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rinne

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Everything posted by rinne

  1. rinne
    I'm thinking the co-infections mean Lyme. I need to understand this better. I don't get your doctor saying that, I'm thinking he doesn't know what it is like to spend four years having your life taken away by illness and needing to know what it is. I think I got spoiled by Hoffman, I felt like he so totally got it that he was willing to give me the...
  2. rinne
    I think your new avatar shows that you have matured to the point of safely exercising lunacy. Congratulations.
  3. rinne
    I think your doctor is smart enough to know that you want PROOF. And why not? After all you have been through Rachel, yes, you need to be clear. For me, it is obvious, I have most of the symptoms, I remember the rash, my health has been compromised ever since then and I can trace the development of the disease. Interesting side note about the...
  4. rinne
    My IgM results don't show anything really, 23-25 were IND and 41 was IND also. This is what concerns me in terms of how long I have had Lyme. I think doctors have to do is look at our symptoms using a variety of diagnostic tools, the Igenex Western Blot is only one tool. I agree, it would be nice have it clearly reflected in the test but...
  5. rinne
    Have you ever heard Orishas? They are a Cuban rap group and very fun to dance to.
  6. rinne
    Patti, sorry to hear about your experience with the zoloft, sounds awful. Have you ever tried Rescue Remedy, I think it is a Bach Flower Remedy. There is also a tea I have drunk, Tension Tamer, which is surprisingly effective. How are your B12 levels? Besides the pain and weight loss this past year, I have begun to notice a kind of fearfulness about...
  7. rinne
    A friend passed this along, Igenex testing:
  8. rinne
    I know, at my birthday party one friend just kept saying over and over again but you can't have GLUTEN and every time she said it she would grimace like it was just the most awful thing in the whole world. I was like, no big deal, remember I had just found out I had Lyme disease.
  9. rinne
    Yikes for sure! She listed eight people and said she knew of more. I really hope she pays attention to the information you've sent her. I think it is wonderful to be able to offer help and at the same time know that for some people change is harder than illness. That is the hard one for me. I think of a friend of mine who is being crippled...
  10. rinne
    My mind too. What are you dancing to Rachel? I puzzle over why people are willing to accept a diagnosis of ill health, as if it just goes with aging. I had people say, well you are getting older and sure but I went from being about 35 energy wise to being 75 with all the aches and pains in a year and a half. I think if anyone suggested Fibro...
  11. rinne
    Miamia, no need to be sorry, this is a good place to vent. Who better understands how hard it is to be ill day after day after day? It's good to know the eos is ruled out. Sometimes I rent sad movies just so I will cry. I had a long chat with a friend, who has had Lyme for thirteen years, about my results. She said many people get negative...
  12. rinne
    The important thing is to have a Lyme Literate doctor review the test results. A Lyme diagnosis is very tricky, the test needs to show not the results as not only positive or negative but also as indeterminate because a consistent pattern of indeterminates may show late stage Lyme. It sounds like a good time to have a massage or to do something...
  13. rinne
    That sounds so fabulous. Interesting questions. I have no answers. My sense is that until I started taking the salt/c I had no fight, no antibodies, and that it is because of the salt/c that there were antibodies on the test at all. When I had the test I had been taking 9 grams of salt and 5 grams of Vitamin C for three weeks...
  14. rinne
    I'm going to need a coffee to process all this scientificness.
  15. rinne
    I think my test took four weeks, I had it done on October 19th, but maybe that has something to do with my being in Canada or maybe IgeneX is getting busier. The Buhner book was helpful to me in understanding the test, basically what I got was don't invest your attention in only positive or negative results, read the indeterminate to see what is being...
  16. rinne
    Carla, try this link: Open Original Shared Link Dr. Hoffman's clinic had both of these products and he sent me home with them.
  17. rinne
    I thought it was very queenly of you, rather, "people do not panic". And you are our queen.
  18. rinne
    Rachel, I am amazed at how similar our results are. It convinces me even more that my seeming negative is a positive. The Meridian Stress Assessment and the muscle testing showed Lyme too. Speaking of Lymetoo, I did email her. I think she might be on holidays, I saw a post on Lymenet Flash this morning by her and she was talking about that. ...
  19. rinne
    Open Original Shared Link If I understand this article, it is saying the Western Blot is a useful tool if it is read properly, the problem is that the CDC places unrealistic expectations on it and therefore nullifies its' usefulness unless you are .a LLMD.
  20. rinne
    Thanks Andrea, that is really interesting and I am going to go back and look at it again. I appreciate you doing that, it is one of those tasks that just seems beyond my tiny little mind to even think about doing let alone accomplish.
  21. rinne
    Just Rachel away. I just found this:
  22. rinne
    How about a bioset voodoo woman? Okay, my numbers for the IgG: 18 kDa neg. 22 kDa neg. **23-25 kDa neg. 28 kDa neg. 30 kDa neg. **31 kDa IND. **34 kDa IND. **39 kDa IND. **41 kDa pos. 45 kDa neg. 58 kDa pos. 66 kDa neg. 73 kDa neg. **...
  23. rinne
    Rachel, can I get away with blaming my Lyme brain? My results are similar and I am understanding them in the same way. So, although the test says negative the indeterminate bands show Lyme and once treated will probably show up as positives rather than indeterminate. This seems to explain the difference between the IgG and IgM.
  24. rinne
    Hi happy girl. Rachel, cross posted again. LOL
  25. rinne
    I have my IgeneX test results in front of me and I don't have a clue what they mean. They don't appear to resemble your results Rachel. They are the Lyme IgG and IgM Western blot tests. This jumps out at me: I wonder if that is what Hoffman meant by atypical Lyme. I have quite a few indeterminate bands, I am thinking this...
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