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An uneventful inoculation
It's been a week since my latest hookworm inoculation with my usual 25 Necator americanus (NA) larvae. The skin reaction this time has been mild. As I look at it now I just see some redness and several marks, really nothing to look at. The site was mildly itchy for a few days and that was the extent of it. I was using a topical corticosteroid cream 3x a day and I expect that helped. People talk about experiencing a 'bounce' of extra energy or wellness after inoculation, but I've never noticed an
Antibody production and Thiamine
I found these neat articles. B cells defined by immunoglobulin isotypes https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9985177/ And... Mode of Bioenergetic Metabolism during B Cell Differentiation in the Intestine Determines the Distinct Requirement for Vitamin B1 https://pubmed.ncbi.nlm.nih.gov/26411688/ And... Metabolism of Dietary and Microbial Vitamin B Family in the Regulation of Host Immunity https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6478888/ A10-Year-Old Celiac Activist Files Citizen Petition with the FDA to Label Gluten as a Major Food Allergen
Celiac Journey’s Citizen Petition Informed by 2021 FAO-WHO Expert Consultation on Risk Assessment of Food Allergens and 1,576 Public Comments Submitted to the FDA in Evaluating the Public Health Importance of Requiring the Labeling of Gluten On All Packaged Foods Jax Bari, age 10, has filed a Citizen Petition with the FDA to label Gluten as a Major Food Allergen. Celiac Journey’s Citizen Petition is requesting a long-overdue reckoning by the FDA to better protect more than 3.3 million
Inoculation was delayed but luckily completed
About 10 days ago I was called away out of my city on a family emergency. I had to leave on a Sunday, just before the courier with my hookworms were to arrive. I was frantic because were they to be sent back or lost I might not be able to get more until the spring as larvae often are killed in the cold weather. If that happened, I would soon have to go gluten-free and would experience colitis for months till I could reorder when the weather warmed. The package was sent internationally but IOn my controversial celiac status
It's been suggested that I clarify my claim of being celiac. Something of some importance as I am making the claim that at least for myself using hookworms has improved my life as a celiac, and making that claim on a celiac-oriented site no less. I have never had a positive biopsy test for celiac disease. There, I've said it. That said, I maintain that there is very little doubt that I am celiac, and the only reason I don't have that positive test is that I get far, far too sick to beI just made my hopefully last order of hookworm larvae
My renewal date came up on the weekend based on my new inoculation schedule of 5 months and I reordered larvae. All much simpler than it used to be, but I guess that's what you get once you learn the angles. Just a quick email to confirm the price and a visit to PayPal to send the money, and then the Provider then gave me a tracking code. The larvae should arrive in 9-11 days. Next month I'll order pipettes and vials from AliExpress and in 2-3 months I'll order a microscope and slides fromCircle K Nuts, Seeds and Nut Mixes Recalled Due to Undeclared Wheat
A variety of packaged nuts and nut mixes made by Azar Nut Co. in El Paso, TX have been voluntarily recalled by Azar Nut Co. due to wheat not being declared on their labels. The recalled products include: Power Snacks Honey Roasted Sunflower Kernels Circle K Sweet & Spicy Mix Circle K Get Up Trail Mix Circle K Honey Roasted Peanuts Select Cashews Halves & Pieces Honey Roasted More info is at: fda.govHarvesting hookworms and a new Discord Server for the Group
This week I've been reading up on self supply of hookworms, not just to save money but to ensure access. Covid made getting larvae difficult, and here in Canada it's hit or miss once the cold weather sets in. Larvae don't like temps below 5C and they can die in transit because of the cold. Providers usually resend for free but that still means being symptomatic for the duration. I once spent an entire winter gluten-free because of a DOA shipment. I've been shopping supplies on Amazon - a biMid-September Health Update
A few weeks ago I had a bad day marked by considerable GI distress. It was bad enough I figured I must have lost my hookworm colony. Immediately I went gluten-free and was better, so I thought I'd have to pony up earlier than I expected for my next inoculation. After a further 4-5 gluten-free days I reintroduced meat and gluten expecting the worst, but there was nothing, everything was still all good. Since then I've been on a regular gluten diet and I've had days of perfection where thereKirkland Signature "Gluten-Free" Chicken Tortilla Soup Recalled by Kettle Cuisine Due to Gluten
A September 9, 2023 letter from Kettle Cuisine: Source: costco.comDetailed study of hookworms as therapy calls it feasible, safe, and well-tolerated
https://doi.org/10.1093/ibd/izad110 Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the way for future full-scale randomized controlled trials regarding efficacy. The study used 30 Necator americanus larvae. The self-treatinGetting hookwormed - Step by Step
So you've made the decision to try Helminthic Therapy. What do you do now? 1) First you join the Facebook Helminthic Therapy Group @ https://www.facebook.com/groups/htsupport and make an introductory post. Tell the members about what you hope to achieve and a bit about your medical history. The regulars there are veterans at HT, use helminths (usually hookworms) themselves, and can answer any questions you might have. John Scott is the leader of the group and has been a hookworm host for yeStonewall Kitchen Issues Allergy Alert on Undeclared Soy, Wheat, and Peanuts in Peanut Butter Maltballs (6oz.)
