celiac3270

I was told by someone whom I trust completely that if a product is made in USA and it says modified food starch,  it is corn,  unless otherwise stated.

Alas, no. As Kaiti said, that holds true with maltodextrin, but modified food starch is just another coverup name like natural flavors.

LOL, alas. Just edited because I found it funny that I used that word

For the blood test? Sure...can't hurt.

For endoscopy/biopsy, yes, but don't eat or drink after midnight for purposes of testing. If you're having that test done, the hospital has probably told you this.

I think it would be too light to sub 1:1 for wheat flour.

I think it was about a week for me. Diagnosis one day, endo. scheduled for within 7-10 days. There's no reason why it should be a month.

LOL...yes, I got a message that had poop in it and when I hit reply and the other person's message came up with the quote thing around it, it had sh*t (but w/o the asterick; I'm just using it so when I hit post it won't change).

POST DELETED...sorry, thought this was a different thread

Ha!

Of course! I live in NYC--how did I forget to mention it!

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Do you have children? If so (and even if not), Disney World and Disney Land are two of the most celiac/allergy friendly places you can find. There are websites on which restaurants are best, but if you call ahead of time, you can go pretty much anywhere and get a reliably gluten-free meal.

Also for cruises...there's a group called "Bob and Ruth's Gluten-Free Dining and Travel Club" --they have something to do w/ cruises and gluten-free. Many of them will accomodate to celiac--I have never been, so can't give specific examples.

Finally, if you go...well, almost anywhere, and make sure your room has a kitchenette, you can do your own cooking--either with gluten-free food you brought or w/ food from a local grocery store (if it's in the US, you know which products are gluten-free and which companies will clearly label gluten).

Outside the US: Italy is among the most celiac aware countries. Besides the language barrier, it would be pretty easy to eat gluten-free there. As a matter of fact, I've heard that in Italy, those who are diagnosed as celiac get a card allowing them to get gluten-free food--free. Now, we Americans couldn't, but it just shows how much celiac is...understood there

Welcome! Feel free to e-mail me as well

Wow, that's a lot of work! Thank you for the effort

Oooh...yea. I don't like that about the fries, though (that rules are broken much of the time on those). I'm not making fun--it's good to have an insider's view

I know, Mariann. It would be good if you could list as many poll choices as you wanted (well, within reason) and choose how many you can pick (just one, all, five (as in, pick your top 5 favorites, etc.) But we're not the people who have to put all this in tedious computer languages...

1) not dairy free

2) too high in sugar

3) too low in protein

4) outrageously high in fat (12g for a hamburger bun?!)

5) not altogether that tasty

for my tastes.

Tiffany -- I can see your points about this--for me, though, df doesn't matter, I'm not health conscious enough to care (to a degree) about sugar, and I can use all the fat I can get. Plus, I'm not terribly good at cooking.

While on the high-fat thing, it's really interesting that the...store-bought gluten-free food is either extremely high in fat or has no fat at all--not really any medium. It would be quite a challenge for me to find a cookie with less than 5 grams of fat in it, but many foods have barely any fat at all.....can't think of a specific example off the top of my head--lol

I don't like the way the poll is listed, since it groups together my absolute most favorite pasta (Tinkyada) and my least favorite pasta (DeBoles, yuck!). I can actually say that I made myself a note on my shopping list to never buy DeBoles again.

Sorry...I know what you mean, but with a limit of 10 poll choices, I had to condense the pastas--I think it's a given that any votes for that category are due to Tinkyada

Because our digestive systems were not made to digest wheat and we cannot fully digest it as we do with rice, corn, etc. And that's not just celiacs--everyone. We went something like 10,000 years without wheat and then it was introduced to our diet. It's not good for anyone, celiac or not, though it obviously causes more problems in us than in non-celiacs.

Hey, it's hard to find I found I was still doing it the old way until just a few months ago--and I consider myself to be computer-literate.

Sure . A day or two ago I signed up for alerts on "coeliac" as well as "gluten" and "celiac" so that I could also post stuff for those not in North America. I'll try to put something next to those posts, such as UK or Europe or not US or something so they're easier to find:

Oops...this one is for the UK that I got, but it's a job offer, lol, which mentions "coeliac" in it....ugg.

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There was one on embryonic stem cell research and celiac disease, but they won't let me access it since it was published yesterday, not today

Awhile ago, I posted about the San Francisco something article... anyway, they have letters to the editor, now...found out about this from the St. Johns List Serv:

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I still wouldn't feel perfectly safe with that. I never trust that a counter is safe--it's just a matter of cutting something on a plate instead of the counter, etc. And be careful, because if your family bakes with flour, it stays in the air a long time and could also settle on the otherwise safe countertop.

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No, I have the pediatric GI at Columbia Presbyterian, Dr. Levy. But Green works in the same Celiac Disease...program as Levy and I have recommended him to many adults on here (just from his reputation)

Thanks, Kaiti

Yeah, when you go to search, you can click "More Options" to narrow it down by username, date, etc. Also, the most valuable piece of information with the search is how to narrow it down. Go to search, then under where you put in the words you want to search for there's a link called "Advanced Usage Help." Click on that--it explains it all. If you want to search for you must be celiac if, but don't want to get posts that just mention "celiac" or "you", put a plus sign in front of the phrases that MUST be in that post for it to appear as a result. So if you know that "if" is in it and celiac is in it, put a plus in front of both and they can only give you results that have both those words: you might be +celiac +if. I copied the explanation below:

Use Means

apple banana Find posts that contain at least one of these words

+apple +juice Find posts with both words

+apple -juice Find posts with 'apple' but not 'juice'

apple* Find posts with 'apple' and/or 'applesauce'

"Some Words" Find posts with the phrase 'some words of wisdom', 'some words' but not 'some noise words'

Well, one way that celiac can be detected is through bad enamel and ridges on the teeth. They're doing studies on this right now. Don't know with the connection in terms of pain with teeth.

Umm...I think that's more of an issue with things like oats. I don't think sugar would be contaminated. Regular sugar is one of those things that just...is gluten-free by default, sort of. Just as bananas or oranges are.

I posted about this, today, but Open Original Shared Link

Just hang in there, in a few days you'll feel yourself again... and we're always here to help

I agree that this board is also good therapy. It would probably be hard to find a therapist who knows about celiac, though... You could, though, mention celiac the first time you went, give a list of a few websites with which the therapist could educate himself/herself.

NY has among the best celiac drs., though. For adults, there's Green and he works with about six other doctors, who may not be Green, but are probably also good. Anne Lee is in my eyes the most knowledeable nutritionist when it comes to celiac and there's even a phenomenal pediatric celiac dr./GI w/ Columbia Prebysterian, Dr. Joseph Levy.