celiac3270

It's free shipping if you buy directly from their website: Open Original Shared Link

I just flew United...had a lunch and a dinner. For lunch I had a salad w/ grilled chicken, asparagus, various other veggies, gluten-free roll. Dinner was another salad, some rice, and shrimp. However, with dinner they had a rice krispie (in the wrapper) on a plate......malt flavoring...didn't eat that of course...just shows that you hve to be careful.

I personally found that reading books really helped me, one of my favorites is called: Against the Grain, it is a great book written from a personal perspective that made me feel not so alone - although I did not have this great website to consult!

Against the Grain has many errors factually and Jax doesn't take cross-contamination seriously. But if you really want that book, you might as well get the updated version, the Gluten Free Bible. I do not recommend this book to anyone, though. I would recommend Wheat Free Worry Free by Danna Korn.

Actually, you're best off buying it online. If you buy in bulk, they give you discounts, and I'm sure it would be more expensive at your health food store. Plus, there's no shipping at all, so you wouldn't save that at the health food store. That's why I haven't asked my healthfood stores to carry it.

I think your physician is about 1/2 right on this one.

An AGA IgA definitely is not enough for a diagnosis. The Anti-Gliadin tests are not very accurate at all. The tTG is the best serological test out there right now, followed by the EMA. A negative biopsy and a negative tTG would be grounds for saying no celiac. However, one sample is not going to work...the biopsy is worthless with only one sample.

What I would suggest is this: get a gene test. This will tell you if you can or cannot have celiac. If you have neither the HLA-DQ2 or HLA-DQ8, you cannot have celiac, and you can rule out celiac altogether. If you have either of the genes, then you should probably have an EMA and another endoscopy, making sure that they take multiple samples.

The part that I think is 1/2 wrong is that you can't have celiac. There is inadequate testing to rule it out altogether, because the tTG, though important, isn't the only way to diagnose or...not diagnose.

No biopsy...then your doctor is going against the celiac experts and the findings of the NIH in their Celiac consensus, which recommends a endo. for a celiac diagnosis.

Congratulations all the same...in a very twisted way

In the post area, you can hit the button that says "http://" and then paste or type in the link. Also, any link that begins with http:// will automatically be converted to a link...so while

www.celiac.com wouldn't be changed, Open Original Shared Link will be changed.

Not all BBQ sauce contains gluten...and the Stax are definitely gluten-free. THey have a pizza flavor, too, but it's gluten-free. And hidden valley ranch dressing isn't gluten-free, but their flavor of Lays stax is....

I get Living Without. Gluten-Free Living is also pretty popular. Oh, and GIG (Gluten Intolerance Group) comes out with a quarterly newsletter, as well...if you become a member you get the newsletter, some brochures and dining cards, and discounted prices if you go to any of the seminars they have.

Look up above where it gives you your web address. It should be something like

Open Original Shared Link

(that's this post). The number you would refer to in this post is 7378. You can't search by number, but if you get into a post, click on page one (unless there's only one page), then replace the four digit number of that one with the one you're looking for, then hit "go" or the enter key or whatever you hit to go to a webpage, then you can get it easily without having to type in glutenfreeforum.com/index.php? etc., etc.

I understand how frustrating that must be. Prometheus is probably the best lab for celiac testing.

12 years (and the average time to diagnosis in the US is 11 years, so I exceeded that...)

I take regular Centrum for a multi-vitamin, but have taken a gluten-free liquid vitamin for calcium. The one I take is: Natural Wealth Liquid Calcium. It says on the side that it's "guaranteed free of: yeast, wheat, gluten, milk or milk derivatives, lactose, sugar, preservatives, artificial flavor, sodium (less than 5 mg per serving)."

She should get a full celiac panel to rule celiac either in or out. The full panel includes:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG and EMA are the most specific for celiac.

Also, she maybe should get a gene test because 98% of celiacs have either the HLA-DQ2 or HLA-DQ8 gene.

Not exactly...the AGA IgA and AGA IgG aren't specific or sensitive enough...and are therefore, according to most celiac experts, not worth running. It's basically the tTG and the EMA, though the total serum is also good to run.

The tTG is the best test to have run--most specific and accurate. The EMA is a little less popular because of expense (primarily due to the means by which they interpret the results) and the fact that it's a + or - (no numbers that you can monitor). The AGA is all but extinct. Of course, the biopsy is the gold standard for diagnosis... and gene testing should be done to rule out a false pos. on the tTG. 95% of celiacs have the HLA DQ2, but then again, 37% of the population does, so the gene testing cannot be used to diagnose celiac, but only to rule it out. 5% have the DQ8, and of course some have both. If you have neither, you can rule out celiac.

