celiac3270

Sorry...we've had a couple slow days and I got no articles. Here are some new ones, though:

Open Original Shared Link

Open Original Shared Link

I checked 2 others I got in the alert and they had no pertinence to celiac disease....sorta like the ones I've been getting the past few days about importation of corn gluten

An IgA deficiency can make your otherwise positive test appear questionable or negative, which is why your doctor reconsidered after learning this. I am surprised, though, that if your biopsy showed damage, you weren't put on a gluten-free diet due to that. Anyway, it sounds as if your doctor made the right decision

Bye!!! I sometimes don't eat butter at the restaurant if it's just an....open stick that is so likely contaminated...

And welcome to the big apple!

Centrum is gluten-free and I'd recommend that.

I'd also recommend that you start taking a folic acid supplement

I'm not in favor of wearing them in general because if you can't talk and need treatment for something life threatening, glutening yourself should be the least of your concerns.

It might be good for intimidating waiters/waitresses at restaurants, though.

With a diet that is otherwise 100% devoid of gluten, the low-gluten host is a sensible and fine alternative. The average "gluten-free diet", however, no matter how careful you are, contains a degree of gluten, though not anywhere near the amount needed to get you sick (according to Anne Lee). My view of this, though, is that the low-gluten host is fine if you're diet is 100% gluten-free, but then if you get that tiny bit of contamination added to the gluten in the host, it might push the celiac over the tolerable amount. And, even if you don't react, I would not be able to stand intentional ingestion of gluten, however safe it is. Additionally, I see little logic, or reason, with requiring that little bit of wheat in the host...it seems ridiculous and petty to require that in the host. Would Jesus care?

Even for those who take or are happy with the low-gluten host, Ratzinger isn't necessarily the person you want to be pope. He also appears to be quite mysoginistic: he doesn't want women to have the right to be lectors at mass and even doesn't want them to wash out the vessels after mass--as if women carry some sort of plague. I'll cease ranting because it's done and they can't change who's pope, but I just wanted to share my 2 cents.

Aww...Ratzinger is pope and with this election we currently have no chance of the Catholic Church accepting rice Communions......

The religion folder at Delphi is full of disappointed Catholics.....If anyone wants to read what some people there are thinking I can copy and paste...just let me know.

Anyone else have any thoughts on this?

Risotteria is in the West Village (way downtown). Grand Central is at 42nd street and Bleecker Street is...right around third street. To get there, you could go to Grand Central, take the 6 train (subway) downtown and get off at "Bleecker Street." That puts you on the east side still, though. Then you walk west....here, they have a map of where they are on their website:

Open Original Shared Link

Basically, get downtown on the 6 and walk west. It's very popular in the neighborhood, too, so somebody might be able to help you find it if you feel lost.

Vinegar is sometimes okay. Malted vinegar and the like are not, but distilled vinegar, previously controversial, is, as are some others....

Healthfood stores...I don't know any in the neighborhood since I don't live there, but this list gives you the Whole Foods locations for NY:

Open Original Shared Link

Uhh...from Grand Central Station you could take the 6 train down to the 14th street (Union Square) where one Whole Foods is. Another is on about 57th and the west side (Columbus Circle) and is in the Time Warner building...that's the largest. I know of many healthfood stores on the Upper East Side and Fairways, a massive grocery store with an entire second floor that's like a health food store, but both are very much out of your way.

I know Elmer's glue is gluten-free.....and that's good to get a gluten-free play doh, which typically is not gluten-free.

Umm...would it work to make them into treats? Like....an apple dipped in gluten-free caramel sauce or Hershey's choc. sauce or strawberries with whipped cream and/or some sugar?

Yes--definitely a vitamin. Does he swallow them? If so, Centrum is gluten-free and has a full supply.

There are endless possibilites, but about the ones suggested so far....I love hockey, but I'm so annoyed at the strike and as much as I love the sport, a hockey player wouldn't be a...role model to me...I want to do something more intellectual with my life . Uhh.....I don't have any dream destination...don't watch cartoons, just reality tv . I could get a pic. of a sunrise from the good old avatar gallery, but that would quickly become as dull as this one . I'll think of it and see if I can get a picture of myself or something....It'll be difficult to part with my good old waterfall, though

Congratulations, Mela

Absolutely ridiculous....I was looking at samples from their archives online a few weeks ago--nothing of the sort--(btw, I was looking at their publication on the oats study...unfortunately, I would've had to pay to read it). No cure...I liked your response.

