celiac3270

Good luck, jaycee.

Try not to worry about the biopsy, cause once it's over, you'll realize that it isn't so bad. About the fear of not being able to breathe, try to remember that when you're going about your everyday activities, you probably breathe mostly through your nose, anyway. Also, this has been performed thousands of times on such a variety of people who haven't had problems with the procedure. Furthermore, they will probably attach a number of sticky pads with wires attached to them to your body (they put about four on me, mostly around the upper cheast area). They use these to constantly make sure that you're all right. Therefore, if you had difficulty breathing, they would see right away that heart rates would go crazy or whatever.

Once again, good luck. You'll be fine.

Best Wishes,

celiac3270

A lot of sugar.......15 grams of sugar per serving, which is three cookies, so 5 grams per cookie. If you ate one a day as a treat, it might be okay with the sugar.

Hi,

I was in a healthfood store with my mother and nine-year-old brother. I don't remember what I was getting, but my brother was poking around the other gluten-free foods and he came across a cookie made by Mi-Del (the same ones that made the arrowroot animal-cracker-type cookies, a ginger snap cookie, and a chocolate chip cookies, which i didn't find very tasty. Anyway, they make a "Chocolate Sandwich Cookie", gluten-free, wheat-free (obviously), and dairy-free. They were very good and tasted nearly identical to Oreos. There are 21 cookies in a package. The healthfood store I was at was one of the more expensive ones in my area, but it's the only place where I can find some foods. Anyway, they were obviously overpriced at $3 per box, but i wanted to try them. I felt guilty about getting them, but my mom always tells me that if gluten-free food is all I can eat, I should at least have good variety, etc. Anyway, they were very good.....they should be less expensive at whatever store you might find them at. I'll find them somewhere else for much less....just giving a recommendation for any celiacs dreadfully missing Oreos.

-celiac3270

Ooh.....scary...thanks for the warning about holiday products--that's annoying! And as of right now, they don't even need to change their labels! Oh well, 2 more years.....

I'm not sure about doing an endo at 15 months......not sure it's bad, either, but just questioning how old one should be before undergoing slightly more invasive testing. I know I've seen posts about how young is too young for the endo; try a search.

I'm almost 14 and I have a nine-year-old brother (almost 10). I'm the only one in my family who has celiac according to bloodwork, though I think my mom has it cause she gets bloated after eating large amounts of gluten and my brother might cause he is REALLY skinny like I was....he weighs the same that I did at his age. Anyway, if you have five children, four of which aren't celiac and yourself...mabye a husband.....then it would be quite expensive to go on a gluten-free diet. People will tell you that you just need to avoid the special products, but that leaves you with Lays potato chips, a select few other mainstream brands, and then the basics (fruit, veggies, meat, etc.). While this is okay for adults, it isn't very child-friendly....anyway, I you don't need to put your entire family on the gluten-free diet. You do, however, need to be very careful about keeping all the foods and cooking things separated and making sure everyone in your family knows how serious this.

You'll need separate pots, pans, a toaster, and cooking things (spatula, whisk, etc.). You may not need all this right away, but you will eventually. Make sure that if you use one fork to stir some gluten-noodles, you do not use that same fork to stir something else or to feed your little one. If a knife goes into a jar of jelly or peanut butter or cuts butter, then touches a glutened food and double-dips, it has just contaminated the food. You'll read this all over, but it's important to be really scrupulous about this. Read around and you'll find some posts on cross contamination. I remember quite a few, but don't recall where they are on the board....a quick search should take care of that.

-celiac3270

P.S. Oh, I forgot to mention, keep a postive attitude....you'll get used to coping with the diet and however long it takes, eventually it will all fall into place. If it takes you a year to learn the diet and eliminate all the hidden sources of gluten from your child's diet, it's okay. You're lucky to have caught it this early, so if it takes awhile to work out all the specifics of the diet or if you mess up a few times, don't panic.

I'm curious now about why kids should be careful with things like playdo or glue that has gluten in it. Is it just the off chance that they'll eat the stuff that we have to be careful about? Then what about lotions and makeup and such? (I'm getting very confused.)

With the Playdough, there's always the idea that a child might put their hands in their mouth. Additionally, if you were to use playdough, get it under your nails or leave some on your skin, and then eat something without washing your hands (particularly finger-food ), the gluten from the playdough could be transferred to the food and ingested. The same goes for gluten-containing glues.

Lotions are basically the same problem as Playdough....as Tiffany explained, if your hands make contact with your mouth, there's the gluten. Also, if you bite your nails or touch something you're eating, there's the gluten transfer.

Finally, makeup is the same sort of problem.....I would assume that the problem with lipstick is ingestion as soon as it gets on any of the food you eat or water that you drink. I think awhile ago someone mentioned something about mascara causing eye irritation or something........

-celiac3270

Tiny86 meant to say this, but used the report button, rather than the add topic button to "post" it. Therefore, it came in the form of a report to the moderators, but it was meant to go here:

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I have eaten at redlobster 2 times, and they have been great. So far all I have been able to get is the Lobster & Shrimp Ceasar salad. I am also a nebie learning, boy is this hard.