Ha! How cool is that? I was just at the GIG conference in Chicago and I ate a few meals with a celiac and her parents from Manhattan Beach...I'll e-mail this thread to them.

Of course, there are always the chains to fall back on: Outback, TGIF, PF Changs, Arbys, etc., etc.

You mentioned bread.....

At the GIG conference in Chicago I found two breads that I find to be better than Ener-G or Kinnikinick...one of them--the already baked one is made by Charlotte's Bakery...they're centered in Salt Lake City and the bread has no preservatives, but is so...light! I never liked sandwiches after diagnosis because of the bread and here I was downing samples of Charlotte's.... PLAIN, UNTOASTED!

The second was Mona's. It's a mix, which may be intimidating at first, lol, but I tried the end product--amazing...French bread and regular. And she said that she's had 20-something-year-old males who made it, liked it, and wrote her about it. And if a young adult male can make it, ANYBODY CAN!

I was at the GIG conference in Chicago this weekend and there was a talk on DH...here are some of the basics:

- How long you had the rash prior to diagnosis will affect how long it takes you to recover...if you had it only for a few weeks, then it might take only a few days to clear up, but if you had it for years, it might takes months or years to fully clear up.

- You will not get dh unless you're getting gluten in some amount. It may not be enough to cause intestinal damage, but it will still give you the rash.

- Like Richard said, iodine can be problematic. Small amounts, such as that in salt, shouldn't be enough to produce a reaction, but multivitamins in particular could be problematic.

Absolutely terrible for celiacs...that's just as bad as going into a grocery store and buying whole wheat bread.

Oh, gosh, I've been away too long. I was in Chicago for a GIG conference and I had an amazing time...my first more than one day conference and I was in gluten-free heaven! Met some great people, too. But I came back to five pages of new posts...I'll be here till 3 AM, lol.

I'm not a huge fan of celiac disease sucks, either. I only have one type of celiac shirt--got it at a Columbia Presbysterian family screening fair where they also had some talks...anyway, it says Columbia University Celiac Disease Center or something in small letters on the front, and on the back in big comical letters it has "Got Celiac?" I wore those shirts during the GIG conference and everyone kept asking me where to get them

Will post of my full experience later.......

To find a post you made, click on your user name (Open Original Shared Link) and then below the big bold letters of your user name, click Open Original Shared Link. I can't find that particular post, though. Are you sure it went through? If your browser connection goes bad while it's trying to post it, you might have lost it. The only way to be sure it went through is to see it pop up once it's done submitting it.

No...just the IgA. But an elevated IgA is also relatively common, which is why the IgA alone cannot diagnose...you also need the IgG and the EMA

This passage refers back to the eating of "clean" and "unclean" animals in the Old Testament, under the "old law"...

Oh, shucks. I knew there must be a catch....

I especially love verse 17...

Me, too

I know very little about the Bible, but this passage seems to defend our right to a gluten-free communion. Look at 14... "But if anyone regards something as unclean, then for him it is unclean" (i.e. wheat, rye, barley). I am not trying to offend anyone, not trying to spark more sharp disagreement. I understand that the Catholic Church has adopted its own doctrine and has no theoretical obligation to change this. I'm just saying that if we interpret this passage, it seems to defend our choice in food. Thought it was interesting:

Romans, chapter 14

13 Therefore let us stop passing judgment on one another. Instead, make up your mind not to put any stumbling block or obstacle in your brother's way.

14 As one who is in the Lord Jesus, I am fully convinced that no food is unclean in itself. But if anyone regards something as unclean, then for him it is unclean.

15 If your brother is distressed because of what you eat, you are no longer acting in love. Do not by your eating destroy your brother for whom Christ died.

16 Do not allow what you consider good to be spoken of as evil.

17 For the kingdom of God is not a matter of eating and drinking, but of righteousness, peace and joy in the Holy Spirit,

18 because anyone who serves Christ in this way is pleasing to God and approved by men.

This seems to say: no food is bad or unclean, but if someone thinks it is (i.e. through an allergy or intolerance) then for that person it isn't okay. Then at the end, it says that God and piety doesn't revolve around eating or drinking, but about who you are as a person. And that even if you aren't eating gluten or a gluten-containing Communion, if you're being a good person, that's all that matters.

My diagnosis day I just...noticed this site was here, next day I barged right in with my first post. No fear here...or maybe more fear of not knowing than about the people or the board .

Since diagnosis, I've been taking a calcium supplement called: Natural Wealth Liquid Calcium. On the side label it says "GUARANTEED FREE OF: yeast, wheat, gluten, milk or milk derivatives, lactose, sugar, preservatives, artificial flavor, sodium (less than 5 mg per serving).

It says that it's for adults, though, sorry...didn't realize this was a kid's vitamin section. But maybe this will help some adults.