celiac3270

Boston (North End), MA

SOX Baby!!!

I'm a New Yorker, but I 100% agree on the Bosox....this is their year....and you couldn't get a more perfect scenario than making a comeback to win four straight and take down the Yankees.......

It's definitely too soon. I tested positive for celiac disease and I've been on the diet for eight months and I'm still not better. Give it at least 2-3 months in my opinion. Kristina's right; it usually takes longer than a week to see any results.

two things........it depends on the facilities...it could be contaminated from other products, though I guess the chances of that are relatively slim. Second, you can never assume with these things......who knows if they add wheat or something. Is there a label you can consult or a number to call? Better to be safe than sorry.

Granger279 used the report button to try to post that:

I ate some yesterday and today am sick.

Hmm....there's bloodwork, which you mentioned. I think there's some sort of a Gene test, and then I think you can do a stool test, as well, but I'm not sure. There's the endoscopy and the colonoscopy, but those are both invasive.

I'm supposed to be avoiding large quantities of complex sugars, acidic foods, and gluten. Obviously, I've got the gluten part down, and it's not too difficult to realize that tomatoes and oranges are acidic . I've been trying to limit my sugar intake, though, and I'm wondering how, on a label, I can tell that the sugars are complex. On the nutrition part of the label (where it lists fat, protein, carbs, sugar, etc.) is there a way to tell if the sugars are simple or complex? Additionally, are certain types of sugar in ingredients complex or simple? It's frustrating for a thin thirteen-year-old to be avoiding brownies and cookies because of the amount of sugar. I'm also wondering if I can have softdrinks or not.......I miss my soda

Thanks for any info. you can provide....

I had e-mailed NatraTaste before posting here and getting your reply....whenever I get an e-mail from a company, I like to share :

Dear Mr. King,

Thank you for visiting our website.  NatraTaste contains no gluten and

is appropriate for use by individuals who suffer from celiac disease. We

appreciate your interest in our product.

Best regards,

Tracy Eichorn

Consumer Relations

Oooh....that's a real disappointment. I used to love candy corn and then I just.....stopped eating it for some reason. A few days ago I wondered if it was gluten-free. I, too, would love ot hear any gluten-free brands

1. Chebe bread mix -- as a pizza crust and a bread

2. Everything by "Foods By George" -- eng. muffins, which I now eat with the regularlity I ate bagels before being diagnosed. Brownies, crumb cakes, muffins, a nice change.

3. There was a choc. chip cookie mix that was AMAZING, but I can't remember its name.....it'll come to me.

I got a reply from Global (thanks for the link, again ) They're gluten-free....

Ms. celiac3270,

Yes, Lipram CR-10 is gluten-free.

Regards

John Anthony

lol....Ms. celiac3270, but I guess I can see where they'd confuse it

Thanks to both of you. Mariann, I e-mailed the company and if I don't get a response, I'll call them. Thanks for finding that for me . SteveW, I was interested to hear your experience with enzymes....I was wondering if perhaps enzymes caused others to feel badly, even if they're gluten-free. I guess you are right about meds....my old GI once suggested that I use Gas-X to deal with bloating ....i thought as he was a celiac dr., he might know, but he might be just as clueless about meds./supplements. Thanks to both of you for replying. Now I'll just wait for a reply from Global and then take it from there.

I've been on enzymes for 2 1/2 days, now......one with each meal. Because I go to a celiac dr., I didn't feel it was necessary to check that the enzymes he prescribed were gluten-free. Are they generally gluten-free or do you need to be really careful? I don't feel good at all every time I take them. The ones I am taking are made by "Global" and they're labeled as "Lipram CR10". Thanks to anyone who can help.

I completely agree about the lasagna....there is no difference in taste at all! Hotdogs/hamburgers, already suggested, are also a good choice. Hamburger meat is gluten-free and Oscar Meyer bun length and a few other kinds of their hotdogs are gluten-free, as well. Although the buns would be different, the hotdogs/burgers themselves wouldn't be. Both are really good suggestions and you can't go wrong with either.