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Lol okay

Great list.......i don't trick or treat, but it'll be nice for eating candy in general....i didn't realize that lifesavers were made by kraft......i, too, learned something from the list

Okay, first, I'm not sure how you solve the mark as read problem. I've used that feature before and it doesn't keep doing it. To get around it, use the "Today's Active Topics" feature.

Next, the part about the member names and what they were doing was removed awhile ago. I used to love that part cause some people, particularly guests, read topics I had never seen before, so it was a good way to find topics I hadn't read yet. The feature was removed altogether.....I asked Scott about it as soon as I noticed it was gone and he said that somehow the personal information for members was vulnerable to being seen or hacked into or something due to that feature. Therefore, he had to remove it altogether. I'm not sure if it will be coming back, but you could ask!

-celiac3270

No, I haven't had them yet. I'm wondering if Kristina is referring to the "Reese's Pieces"? I'll definitely check the packaging for ingredients, though, before I ever eat any.

Well......some of McDonalds is gluten-free.......but apple pies aren't gluten-free, chicken nuggets aren't gluten-free, etc.

Oh, I forgot to address your other questions.....

First off, the best place to start is probably the Open Original Shared Link. There's a lot of good information there including mainstream gluten-free products (i.e. certain Oscar Mayer products) and ingredient lists, which should be the first thing you print: Open Original Shared Link. I should probably let you know that Frito-Lays have a rather extensive list, which you can get here: Open Original Shared Link.

Finally, in determining if a food is gluten-free:

- Read the label and check for any bad ingredients

- Look for any flavors.....those could have gluten. If there are flavors, you need to call the company to find out unless the food has "Gluten-free" written on it. Additionally, Kraft will write all bad ingredients on their labels, so you never need to call about their products.

- I would suggest calling or e-mailing a lot of companies for their gluten-free lists. Just to save you some time, Kraft does not have one. Companies such as Haagen-Dazs will send you theirs in the mail. Atkins has a good gluten-free list, as well.

E-mail if you have any questions and good luck.....this must be slightly confusing, but I'll try to clarify anything that is difficult to understand.......

-celiac3270

P.S. There is nothing that will teach you faster than reading old posts on the board.....no book gives you more extensive information. Try to find old posts with other first-timers and see what replys they got. I learned so much, so fast, by reading all the old posts when I joined.

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Thanks....those were the ones I wanted to find out about the most

-C

My Symptoms were (in order of severity): cramping stomach, vomiting, bloating, gas, diarrhea, low weight.

All I know is that it's gluten-free.......never used it, either, but a few on the board have mentioned that it's gluten-free.

Try not to worry about growth. It might take a few months. Over the past six months I slowly went from 5' and 70 pounds to 5'2" 79 pounds (oh, btw, I am a 13 year-old boy). Over the past month, my previously continuous symptoms haven't appeared at all!! Additionally, I've gained 5 pounds in 3 weeks (now I'm 84)!!! It will come......try not to stress out, cause it can take months before serious growth begins. I haven't taken any supplements or vitamins consistently and I'm doing MUCH better.....I'm actually starting to look normal (no longer boney).....

have patience.....the growth will come....although I guess a supplement couldn't hurt.......just trying to pass on some encouragement.

p.s. I, too, drink oj w/ calcium........well, I have been drinking a glass a day until recently when i had to eliminate acidic foods/drinks from my diet.

I know........people don't realize what wheat is in and how restricted we are.....I've had people ask me if I can have many obvious gluten-containing foods: cookies, breads, cakes, etc. It's frustrating.

Dixie Cups are made from some form of corn......corn starch, I guess.

This topic came up in the group, USA Silly-Yaks and someone mentioned that a friend who has a corn allergy or something reacts to dixie cups.....anyway, I feel like there are already so many things we have to be careful of....so now for this to be a concern is even worse.

And I know that they can't guarantee that we don't get "glutened" from them. What if that "film or coating" got punctured somehow without the person realizing it? What if some defect in a machine leaves part of the wheat-container uncovered and food touches it? This idea seems like a horrible idea....and for people with corn allergies, this obviously isn't good news, either.

Oh, here's the link to the article: https://www.celiac.com/st_prod.html?p_prodid=1032

This is infuriating...I don't care if they say that they'd be safe because of a small layer of some other material........this is really annoying. Would they make a container out of peanut flour for those with a peanut allergy? I don't think so. And yet, we get pushed around with this wheat thing....

Wheat

Oops.....i accidentally made it post twice.....so i used the edit feature to get rid of the repeat article that was here....sorry.

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Hi,

I have a quick question....I know that the regular-sized Reese's are gluten-free. How about the small ones? (the ones wrapped in orangy foil that are bite-sized).....thanks...oh, just out of interest, does anyone know about the other varieties? (white choc., inside out, etc.). Thanks

-celiac3270