If you go to your doctor, GI or regular, you can have a blood panel done for allergies.....

All flavors of V8 Splash are gluten-free and very tasty. They contain veggies (primarily carrots) and fruits. Would he drink it? If you don't tell him that it contains veggies/fruits, that is.

I'm like celiac3270...I didn't have really unusual symptoms. My biggest 3 were nausea, anxiety, and weight loss. I did have some moodiness with it as well but that was not too bad(my parents may think otherwise )

Oh, right...I was anxious, too .

Since I was getting sick all the time, but seemingly randomly and I didn't know when it would hit, I would try to get everything done as early as possible (for example, a lot of weekend homework done on Friday, or studying for a test a couple days before I actually had to, in case I got sick and couldn't study the day before...).

Ian...lol and I like the quote in your signature: "What does not kill you makes you stronger." It's so true, though......

Kidney disease definitely and then a couple forms of cancer, but I think they're restricted to the intestines.

Well, if it got in your mouth it could cause a problem, but theoretically, a non-gluten-free shampoo won't cause problems. In other words, it cannot be absorbed through the skin.

If you can do so without sounding pushy, I would say, "It's my body. If I get sick, I'm the one who will feel the effects. Even a crumb of gluten will severely damage my intestines and could, besides giving me short-term symptoms (whether you want to mention gas or not is up to you) can lead to anemia and a host of complications: diabetes, intestinal cancers, thyroid disorders, malabsorption, osteoporosis, kidney disease, etc." And there's nothing wrong with exaggerating on your symptoms so people will listen to you. That's sometimes what you need to do to make someone take you seriously.

Good luck!

-celiac3270

Are you referring to the gluten-free prepared foods? I understand they're starting to integrate a gluten-free bakery into many stores. They just started with it in NY a few months ago and I think they started in the South East?

No terribly unusual ones, but: cramping, nausea, vomiting, diarrhea, gas, distention, low weight, pale complexion, and I guess mild depression/moodiness/irritability. The first...6 were very problematic, but are gone now. I've gained...26 pounds or 32% of my previous body weight (I was 5' 79 lbs at diagnosis and am now 5' 3" and 95.6 lbs and starting to gain rapidly (post-operation--in 2 months--15 pounds). Umm...I think I'm typically on the paler side, but I'm not ghostly pale like I used to be. Oh, and I'm happier now since I'm healthy!!!!!

Sorry, I'm not too unusual

As Kaiti said, Splenda is gluten-free. If you begin to experience gastrointestinal symptoms from it, though, don't worry. Some people, celiac or not, will get diarrhea or other gastorintestinal symptoms from Splenda that they don't get from other sugars or sweetners even though it's gluten-free.

Updated April 17. Yay!! We're well over 100 now!

You might be celiac if...

