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NicoleAJ

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Everything posted by NicoleAJ

  1. NicoleAJ
    I was also vitamin D deficient last year, and my doctor recommended the 50,000iu prescription as well, but then I spoke to my gyno, and she said that there have been mixed reviews about what those levels of vit D can do if you get pregnant while you're on them. I've been taking decent levels of vit D and calcium daily but not doing the super doses since...
  2. NicoleAJ
    This summer I'm going to the Lake District in England with my husband for a delayed honeymoon. We want to stay in a b&b or hotel that has a gluten free breakfast. We already found a great one called Jenkin Hill Cottage, where they specialize in gluten free breakfasts and dinner, but unfortunately it's a small place and is already full for the time that...
  3. NicoleAJ
    I'm going with my husband to a nice little B&B in Cambria, California on the central coast for our one year wedding anniversary. I'll of course bring plenty of food, but I was hoping that we might be able to eat one meal out at a nice place. I already looked at Central Coast Celiacs for ideas to no avail--we live in San Luis Obispo, so there's no way...
  4. NicoleAJ
    It depends on what your B12 level was before you started getting the shots, but B12 is stored in the body for a very long time. You'll have to be the judge on how long you want to wait for the shots based upon how you're feeling. One word of advice though--have the doctor write a prescription for the cyanobalimine and the syringes and then have a nurse...
  5. NicoleAJ
    Thanks for posting this, Puddy. I'd noticed a while back that they stopped putting "gluten free" on the tortilla chips, but the package of tortillas and taco shells that I've been buying at Vons still have the labelling and I've not had any problems with these.
  6. NicoleAJ
    I get this pretty badly off and on--I sometimes scratch till I bleed without noticing (until I see the blood under my fingernails. I've never even associated it casein, but I also don't really care to go casein free with all of my other food intolerances. It's definitely the worst for me when I'm approacing ovulation, so there's definitely a hormonal component...
  7. NicoleAJ
    My GI told me that he could test for intrinsic factor whether I was deficient or not, so he just did a simple blood test. I still take my shots now that I'm no longer deficient, but I definitely stretch them out a lot longer than I used to. Now that my B12 levels are so high from years of shots twice a month, I don't really need to worry about a sudden...
  8. NicoleAJ
    I'm taking Countrylife prenatals, and they actually batch test for gluten. I haven't had any problems with them (if you don't count the flourescent color in the latrine).
  9. NicoleAJ
    It sounds like the lunch is too important for you not to go, and yet Chinese food except for at a few particularly accommodating places, can be difficult to manage gluten free. I have gone to many a lunch where I don't eat. I eat something extravagant and filling directly beforehand and bring a small snack in case I get hungry, but then I just order a glass...
  10. NicoleAJ
    Dear Beth, I'm thinking about getting ready to try, and this summer I had my doc do a full workup. You'll want to do the standard CBC w/diff as well as all the B vitamins (especially B12) and folate as well. He did a lot more tests for me including calcium, vit D, potassium, etc. The problem is that my PPO didn't cover all of the tests for some reason...
  11. NicoleAJ
    Thanks Deb for posting the radio interview--it was really interesting to hear the journalist's view and hear such great press for awareness of intolerances and food allergies.
  12. NicoleAJ
    These reporters at the Chicago Tribune seemed to be well informed about their research into allergy labelling. I still trust the gluten free bakehouse products because they are produced in a gluten-free facility, but I'll definitely think twice before buying some of the 360 Everyday WF products that say that they use good manufacturing practices to segregate...
  13. NicoleAJ
    babysteps, thank you so much for posting about these restaurants. I live in SLO and had no idea about the Park's knowledge of the gluten free diet. I'll definitely have to check it out. Nicole
  14. NicoleAJ
    a lot of youth hostels, since they are catering to people who want to do things cheaply, have a small kitchen. I've survived on trips to Europe by going to the grocery store daily to get fruits, veggies, and gluten free muffins or croissants, kalamata olives, nuts, etc on days that I didn't have access to a kitchen. On days that I did have access to a kitchen...
  15. NicoleAJ
    I understand that people fall on both sides of this issue. Sometimes you might come here looking to have your spirits lifted with positive thoughts, and on worse days, you might just want to vent. However, lsmall05, there is no reason to take such a hostile tone in your post if you hope to raise the optimism on the board. If you have a low thresh...
  16. NicoleAJ
    I get this too, and it is not better gluten-free then it was before I went gluten-free. I use all non-scented products and I try not to take baths anymore even though I love them. My husband catches me even scratching in my sleep. Sometimes I end up scarring from the scratching, but not much that I do actually makes the itching any better. I've never...
  17. NicoleAJ
    There are reasons why some celiacs would want to see an endocrinologist. I was referred to one by my GI who is a celiac specialist because my osteopenia continues to get worse even with aggressive treatment. My husband and I are also thinking about children, so we need to know how long I should be off of osteopenia treatment before trying to conceive. ...
  18. NicoleAJ
    This is interesting. I've actually had the same symptoms. I didn't react very well to the sublingual B12, so I take injections of B12 every two weeks, and that has really helped the neuropathy symptoms. As far as the degenerated spinal disks--I've had that too, and my doctor told me that is a totally normal finding for a 29 year old because the disks do...
  19. NicoleAJ
    Definitely go to Le Reminet in Paris--it's a restaurant right near Notre Dame, and the owners are a husband and wife team. The wife takes the orders and she has celiac. The husband is a chef and knows how carefully he needs to be about good sans gluten! I ate there three times and never got sick once. I usually don't eat at restaurants in the US, so this...
  20. NicoleAJ

    ARCHIVED Neuro

    NicoleAJ replied to jacqui's topic in Doctors

    Jacqui, I'm sorry you're going through this. None of the neurologists have mentioned MS? I had numbness and tingling in my extremities and my tongue, but they went away after I started taking B12 injections for my B12 deficiency. I've been tested for MS several times now because of the combo of B12 deficiency, peripheral neuropathy, and trigeminal...
  21. NicoleAJ
    I just went to a celiac/UC specialist at Hershey Medical Center (PA) and she was great. I was misdiagnosed with UC last year. Asacol actually caused paralytic ileus for me (paralysis of the colon)--I was in the hospital for the week fasting for a few days and then liquids only. The doctor seems reasonably convinced that I have Crohns, which I'm really...
  22. NicoleAJ
    I just went to a celiac/UC specialist at Hershey Medical Center (PA) and she was great. I was misdiagnosed with UC last year. Asacol actually caused paralytic ileus for me (paralysis of the colon)--I was in the hospital for the week fasting for a few days and then liquids only. The doctor seems reasonably convinced that I have Crohns, which I'm really...
  23. NicoleAJ
    I had guests stay for a week, and at home we only cooked gluten free and it was great, but they ended up going out to eat quite a bit and bringing back all sorts of left-overs. Once there was some gluten in the house, they went out and bought candies, cake, and other things with gluten in them, leaving the crumbs all over the place (including the counter...
  24. NicoleAJ
    I forget the name of the pernicious anemia test--I'm not sure my doctor ever told me what it was. I also eat a lot of foods rich in B12, but because of the pernicious anemia, I can't absorb any B12 that is put in my mouth. I'm glad that you were checked at the beginning of the pregnancy; at least it hasn't been a long-standing problem. After a shot or...
  25. NicoleAJ
    Annaem, It takes years for B12 levels to drop because B12 is stored in the body for a long time. It's possible that you were B12 deficient before you got pregnant. You may want the doctor to do the antibody test to see if you have pernicious anemia. In the meantime, B12 injections are a quick way to get the levels back up to normal. My doctor prescribed...
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