSING the syndrome. This doesn't mean that the cause can't be found. In your case, it sounds like gluten is not the cause, unless you are getting gluten unknowingly (a faint possibility...
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