In August, I went bezerk and sent out 10-20 e-mails to food manufacturers. I posted all the replies I got here: Open Original Shared Link. I have the gluten-free list for Haagen-Dazs icecream on the third page, if you're interested. A lot of mainstream products, so you might want to check there for some ideas. There are three pages with tons of letters and lists.

-celiac3270

Burger King regular burgers aren't gluten-free, probably because of the bun, but the low-carb burgers are (probably cause they don't have a bun)

Well, if you've been diagnosed positive through bloodwork, then you don't need the biopsy done. The biopsy is simply reaffirming the results of the bloodwork. The diet is a big change, so many have a biopsy to be sure; after all, you wouldn't want to go through life questioning if you really need to be on the diet. It's really up to you, though......it's not necessary for diagnosis, just something to make sure.

It sounds very likely that she has celiac. The fact that you're limiting her diet to basic foods might mean that you're cutting out much of the gluten, which is helping her. Plain white rice is gluten-free, provided that you make it with water and not chicken broth (some broths contain gluten). Regardless of whether the doctor accepts your idea of it being celiac, you should try the diet; if it solves all the problems (irritability, gas, growth, etc.), then you don't even need a doctor to tell you that it's celiac.

Thank you

I just received a reply from them:

Mr. King,

    Thank you for visiting our website and for your inquiry!  Equal does

not contain gluten and will not pose a problem for individuals who cannot

tolerate gluten/have celiac disease. Gluten is a protein found in the grains

of wheat, oats, rye and barley. Although aspartame, the sweetening

ingredient in Equal is made of two amino acids it bears no resemblance

chemically or functionally to gluten.  If you have any additional questions

or comments, please feel free to contact us again.

Best regards,

Team Equal

I knew about Splenda, but was hesitant about using it since I've heard it can cause diarrhea and other celiac-like symptoms in some people....not due to gluten, but just some ingredient that's harsh on the system. I also had Nutrataste at home...Nutrataste, Equal, and Splenda...... ...they were all gluten-free and I didn't know it. I just didn't bother to post Nutrataste cause I thought Equal might be better known. Thanks for the info.

Is Equal, the artificial sweetener, gluten-free? I'm pretty sure it would be, because none of the ingredients are bad except possibly the maltodextrin, though it's unlikely. I know that "Sweet 'n Low" is gluten-free and it's made with the same ingredients, so I think Equal is, but wanted to be sure....thanks.

Some mouthwashes are okay, but not all.........read labels, call companies

Thanks (about the list)....I just assumed that Perdue was gluten-free so that scared me, but I did read in their FAQs that their chicken is gluten-free.......phewf

Do you have any gluten-free products?

Yes. Many PERDUE

Celiac is covered in the Americans with Disabilities Act. It definitely helps you if he's in a public school, rather than a private school. With a private school, they should be accomodating, but don't have to be--they can run everything by their own rules. In a public school, however, there is an obligation to provide a gluten-free lunch if it is needed. If you have a doctors' note, that helps further.

The diet may help with his moods, too. He can't just not do the diet. . .it's damaging him. What if you serve him glutenfree pasta (nd food) without telling him it is different. I sereve people all the time glutenfree food and they don't' know that's what it is.

SO TRUE! I didn't even think about the mood issue, but so many on the boards talk about having been depressed or angry before the diet (or some other mood) and after a few weeks on the diet, their moods changed.....good point

I'm the only one in my family who has it, too.......no grandparents or parents have it......my brother tested negative, but has the gene.

I find this stressful, also......not so much due to the difficulty and restrictions of the diet, but due to the symptoms and the stress they put on me. If I get sick and miss school, then I get stressed about what tests and notes I missed, and the stress makes the whole thing worse. Initially, I found the diet stressful, but now it's simply a burden.......something that stops me from being able to eat whatever I want at a restaurant, etc. As for coping.......I don't really have a way

Don't have any advice on preparing for a gluten challenge.....I never did one. I don't think that it's something really important unless you're doubting your celiac. I think that actual testing is the best judgment of that. If you feel better, I don't see the point in hurting yourself with more gluten.....the gluten-free diet is helping whether it's because of the gluten or some wheat allergy.......it doesn't really matter which, if you feel good. Just my opinion.............