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Fiddle-Faddle

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    B12 deficiency (which is common with malabsorption problems) can cause all kinds of neuro problems, including headaches, hearing loss, tinnitus, dizziness, brain fog, etc. Meniere's Disease (which is not really a disease but a collection of those symptoms) is sometimes referred to as an aural migraine (migraine of the ear). You might look into a sublingual...
  2. Fiddle-Faddle
    Some of us couldn't care less if we are labeled "celiac" or "gluten-intolerant" or "gluten-sensitive" or whatever. We know that gluten causes our symptoms just as much whether the biopsy was positive or negative, so we avoid gluten (which is NOT that difficult if you know what you are doing) and move on with our lives. Of course, we could sit around,...
  3. Fiddle-Faddle
    If the hospital did allergy testing, then they likely tested you for wheat allergy, which is not the same as celiac disease. And, yes, you need to be consuming the equivalent of 4 slices of bread per day for 3-4 months for the celiac blood panel to be accurate. As mentioned above, it sounds like you have already figured out the source of your problems...
  4. Fiddle-Faddle
    Over the past 3 1/2 years, I've heard from plenty of celiacs who'd thought they were fine eating gluten--until autoimmune issues took over and their health spiraled out of control. Many of those people are still members here--look up ravenwoodglass and stilltiredofdoctors for starters. I believe both of them were looking forward to life in wheelchairs before...
  5. Fiddle-Faddle
    Sometimes we can't choose the cards we are dealt--but we can choose how we react to them, and how we play them...
  6. Fiddle-Faddle
    Pack things you can eat in your suitcase--pack minute rice, an immersion coil and electricity converter/adaptor, foil packs of chicken, salmon, tuna, whatever you feel your body can handle. Arroz con Pollo is a dish in most restaurants--it's chicken and rice, and usually does not contain any wheat, soy sauce, flour, etc. Print out the Triumph dining...
  7. Fiddle-Faddle
    Yes, it's amazing how things can spiral, isn't it? And even more amazing how little the doctors know about any of this, and how they treat each symptom with a drug instead of looking for the cause of the symptom. Reflux can have many causes, but if your son was already diagnosed early on with celiac, I'd suspect that gluten was the original cause of his...
  8. Fiddle-Faddle
    I just wanted to mention that being on an acid-blocker (like Prevacid) for years puts one at very high risk for B12 deficiency--and that is NOT mentioned on the package insert (but if you look at any Pernicious Anemia site, long-term use of acid blockers is considered one of the top risks for developing Pernicious Anemia, which is a severe B12 deficiency...
  9. Fiddle-Faddle
    My first baby was IUGR, but not until the second half of the pregnancy. I'm assuming you are on bed rest? If you are not now under the care of a high-risk specialist, I would look into switching ASAP. Best of luck, and lots of prayers on their way to you!
  10. Fiddle-Faddle
    ((((HUGS))))))
  11. Fiddle-Faddle
    Ummm...how do you know what the inside of HER place looks like????
  12. Fiddle-Faddle
    I agree with the principal of reverse psychology on kids--but in this case, we have two adults! Why play games? Why not just go about ones' own life, and let the other adult do as she pleases? As I said before, if the other girl had seen a picture in a magazine and copied it, nobody would give a hoot! In fact, there's even a TV SERIES devoted to exactly...
  13. Fiddle-Faddle
    I don't see a problem here, except in your view of things. If she had seen a picture of your apartment in a magazine, loved it, and decided to copy it (which is what people do all the time, even decorators do this), it wouldn't be a problem, would it? She was obviously impressed with the wonderful, creative ideas you have come up with--but you don't...
  14. Fiddle-Faddle
    If you have been on acid blocking medication (Prilosec, Zantac, Nexxium, or even Tums) for a long time, that could cause B-12 deficiency. Apparently, you need stomach acid to absorb B-12. Many of us with celiac have had reflux issues, prompting our doctors to put us on long-term acid blockers. In Japan, the lowest acceptable levels for B-12 is 550. They...
  15. Fiddle-Faddle
    If you already know you have DH (on top of all the other symptoms, too!), then you already have your diagnosis. Be aware that insurance companies may use an official diagnosis of celiac disease to deny you coverage down the road, if you were to switch insurance companies or apply for new insurance. They will call it a "pre-existing condition with likelihood...
  16. Fiddle-Faddle
    Yes, I believe that fewer than half of those already diagnosed with Lyme Disease had the rash, and many don't even recall ever having been bitten by a tick.
  17. Fiddle-Faddle
    I think it could go both ways. The people who are sure of their own reactions may very well be entirely correct. Or, like Mtndog, they may have an undiagnosed coexisting condition that is causing their reactions. The point is, it's perfectly fine to politely suggest other possibilities, but it sure seems like some of the mods have (perhaps unintentionally...
  18. Fiddle-Faddle
    You might find this article helpful: Open Original Shared Link
  19. Fiddle-Faddle
    There is no consensus on a minimum standard for B-12 levels: From Wikipedia: Recent research indicates that B12 deficiency is far more widespread than formerly believed. A large study in the US found that 39 percent had low values.[17] This study at Tufts University used the B12 concentration 258 pmol/l (= 350 pg/liter) as a criterion of "low level...
  20. Fiddle-Faddle
    But early villi damage is often only visible under a microscope. Also, they don't see every inch of all the intestine, they only see the inches that the camera part of the capsule is aimed at! To my knowledge, it doesn't have multiple views, only one. I do think that the video capsule endoscopy is by far the most preferable option. Unfortunately,...
  21. Fiddle-Faddle
    I've been taking the Nature Made super B-complex (vitamins C. thiamine, riboflavin, niacin, B6, folic acid, B12, biotin, and pantothenic acid), and it's amazing how much better I feel. It's awfully strong, though--I've been cutting the pills in half, and just taking half. It says "no gluten" right on the bottle, and they have them at Costco.
  22. Fiddle-Faddle
    If you are lactose-free but not casein-free, it's quite likely that your gluten-damaged intestines have not been able to heal because of the casein. Casein is the protein in dairy (lactose is the sugar in dairy). There have been a lot of reports on this board that casein prevents the gut from healing. https://www.celiac.com/categories/Celiac-Di...Celiac...
  23. Fiddle-Faddle
    I had pre-eclampsia with my first child, who then was IUGR. I also had hyperemesis with all three complete pregnancies (1 miscarriage). I was under the care of a high-risk OBGYN for all 3 pregnancies because of Hashimoto's (had had for 10 years). With the second and third, I consented to take medication for the hyperemesis, although about 1/4 the recommended...
  24. Fiddle-Faddle
    My niece and nephew adopted beautiful twins from Khazakstan (sp?), and couldn't be happier. I also have several friends who adopted from either China or Korea, and their children are wonderful--all very happy families! The way I see it, there are two kinds of labor in having a child. One is the traditional labor where you spend hours of anguish pushing...
  25. Fiddle-Faddle
    The problem with this line of thought is that there are some people, perhaps quite a lot (some people think all with gluten problems) who are diagnosed as having "just gluten intolerance" who actually have early stage celiac, but do not YET have enough villi damage to be seen in an endoscopy. Keep in mind that the endoscopy/biopsy was considered the "gold...
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