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2kids4me

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Everything posted by 2kids4me

  1. 2kids4me
    I found this - it is an easy to read site and set up well: Open Original Shared Link an exerpt:
  2. 2kids4me
    Yes if thyroid levels are in range - it would be safe. reference range for pediatric ( this lab) Free T3 3.8-6.7 pmol T3 total 1.4 -3.3 nmol Free T4 12 -22 pmol TSH 0.2 - 6 mUL What we have found through time with Kathryn is she does best when TSH is around 2 -3 and T4 is 18 -20. With this in mind, the endo does...
  3. 2kids4me
    pre-existing condition in terms of insurance means any medical condition that was known to the patient at the time of application for insurance coverage. Otherwise I cant be of much help - I live in Canada and we have universal gov't health care. Private businesses often have separate "health benefit" plans... a certain amount of money is set aside for...
  4. 2kids4me
    Thank you for your kind thoughts... the extra estrogen isnt interfering with her levels quite yet..she is in the early stages of menarche and hasnt had "real period"...just occasional spotting every few months. Endocrinologist is watching this.. If your daughter has positive antibodies , I would encourage you to just start gluten free based on that......
  5. 2kids4me
    I like your doctor for the fact that she does seem to know a lot about the positive benefits of going gluten free. She doesnt dismiss or require proof of celiac. I think she likely mentioned it becasue if he does fit the criteria for bipolar and doesnt mention it then she is not a good doctor. What I am hearing in your email is that she agees that the diet...
  6. 2kids4me
    The endocrinologist who saw her for the initial consult has us take pictures at home on the day she was diagnosed and then 3 days later. She uses those pics in lectures about thyroid failure in children. We live an hour and half from the hospital where she was seen, and I guess, based on the clinical picture, this doc ordered a STAT thyroid screen and by...
  7. 2kids4me
    Hi and welcome. Yes she could still be celiac.... My daughter was diagnosed at age 4yrs and is doing well - thyroid wise Of all the things we deal with between the kids - hypothyroid was the easiest! The hardest part for me, was they didnt diagnose it til she was quite sick from it - she was sleeping all the time , constipated, stopped growing. I kept...
  8. 2kids4me
    There is nothing that I know of...I have a diabetic / celiac son plusa daughter with Aspergers and multiple health issues. For my son - we get a break in income tax (under disability credit). For my daughter, when she was preschool age - she qualified for in home help - gave me 3 hours where I could work, run errands etc. To qualify, though, she had to fit...
  9. 2kids4me
    I freeze them in small batches as soon as they are cool. That way - only have out what I now we can eat. Fo slices of cake or bars - I put wax paper between a few pieces so they dont freeze all togther. Or the cake recipe is made inot cupcakes and I can take one or more when I want. Hope this helps Sandy
  10. 2kids4me
    Not necessarily, esp in a young child. Villi blunting alone is not definitively celiac. they look for various cell types in the the crypts to diagnose. I will find another post re: villi blunting and give the link to pathology of small intestine and what can resemble celiac. EDIT/ add on from: Open Original Shared Link
  11. 2kids4me
    The amount of pee produced has nothing to with nutrient absorbtion - but rather fluid intake. Especially in a child. Is he active and alert - has an appetite? Perhaps when you eliminated the foods he was allergic to - his appetite did improve (becasue he feels better) and is eating more of the foods he can tolerate - and those foods have a lot of moisture...
  12. 2kids4me
    Have they ruled out endometriosis? This can cause the symptoms you describe.... you could have celiac PLUS endometriosis...so they should check for both. If the pain is getting worse, you should contact the doctor and let them known the intensity of the pain is changing. Thinking of you and hope they find out what's going on. Sandy
  13. 2kids4me
    my heart goes out to you. My daughter had hypotonia, fatigue, and fell behind developmentally until she was classified as global developmental delay. The various tests they wanted to do seemed never ending but they did have to rule out a number of issues that can cause hypotonia and it would be negligent for them NOT to do investigations since early therapies...
  14. 2kids4me
    Hi and welcome, I too enjoy baking and it was huge learning curve - I had a bad day when I purged my pantry of gluten and thought of all my favorite recipes that seemed to be part of the past....UNTIL I picked up some cook books (Bette Hagman), read more about baking with gluten-free flours, figured out which flour worked best in cookie or cake recipes...
  15. 2kids4me
    Anytime you are dealing with an infant - you want to err on the side of caution. Document what yuo have discovered so far - what foods make him sick and how he improves when those foods are withdrawn. There are a number of things that can cause diarrhea and lack of weight gain - other than celiac. It certainly sounds like a food related intolerance /allergy...
  16. 2kids4me
    Well today we celebrated Thanksgiving at my sister in law's place. she is absoutely great about gluten free. She made a gluten free dessert, had me bring the stuffing so it would for sure be "clean", another sister in law cooked a small turkey without stuffing at her house and saved the drippings so gluten-free gravy could be made. She also brought a salad...
  17. 2kids4me
    Perhaps this link will help - it addresses the misconception that Gluten-free Casein-free diet can cause harm to an autistic child and has to do with going "cold turkey etc. A bit from the site: it is an article posted by the autism research group. Open Original Shared Link
  18. 2kids4me
    It can be due to genetic mutations or environmental damage to genes. The DNA sequence is complex and it gets altered by means I dont think science will ever truly discover. Babies are born without brains (only the brain stem), born without immune systems or with albinism ...and with no family history of such disorders. Babies are made form the combination...
  19. 2kids4me
    Actually this thread has provoked some deep thought on this side of the keyboard. I never thought that anyone was trying to say gluten / celiac did not cause incredible damage to the body. The direction my mind has gone - is: Were humans meant to eat wheat /grains? Is that why so many people respond badly to ingesting them? If we were never meant to eat...
  20. 2kids4me
    Every lab has normal values. Even if she came back weak positive - its still positive. My daughter had the lowest number you can have and still be called postive. She had a biopsy that was conclusive for celiac (damage consistent with celiac sprue). Another consideration is lactose intolerance - even more common than celiac. You can try at home to withdraw...
  21. 2kids4me
    Please read my other post in this topic. I have reposted part of it here: The site is about the histopathology of biopsies. Other things cause villi blunting / celiac is a result of immune attack and has lymphocytes etc / allergy to foods has villi blunting BUT eosinophils predominate.
  22. 2kids4me
    Consider it done immediately, will pray for Noah and his family - I can't imagine what life is like for them right now. Bedside vigils and cafeteria food and life on hold....I would imagine Sandy
  23. 2kids4me
    umm, yeah I second the energy level comments! In vet medicine we joke that Jack Russells are the ADHD of the dog world. They are not afraid of anything. They were bred to go down holes after rodents and badgers...ever seen a badger? A Jack Russell will take them on. A westie is definitely more laid back and not as "dominant" as the Jack Runners...
  24. 2kids4me
    Test results can be unreliable in babies and young children, simply because of their immature immune system. You have a positive response to removing gluten from the diet. At this age - that's good enough for now. So many choices - sweet potatoe, potatoe, rice, carrots, chicken blended in the blender. I never fed my kids dairy or wheat until they were older...
  25. 2kids4me
    I did not get the impression that VyktOr was or did say we dont get sick from gluten. My interpretation is that he is questioning the classifcation of celiac as a disease . He said that gluten is poison to us. Maybe we are just a variant of normal. The discussion (I think) has been about the semantics of naming something a disease / defining a disease...
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