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Latest Celiac Disease News & Research:
Everything posted by NicoleAJ
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ARCHIVED Ina Garten's Gluten Free Whole Grain Bread
NicoleAJ posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I am a huge fan of the Barefoot Contessa on the food network, and so I was really excited when I saw a display of Ina Garten's gluten free bread in my grocery store. The various whole grain varieties are baked in a gluten free facility. I bought the bread, but I haven't tried it quite yet--I freezed it to save it for later. You see, I have had anaphylactic... -
I'm sure you just pictured the money you spent going down the disposal with the mac and cheese--I often feel that way too. I experiment with baked goods only on a limited basis to spread the disappointment out, and then I'm always so thrilled when I have good results. Hang in there!
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I've had stylists in the past that have used dyes with wheat in them, and I've never had a problem with cross contamination. I'm just extra careful for the first few washings not to get the shampoo water into my mouth. That being said, I don't have DH--I imagine wheat hair products would be off limits for people with topical reactions. I wouldn't worry...
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ARCHIVED Any "safe" Restaurants In San Jose Area?
NicoleAJ replied to Fiddle-Faddle's topic in Gluten-Free Restaurants
I went to a Thai restaurant in San Jose on a street off of Market (either Hedding or 2nd). I'm sorry that I can't remember the name, but there were two Thai restaurants on that street. There was one on the corner of a business building, and they looked totally oblivious when I asked them about gluten, so we left. But then I went to the other Thai restaurant... -
ARCHIVED Severe Intestinal Bleeding Warning Tmi
NicoleAJ replied to ravenwoodglass's topic in Coping with Celiac Disease
Good luck with all of your tests. I hope it goes well. I'm sure it's not a worst case scenario. I go through periods of severe rectal bleeding--to the point where I become anemic and sometimes all that comes out is blood. In the past, they attributed it to ulcerative colitis. But I was just hospitalized for a week in February, and after scoping me they... -
ARCHIVED Fasting
NicoleAJ replied to super-sally888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might want to try a modified elimination diet where you avoid most foods for a week but still get enough nutrients through the foods you do eat, then you start to introduce foods one at a time (much less traumatic than an extended fast). This worked really well for me. I fasted for a week last month (only ice chips), but I was in the hospital on bowel... -
I actually asked about this a few weeks ago, and dlp252 was kind enough to forward her doctor's information on the elimination diet to me through a PM. You may want to check with her, or I can just try to forward the information on. The diet she followed, and the one that I've subsequently started, is a modified elimination diet. At times, it seems like...
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ARCHIVED Chanel
NicoleAJ replied to mollyacampbell's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for letting me know; "orgasm" is a great blush shade. I actually haven't tried the MAC lipglass yet--I'll have to give it a try. -
I don't like to think of myself as a sheltered person, but this thread just blew my mind--I had no idea such a contraption even existed! I may just have to try this thing.
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Well it's encouraging to hear that you all cook without garlic and onions (I just tested onions last night and didn't have as totally horrible a reaction as I did with garlic, but I definitely had a problem! I took your advice about fresh herbs and bought fresh basil, oregano, and flat leaf parsley for starters. I made a great chicken dish with spinach...
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So I've been doing an elimination diet, and I was shocked to find out that I have a major garlic intolerance. There were two days in which I had just a pinch of garlic salt, and I had acid reflux and a general feeling of being unwell--fatigue, upset stomach, etc. The next day, I realized that it might be garlic that caused the problems, so I used a clove...
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ARCHIVED Chanel
NicoleAJ replied to mollyacampbell's topic in Gluten-Free Foods, Products, Shopping & Medications
Jesscarmel--all Nars products are gluten free? I didn't know that--that's great. I already love their blush but have been using MAC forever since I know which products of theirs are safe. -
ARCHIVED Autoimmune Hepatitis Look
NicoleAJ replied to NicoleAJ's topic in Related Issues & Disorders
Thank you both for your responses. Sandy, I hope that your daughters tests all turn out ok. Ravenwoodglass, I would tend to agree that celiac disease is the culprit, but I was just taking the info from the Mayo Clinic's write-up on autoimmune hepatitis. The good news is that if it does turn out I have it, most people are able to keep it under control on... -
Corinne, I'm glad you're doing better now. I'd forgotten about the importance of eliminating nightshades as well. I'm off to google "cruciferous veggies" now...
