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NicoleAJ

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Everything posted by NicoleAJ

  1. NicoleAJ
    Well, I have ulcerative colitis, which is very similar to Crohn's, instead of occuring anywhere in the GI tract, however, UC confines itself to the colon and rectum. I'm having a lot of trouble because I've been having a flare-up for months now, and i just can't seem to get into remission. My doctor decided to give me a new med today to see if it works...
  2. NicoleAJ
    Bumblebby--what an aweful ordeal for you to have to go through. I'm so glad that things are going well for you right now, and I totally see your perspecitve in not wanting to take the drugs now. GIs often do say surprising things--I like my GI a lot, but I don't necessarily think he has all of the most recent research. I can't wait until my graduate program...
  3. NicoleAJ
    First of all, I agree that this doctor did not handle everything very well--it is surprising that no one would do a celiac panel on you or an endoscopy to see if gluten was causing additional problems for you. On the other hand, the doctor isn't totally wrong in saying that there's no examined connection between UC and celiac disease--there very well might...
  4. NicoleAJ
    I've never really gotten why people steal silly little things at all. Unfortunately, people also steal things with sentimental value as well. When a family friend had a son missing in action in Iraq, they got a car magnet with the MIA flag and his name--someone actually stole that. Who would be sick enough to do that? It's creepy really.
  5. NicoleAJ
    Thanks for the info, tarnalberry. I actually did read this yesterday, for the most part--I skimmed some parts of it (yes, definitely some scary worst-case scenarios even though those don't apply to everyone), but it is always good to let people know that this is out there. I googled it as well. I'm definitely going to have to double check on the birth...
  6. NicoleAJ
    This isn't a perfect solution, but I bring a plastic baggie and a soft-sided insulated lunch bag with my solid foods. As soon as I get through security, I go to the nearest food place and ask for ice for my bag to keep my food cold. Once, I had to throw out my ice in security and my food went rancid before the 9 hours of flying were finished.
  7. NicoleAJ
    Yes, you're right about that. I was just reading Dr. Green's new book, and he mentioned the fact that people believe that JFK had it. Actress, Emmy Rossum, also has confirmed she has it, as well as that female newsanchor on CNN--someone will have to help me with the name. It's just slipped my mind.
  8. NicoleAJ
    I was just diagnosed with trigeminal neuralgia--a painful disorder involving the largest nerve in your face. The treatment the doctor prescribed is Tegretol, which is one of the various forms of carbamazepine, an anti-seizure medication. Have any of you taken this? Have you had problems with it. It looked like the ingredients were ok as far as celiac...
  9. NicoleAJ
    You all have such restraint. I've been gluten free for two and a half years, and when I've eaten something before being exposed to the sights or smells of gluten, I'm totally fine and don't crave something I know I can't have--I look on it with disgust as the poison it is to my body. However, when I'm hungry, I salivate and wish I could eat that fettucine...
  10. NicoleAJ
    I also buy Woodchuck and really like it. We have weird alcohol laws in PA, so there is only one distributor in town that sells it, and you must buy it by the case. However, there are a few restaurants with carryout beer service where you can buy it by the six pack. For me, it's much less expensive than buying Bard's Tale, and I like it even better as...
  11. NicoleAJ

