celiac3270

You can use a program to change the size of your picture and I would recommend doing that...

Then, just make it so that it fits the required settings for the avatars:

Your Avatar Settings

Your avatar must be no bigger than 150 pixels by 150 pixels in size. Uploaded avatars from your computer must be no larger than 50 KB.

The following file types are allowed: gif .webp .webp .png

Oh, wow! Before, when I saw you joined in June, I just assumed that you were diagnosed around that time...you've been through a lot

That is why I want to take a stronger stance on the foods she eats, because I read here how some of you have paid for cheating, and I dont want that for her. She is almost done with her first four years of college, and I want her last semester to be trouble-free.

What we eat, isnt healthy by any standards, disease or not, we eat fast food somewhat often (usually just because of late night, nothing else is open kind of stuff), but not always. I want to find out what is safe to eat at some of these fast food places, and wasnt sure if anyone here could give me any ideas on that.

h

Also, how hard is it to get information like this from a sit down restaurant before going?

That's really caring/nice of you to be interested in taking an active role in this and helping her.

If you're going to eat fastfood, I'd advise you to eat at McDonalds. Assuming that you live in the USA, here is the gluten-free lists for all USA McDonalds restaurants: Open Original Shared Link.

I'm not sure about other fastfood places cause the only one I will eat at is McD's. You must be careful while there that the staff cooperates if you ask for a bunless burger. Make sure they don't just take the bun off of one, cause the crumbs from the bun are enough to cause significant damage to her intestines. The french fries should be safe, but I always make sure they're in a designated fryer or one used for fries and another gluten-free food.

About sit-down restaurants, I would advise you to call ahead. They've very likely dealt with people with allergies or other celiacs before. I find that the restaurants try to be very accomodating. Once there, whether you've called ahead or not, I would advise you (or your girlfriend) to talk to the chef if possible. This way you can explain the side effects to gluten ingestion and the necessary precautions the chef must take (for example, that he/she can't use a knife or spatula or something that has already touched gluten-containing ingredients, etc.). Don't feel bad about exaggerating because people need to take it seriously. You could also bring a restaurant card to give to the waiter to give to the chef.

-celiac3270

Yes, congratulations!

Karen, when were you diagnosed? I didn't realize that you had been on this diet for years and were STILL having symptom problems.

Yes, Happy New Year, everyone!

I have similar hopes to yours . Also, I heard Dr. Green talk on NPR a couple weeks ago. He said that within the next five years, there will very likely be a treatment (not cure) for celiac. It won't allow you to eat wheat, but, I guess it would heal your intestines and perhaps aid your digestive system. I guess the 1/2 hour radio segment is also a positive step for celiac awareness. We're getting articles in magazines, newspapers, and now segments on the radio. The word will get out...it might take a little while, but more people are getting diagnosed now and I think the word is really starting to spread. After all, if you look at how many new members we have and the rate at which they are coming, we're making progress!

Of course I hope that I can sort out my stomach and digestive issues during this next year. Actually, I hope we can all get healthy in 2005! All the best to everyone here and happy new year!

-celiac3270

Oh, I went to the Delphi site, but I can't get the chat room feature to work...maybe nobody else was on--that might have been my problem. With some chat rooms, they only work if someone is already at the page waiting or something weird like that. I saw the feature, though

Oh, wow...I didn't know there was a chat room at Delphi Forums! Never seen that...then again, I don't spend much time there...i'll go check it out, but I still like message boards

ps.--Read your posts re: the updates about your health. I hope you find relief soon!!!

Thank you

Oh, I was updated slightly, too---see the link I provided before....I didn't realize that Red deleted the posts himself...I thought it was Scott due to complaints about their length. He also left a link about msg.

Open Original Shared Link

There probably are some that are gluten-free and probably some contain gluten. I would just think that they would have gluten since they do contain so many ingredients and it seems that the cigarette companies throw everything into their product. I'm almost 14 and about two years ago in school they had this....talk to discourage people from smoking, drugs, underaged drinking, etc. and we were shown lists of all the stuff that's put in cigarettes....tars and amonia and.....a lot of stuff!!

Try calling the company....although if you can't get a response, it might just be further incentive to quit altogether.

In Europe, wheat starch is acceptable in a gluten-free food and is considered to be gluten-free. It is not in the United States. Basically, you can trust in the Europeans or you can play it safe.

No, I haven't found a celiac chat room, either. There are many message boards and I've been to a few, but I like this one best--enough information to be useful, but small enough to be personal and for you to actually feel like you know the people here.