1. The centerpiece on your dining room table is a bread machine.

2. Your bread looks like a moon rock and tastes like dried out Play Doh.

3. Your bread weighs more than any moon rock could possibly weigh.

4. The only way you will eat your bread is toasted.

5. You've paid over $5 for a loaf of bread.

6. You make your own pizza

7. You visit a health food store at least twice a week.

8. You buy most of your food on the Internet.

9. One of your primary goals in life is to create "Fake Oreo Cookies" (and/or Cheerios)

10. There are Garage Sale stickers on all your kitchen food containers.

11. You have argued about and read articles about distilled vinegar and oats.

12. You've disinherited loved ones for putting their knife in your mayo.

13. You've ever been caught licking a discarded Twinkie wrapper.

14. At Christmas, visions of guar gum dance in your head.

15. You are a strictly brand name shopper

16. You've ever had to give a doctor a crash course in Celiac 101.

17. You weep at picnics, parties, receptions and fast food joints.

18. You weep at breakfast, lunch, and dinner.

19. You've ever "brown bagged it" to an elegant dinner party.

20. You have written "contaminated" on jars of peanut butter.

21. You have become friends with the customer service representatives at every company.

22. The customer service representatives at every company recognize your voice.

23. You know the difference between an allergy and an intolerance...and you care.

24. You have two of everything in your kitchen (pots, pans, wooden spoons, etc.).

25. You are afraid of spices and in restaurants, ask for your food "naked."

26. You are afraid of and have nightmares about bagels, pizza, and cake.

27. You make many phone calls from the supermarket.

28. You know what disodium phosphate, tartaric acid, and quinoa are...and care.

29. You know who Danna Korn, Peter Green, and Anne Lee are.

30. You bring many, many lists with you to the supermarket.

31. The first thing you do, upon reaching an unfamiliar location, is pinpoint the location of the nearest bathroom.

32. You have ever tried to explain to a waiter that "it is necessary to use clean pans for you food" and he stares back at you in disbelief.

33. You ordered a salad with no croutons and the entire time its being made you wish you could go back to the kitchen and watch them prepapre it but were afraid to ask.

34. You have taken a poop at all of your friends and relatives houses, even if you just met them...

35. You have explained to people the difference/similarities between Modified Food Starch and Modified Corn Starch at least 50 times (or you know what disodium phosphate is -- celiac3270)

36. You ask Asian restaurants if they have baked or mashed potatoes

37. You ask every restaurant if they have baked/mashed potatoes

38. You've kissed someone who just drank beer and wonder if you will get sick

39. You've kissed someone who just drank a beer and you really wanted their beer instead of your vodka/tonic, wine, spritzer, ......

40. You've responded to someone's post on a website about bowel problems and were brutally honest about your own "issues with bowels"

41. You read this post and laughed because you've "been there"

42. People think you're on the Atkins diet

43. You've asked for a bunless burger...and been looked at as if you have three heads.

44. You've asked about the ingredients of shampoo

45. You post on this board...that's not funny, though

46. You've washed your telephone after your child/spouse has answered it while eating.

47. You've checked all cups in a coffee shop for crumb residue.

48. You can say Kinnikinnick 10 times fast without making a mistake

49. With just one quick whiff, you can pinpoint the brand name and fragrance of every air freshener on the market!

50. You have had to leave the room because someone else was eating Pizza Hut's breadsticks and they smelled TOOOOOOO good!

51. Someone else complains of IBS, and you tell them to quit eating gluten!

52. Or you know someone that was dx with diverticulitis and you tell them to stop eating gluten!!!

53. You don't know what a "normal" bowel movement is.

54. You thought of (or started) a topic called "you might be a celiac if...."

55. Eating out is a "death sentence" not an enjoyable event!

56. All you eat at the church pot luck dinner is jello

57. Your tears compete with your drool when you pass a Krispy Kreme!!!

58. Carry some type of medication with 24/7 (ie Immodium)

59. At least once a day smile and say, "Sorry, I can't have that"

60. Have been lectured on your crazy dieting and told to just forget about your weight

61. Have survived for some period of time solely on rice or peanut butter

62. Physically flinch at the feel of bread or similar product

63. Feel nauseous at the sight of some gluten filled food

64. Have mastered the art of passing gas in public

65. You read this list to your SO (who doesn't have celiac) and they laughed right along with you.

66. You have ever thought you might explode from holding in a fart too long while in public

67. You have ever had nightmares about being trapped in the bread aisle in the grocery store

68. You have ever had a meltdown from actually BEING trapped in the bread aisle in the grocery store.

69. You call a dream about eating pizza and chocolate cake a NIGHTMARE!!

70. You read a topic called Cheating and you just KNOW it's not about her husband and her best friend!!

71. Your answer to this joke: "Why did the lion spit out the clown?" is something like... "Because the lion had celiac and as his fangs began to clench down he saw out of the corner of his eye that the clown's hand was holding a slice of pizza ?" When the real answer is: "Because the clown tasted funny!"

72. You pay $1.59 for a 12 oz bottle of rootbeer!

73. You

Great! gluten-free restaurants (or restaurants w/ gluten-free menus) are just springing up in NY!

Yep...Celiac is more American....coeliac is more British/Australian

I like Ener-G the best...the tapioca loaf. Then the Kinniknick....but I don't think there really is a good store-bought gluten-free bread. And it's difficult to make homemade gluten-free bread. All gluten-free bread can be made.....more edible .......through toasting.