    ARCHIVED Pf Changs

    NicoleAJ replied to Moongirl's topic in Gluten-Free Restaurants

    I agree with Broncobux. I've had several great experiences there, but I did sit at the bar once when it was totally packed 8pm on a Friday night. I thought that the bar would be safer, but it was so crowded that this didn't make much of a difference for me--again, peak times are aweful. My lettuce wraps came out with the sauce that I double checked was...
  12. NicoleAJ
    I'm really not sure about long term effects of pain killers. I'm on Vicodin currently for nerve pain in my face, but I've only been on it for five days, just to hold me over until my appointment with my neurologist on Friday. I have celiac and ulcerative colitis, but I haven't noticed any difference in my gut on the Vicodin.
  13. NicoleAJ
    I'm in grad school, so things are slightly different for me. But I do have one comment to add. Of course the people you care about most will be supportive and helpful, watching out for you as much as they can. But, let's face it, at parties, people can be really obnoxious if you're not doing what they're doing, and you shouldn't think twice about those...
  14. NicoleAJ
    I dated when I was first diagnosed (but then found a good one soon after). I would try to avoid a meal date for the first date--go to a movie, ice skating, out for coffee, bowling, etc. See if you have anything in common with a guy to make it even worth explaining, and then I agree with the last poster--let the person know early on that you have some food...
  15. NicoleAJ
    Thanks so much for the reply. I'll definitely have to look into remicade. I'll talk to my doctor about it when I see him in a couple of weeks.
  16. NicoleAJ
    I made the trip from State College, PA to Miami and back on 95 several times back when Cracker Barrel said that they could accomodate us (they go back and forth so often). I used to get plain chicken and green beans. I had reactions a few times, which was really unpleasant on the road, so I'd try to avoid them if possible--the last I'd heard, they could...
  17. NicoleAJ
    Wow, that is a truly high number. My ferritin reading isn't even in the double digits, so I'm taking high doses of iron to get it back up where it should be. I agree with everyone else that you should avoid iron in your food and supplements.
  18. NicoleAJ
    Hi Maureen, Yes, I've been scoped, and they did find all of that lovely bleeding ulcerated material along the colon--I even have the picture captures to show it. I've been really good with my diet. I never eat anything unknown, I call about everything obsessively, and I have not been out to a restaurant in a long, long time. I get sick at random times...
  19. NicoleAJ
    Laura, Thanks for the support. Unfortunately, my health has been declining steadily since Thanksgiving. I do have a great GI out in Lewistown, but he's only in the office one day a week--consequently, it takes a long time to get an appointment. I'm going back there at the end of the month, so hopefully he'll have some good news for me. Thanks again...
  20. NicoleAJ
    So I'm a bit discouraged by the fact that most of the statements on this board about UC seem to be from those who have been diagnosed with it before the celiac diagnosis and then believe that it was a misdiagnosis (that it was celiac all along). I've been strictly gluten free for 2 1/2 years, but I was just diagnosed with UC. I had proctitis a few years...
  21. NicoleAJ
    Mal, I'm 27 and I've had 3 colonoscopies and an endoscopy. The only time I ever had trouble with any one of them was when I was severely underweight, making my blood pressure so low that they could not properly sedate me--and I lived through that just fine. Each of the procedures after that have been no big deal--the worst part about the whole thing...
  22. NicoleAJ
    Ok, so if you don't want to hear a rant, please read no further. Today was my boyfriend's dissertation defense, so he is now officially a doctor! I'm so proud of him. I attended his defense and was very supportive--I also bought him a great gift that he absolutely loved and wrote him a great congratulatory card that he really appreciated--he bragged...
  23. NicoleAJ

    ARCHIVED The Melting Pot

    NicoleAJ replied to Ginny's topic in Gluten-Free Restaurants

    Wow, I just assumed that Melting pot would be totally out of the question. I've made both cheese and chocolate fondue at home, but I never would have trusted it out of the house. It's nice to know that Melting Pot is so accomodating for celiac customers--I may have to give them a call and see if they are all so knowledgeable.
  24. NicoleAJ
    I concur with all of you--celiac pain can be absolutely unbearable; although, like some other posters, my pain is not high toward the ribcage but rather lower, in the bowels. I don't actually get so much gas, but I do get all of the other classic G.I. symptoms. One thing to add though, if you are a woman, lower pain like that can also be a burst ovarian...
  25. NicoleAJ

    ARCHIVED Eat Turkey

    NicoleAJ replied to koch's topic in Coping with Celiac Disease

    I agree that it's not worth the risk to eat a bird stuffed with gluten. The juices seep throughout the pan and then people baste several times and some others even inject some of the juices back into the bird. You can always bake your own turkey breast while you're there if you are going for the day or at home to bring with you. The skin of a turkey is...
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