I think that in a way, a message board is better than a chat room. If you have AIM, AOL, Yahoo Instant Messenger, MSN something, etc. you can talk to someone or even, with celiac AOL members, create a private chat room. On a message board, though, your topic stays up there forever, so you can get replies hours, days, and weeks later. Additionally, the information is left there for others to see and use....but no, I don't know of any chat rooms on celiac.

Hi Grissomz,

The view new post feature simply shows all the posts that are new and have not been read (or were just recently read) by you. When I click on "view new posts" I see a differents selection of posts than another member because the view new posts feature is customized to each member. When you log on and click on view new posts, you just get all the posts that were created while you were gone. Thus, if one member waited numerous days, then signed in, they might have 3 pages of new posts, whereas if I was on the board in the morning, then signed on a few hours later, I might have only two or three new posts. So, when your post no longer shows up in new posts for you, it is still going to be in another member's new posts. I hope I made sense there .

Now, when your post vanishes from view new posts, you can see it in two ways. On the main page of the forum if you scroll down there's an option: "today's active topics". Any post made in the past 24 hours will show up there if you click it. Additionally, once you've clicked that, you can change the settings to see every post in the past two days, past week, past month, etc.

Finally, you can click on the section of the board you posted in. Your post will not always be in the same spot, though, because moderators have the option to move posts to a more suitable section. I, for example, will move this post from the coping section to the technical help section. If you click on the right section, though, you cans see all the posts in it and yours should be towards the front within a couple hours. Initially, your post will be on one of the last few pages, until a moderator "pins" it, thus affirming that it's a relevant topic (and not some person spamming the boards, for example) and that it's in the right section. This moves your post to the first page of that section.

Hope this helps and welcome!

-celiac3270

Hey all!

What happened to Red?

Anyways...I learned that MSG is a preservative, and isn't a Gluten substance...

Open Original Shared Link

Oh, they weren't debating that MSG is gluten, but Red thought that MSG had negative effects on the body the way gluten does and could be why some of us had trouble with symptoms despite a gluten-free diet.

Though I would not recommend it, some doctors like to put their patients on a gluten challenge if the gluten-free diet seems to have helped them. The idea is that:

1. Prior to diagnosis you ate gluten...and you got sick.

2. You stopped eating gluten...and you're feeling better.

so....if you start eating gluten again, you should feel sick again. Some doctors have you eat gluten for a couple weeks after the diet seems to have helped. This way they can make sure that it was gluten that was giving you your problems and not some other problem. It's simply verification. So, a gluten challenge is when you purposely eat gluten for numerous weeks (after having tried the gluten-free diet and felt better on it) and note any symptoms or effects it has on your body. If you feel sick on gluten the second time, too, you can determine it was celiac.

I don't like the idea of a gluten challenge cause I feel that if you've tested positive before, you shouldn't put your intestines through distress again. A gluten challenge would be better suited to people who tried the gluten-free diet without first testing and now want to make sure they really have celiac.

There are probably better explanations...try a search for gluten challenge, but write it as follows: +gluten +challenge. Otherwise, the search will come up with everything that has the word "gluten" in it, regardless of whether it has to do w/ challenge. If you do a plus before each word, every search result must have both words in it.

-celiac3270

Oh, cynicaltomorrow, I never got around to your question ...I wouldn't know the answer (strack2004 seems to know a lot about the sc diet...you might try asking her). My advice would be to remain dairy-free in the beginning. If the diet works for you, slowly add dairy back. Do not add a lot of dairy at once. If you do, your body might react since it's not used to it. But if you have a little dairy one day and then slowly work it into your diet, you'll see if it's all right. I'd advise you to wait until you see effects from the diet, though, so that if dairy is your problem, you can see results in the sc diet first.

Yesterday I did a bit of research on the Specific Carbohydrate Diet on the internet and I, too, thought it might be a good way to alleviate or eliminate my current symptoms. It does, however, seem very restrictive--with no grains allowed at all, I think you're left with vegetables, fresh meats, and some fruit...anyway, to anyone interested in learning about this diet, but not wanting to buy the book , here are some links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Maybe, like the company suggested, the supermarket you go to has decided to stock other varieties/flavors of the soup. Or perhaps the Creamy Mushroom wasn't selling very well. If you ask them to, they might add it back...or just make smaller orders, knowing that you'll buy the soup.

Hmm....sad to see that all of Red's posts have been deleted and replaced with dashes...i would've liked to hear his replies.

Anyway, to reiterate Darlindeb's question, is MSG hidden as gluten is? And what exactly is it?

