Celiac Disease & Gluten-Free Diet Blogs

I have used this vitamin test a few times if you can not get your doc to do it just do it on your own...

https://www.5strands.com/collections/nutritional-imbalance-testing-for-adults-kids/products/nutrition-test

 I started having trimers and went to the ER they said your fine I was also having stomach pains lots of gas and blotting so they gave me some antacid and sent me home. I did not make it home that night as they were checking me out I passed out. So I woke up to lots of people getting me off the floor. They kept me for 3 days trying to find out what was wrong. They finely decided there was nothing wrong with me and sent me home. Less than a week later I was passing out all the time and the trimers was so bad that I could not do much at all. Light hurt so bad that it felt like it was burning a hole through the back of my head. I was back in a different hospital. They were doing all kinds of test but not finding anything by this time I was no longer able to do much and this time this doc told me there was nothing wrong I was just faking it to get attention so once again I was sent home without any treatment of any kind. By this time my mind was no longer able to function right I would go into hours of convulsions and each time I could feel part of me was slipping away. I lost a lot of memories during this time. I no longer could do anything but shake I could not walk could not even watch TV because my optic nerves was so sensitive to light that it hurt to even look at a screen. All I could do is lay in a dark room waiting to die. It was very hard to even talk by this time. My wife Kim just started firing every doctor that said there is nothing wrong or that its just some unknown neurological disorder. Its scary just haw many people die from unknown neurological disorders. It was two ladies that finely figured it out one was a naturopathic doctor and the other was a GP doctor that my wife Kim took me to. I remember they both would talk to each other on the phone they said I was there medical puzzle and they both saw that there was something wrong and never gave up. Then I get a call from the GP on a Saturday she said we found it! I need you to go to the hospital right now. She said when they tested my B1 levels it was so low there test could not even detect any at all. By this time I was in and out of hospitals and refused to go I was still recovering from an infected IV from the last time and If I was going to die I wanted to die at home. So Kim talked to the doc for a while and went out and got some B1 vitamins that seemed to help my stomach pains, but I was still shaking in my dark room. Then Monday came, and I went into the docs office, and she gave be a B1 shot buy this time my hart was racing all the time I could hardly see anything and I lost a lot of my memories but after the first shot my hart slowed down I was still shaking, but I could tell something was happening. It took a year for me to recover, and I lost some abilities. I used to be able to write code or make a web page writing in html or doing a spreadsheet was easy I can not do that now. I have a different personality now I think It's because I lost so many childhood memories most was not good ones anyway. I have 4 caped teeth from braking them during my uncontrolled convulsions. On a good note after around 6 months of shots I could watch TV and even though I saw Star Trek I got to watch it again for the first time along with Star Wars and I liked them just as much I think. I still can not write code and never recovered some memories, but I am making good new ones now!  I do test my vitamins each year now I was also low on B12 and Methofolate and vitamin D3. When I was told I had celiac no one ever told me that I would need to watch my vitamin levels or even tell me to take vitamins, but now I know that if I want to not die of an unknown neurological disorder I need to take vitamins because celiac and vitamin deficiency go hand in hand. It's something that should have been told to me by the first doctor that told me all I needed to do was not eat gluten. No one said test your vitamin levels and take supplements to fix any that are off. If you are seeing a doc that refuses to test and tells you they do not believe in vitamins! Firing them is the best thing you can do for your health because they will let you die of what they call an unknown neurological disorder before they will ever look at your vitamin levels. I do not understand why some doctors think this way. If you have celiac test your vitamin levels if your doc will not do it find a new one. I ask before I even go to a new doc. I call them and ask will you test and if they say it's not needed I will not waste my time and money on them there are good ones out there willing to do what it tales to get you healthy.