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My doctors are going to test me for autoimmune hepatitis because of various symptoms I've been having (significant enough to land me in the hospital for a week). When I looked it up on the Mayo Clinic, several of the common medical complications listed were those that a lot of us on the board have, including celiac disease. Pernicious anemia and ulcerative...
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TCA, I'm glad you're going to the GI on the 29th. Let us know how it goes. I agree with ravenwoodglass that a colonoscopy could be in order. Some ulcerative colitis is called left-sided UC because it only effects the rectum, sigmoid colon, and the left side of the colon (in other words, it hasn't spread to the whole colon but just stays in the last third...
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Thank you everyone for your replies, and thank you Donna for your PM on the specifics of reintroducing foods. The nutritionists around here are really kind, but less than stellar. I had one great nutritionist, Jennifer, in the hospital who double-checked all the labels of every liquid they had available (towards the end of my stay). Unfortunately, however...
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I just spent a week in the hospital on bowel rest because of paralytic ilius (my colon stopped working), so I didn't eat anything for a week (nutrients came through IV). Now that it's working again, I've started on fluids--basically cran juice, broth, ginger ale, water, pedialyte pops, but I'm ready to start a few solids, and I'd like to do this intelligently...
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I don't grind my teeth, but I do clench them because the dentist said that I have swollen ligaments around my teeth from doing it. Clenching teeth is actually a trigger for my trigeminal neuralgia, which is an extremely painful disorder involving the main nerve that serves your face. I'd love to hear if someone else has a response because I'm not sure what...
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ARCHIVED Disney World On Valentine's Day And Naples Fl
NicoleAJ replied to StarfishCA's topic in Traveling with Celiac Disease
Are you going to Magic Kingdom, Epcot, etc? If you are going to Magic Kingdom, the restaurant in Italy, Alfredo's is romantic and they were very accomodating to my gluten free needs. Also, the restaurant in Mexico is also romantic. -
My boyfriend just accepted a job as a professor at Cal Poly San Luis Obispo. I'm going to finish out my degree at Penn State next year, but I'll be able to spend much of next spring in SLO and will be moving there summer 2008 to get a job as well. What types of resources are there for celiacs in this area? Does anyone know what kind of gluten-free products...
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ARCHIVED Anyone Have Experience With Going Off The Pill?
NicoleAJ replied to jesscarmel's topic in Related Issues & Disorders
I started on the pill at 15 because, like cassidy, I'd have a 2 week heavy flow period and then get it again two weeks later (aweful cramping, migraines etc). Periodically, I've gone off the pill for up to a year at a time when I want to see how things work out for me. The heaviness and length and pain of my old periods usually returns after 6-9 months... -
ARCHIVED Pie Crust, Sourdough Bread, Pasta, Beer
NicoleAJ replied to unaspenser's topic in Gluten-Free Recipes & Cooking Tips
I can vouch for the fact that Bard's Tale Dragon's Gold (beer) is pretty darn good--pricey, but good. Also, if he likes ciders at all Woodchuck ale is also gluten free and quite good. P.S. I assume you're and Edmund Spenser fan by your login name? I really enjoy Spenser's poetry. -
Oh my goodness, I am so excited! I'm not going to have to teach in July, so I'm going to be able to curl up with the book on a nice lounge chair, sipping ice tea and eating gluten free cookies. I can't wait!!!!!
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ARCHIVED Anyone With Celiac And Crohn's Disease?
NicoleAJ replied to Bri's mom's topic in Coping with Celiac Disease
I've had three colonscopies over the course of five years--they didn't find anything on the first two, but on the third one, they could easily see bloody ulcers in the colon--the biopsies confirmed it, but they knew that they would because it was so obvious. Biopsies of the colon can also confirm microscopic colitis which Dr. Green discusses in his book...