I read another side effect of celiac disease is long eyelashes... I never knew how I got long lashes when my Mom and Sis have none... when I read that it answered a lot of questions! There are SOME good things about celiac disease ~

Lol....I have REALLY long eyelashes...neither of my parents do, though...lol...yet another connection to celiac.

My tongue is sorta weird, too, according to the homeopathic dr. I've been going to. I don't see what he's referring to, but he said it has "islands" on it.....whatever that means

I got a reply from Progresso:

Dear Consumer:

Thank you for all the replies I've received thus far. It's nice to know you're not the only one--that there are others who, if not with the same symptoms, have been on the diet just as long or longer than you and are having similar problems.

Stacie, I'm not sure if I've been tested for either Chrons or Lupus--my mother said she thought I had been tested for Chrons...I'll find out, though and I'll do a little research on both to see if they could match up with some of my problems. I will also research and look up the capsule endoscopy and the gastric emptying scan.

Bmorrow and medaka...no offense and I'm not wishing anything bad on anyone else, but it's nice to know you're not alone in this situation. My mother gets really concerned that it's taking this long, and I'd tell her that I remembered reading of a few people who aren't better either...I've been showing all the replies here to her, cause it gives both of us reassurance that I'm not totally abnormal.

Lpowmacback -- my dr. said that after 7 years of poisioning myself, possibly more, it can take awhile to get better. He made the analogy to a speeding train. Once you start the diet, it's like slamming on the brakes, but it still takes awhile for the train to stop. Like the stopping of the train, the symptoms and damage from celiac disease aren't corrected overnight. What surprises me, though, is how after only about 7 years undiagnosed, I can take this long and not be better, while someone who ate gluten w/ celiac for 20 years has his or her symptoms vanish in a few weeks.

Finally, pturse, similar to you, I've found that my situation has, in some respects, worsened on the diet. Although the pain might not be as harsh and my weight has gone up, I used to get sick every 2-3 weeks and now I'm sick 1-2 TIMES A WEEK!

Thanks to everyone who has replied thus far and I'd love to read some more posts of this sort, or even some with happy endings

-celiac3270

Cheryllk tried to post this, but used the report button:

I can't take the pain anymore of hearing about all the doctors that have their heads up their tails and don't give a hoot about their patients.  I just got the phone call today and  Dr.JERK could not even call my cell phone he had to leave the message to tell me that a gene and stool test were not credible and he couldn't except it.  But I bet he would except an endoscopy for a thousand bucks and sedate my child with out a problem.    If it was in my divorce decree I would move to Europe, because their doctors have enough intelligence to admit that medical testing evolves, and doctors are not GODS.  (even though they think they are)  When I thought that I was all alone in my fight to have my four year old diagnosed and get her gluten-free diet fully underway, I read all the messages and I don't know if I am more sad or mad at what is being done to patients.  There has got to be some way to change this and whether it is fire the idiot doctors one by one or more awareness of the disease, I want to do something.  I am glad my child's damage is not severe. but time (on gluten) is not her friend.  I can only imagine the poor children who suffer needlessly because of misdiagnosis.  Am I the only one who wants to rent a billboard and let everyone know about the disease and how misdiagnosed it is?  Anyone have any suggestions on what I can do?  Sorry, but I am angry.

Yes...there's a pretty good, but slightly bland, bread crumb-type thing...made by Ener-G. My mom sometimes makes me chicken nuggets with fresh chicken into good-sized chunks covered with the bread crumbs...they can be made more interesting with gluten-free spices or salt. I've also tried them on veal and pork...also pretty good

I highly doubt that it's gluten-free. The seasonings could contain gluten, and the fryer is probably used for all chicken...probably not safe. You can Open Original Shared Link or see how accomodating they'd be.....

Here's my message! I used your exact words in the end...

Hello,

I'm writing to inquire as to whether Progresso Creamy Portabella Mushroom Soup has been pulled from your product line.  I am also writing in an attempt to bring back this soup if it is no longer being produced.  I don't see the soup in your product list, which is upsetting as it has been very helpful for me and my celiac friends.

Celiac disease is an intolerance to wheat, rye, and barley.  The tiniest amount of any of these ingredients causes havoc in the intestines of celiacs that takes month to repair.  Thus, many foods must be eliminated from our diets, particularly a majority of the mainstream products.  Your Creamy Portabella Mushroom soup (which has none of these forbidden ingredients) was so helpful...it's much more convenient to have the soup in the can instead of slaving over a stove to make a cream base and then only after that is done being able to make the caseroles, etc.

Thank you for taking the time to read my message.