Celiac.com 08/16/2023 - Stonewall Kitchen of York, Maine is recalling a limited amount of their Peanut Butter Maltballs (6oz.) because the product contains undeclared allergens: Soy, Wheat, Peanuts. People who have an allergy or severe sensitivity to peanuts, wheat, and/or soy run the risk of serious or life-threatening allergic reaction if they consume these products. This product was distributed through Stonewall Kitchen Company retail stores located in Maine, New Hampshire, MassachusettsWithdrawal
How bad can gluten withdrawal get? My head hurts so bad and I'm so dizzy I can't stand up. Coming up on 2 weeks gluten free. I'm getting worried
Should celiacs try hookworms?
I believe the answer to that question is an unequivocal yes. Celiac disease is a debilitating condition that uncontrolled exacts a huge toll on people impacting both their health and their quality of life. Controlled, by which I mean sufferers make serious effort to avoid gluten, celiac disease still lurks in the background waiting to act on diet missteps and likely contributes to the development of a variety of other health conditions. Hookworms help with the primary expressionFrito-Lay Issues Allergy Alert on Undeclared Soy and Wheat in Doritos Nacho Cheese Flavored Tortilla Chips Distributed in Pennsylvania
Frito-Lay has issued a voluntary recall of a limited number – less than 7,000 bags – of 14.5 oz and 1 oz Doritos Nacho Cheese Flavored Tortilla Chips that may contain undeclared soy and wheat ingredients from spicy sweet chili tortilla chips. Those with an allergy or severe sensitivity to soy or wheat run the risk of illness should they consume these products. The products covered by this recall were distributed at retail stores only in Pennsylvania and other outlets, such as foodservice loSide effects of Helminthic Therapy
I suppose it's to be expected that a treatment that has the goal of manipulating the immune system could have side effects, and for some people that appears to be true. Back when I started in 2018 with Helminthic Therapy (HT) I simply asked for 25 larvae from my provider because, well, the price was the same whether I ordered one or 25, so I tried to maximize my bang for my buck. I'm on the large side so I probably contributed to me not having problems with this strategy. Outside of the iniRichin Trading Inc. Issues Allergy Alert on Undeclared Soy and Wheat in Black Melon Seed
Richin Trading Inc. of Alhambra, CA is recalling its 6 ounce and 12 ounce packages of Tim Heung Yuen brand black melon seed because they may contain undeclared soy and wheat. People who have allergies to soy and wheat run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled products were distributed nationwide in retail stores. The recalled products were packed in plastic bags and can be identified by UPC 715685190013 and UPC 715685190020.What is it like to be on hookworms?
I have several feelings on the matter. First and foremost I feel gratitude. Beginning in my early 40s I was very sick. Because of my out of control immune system I was in great pain and suffered tremendous disability, social isolation, deprivation and vulnerability. With hookworms on board, all that is gone. Sure, with the best knowledge of exactly what foods were making me sick I could have become 80-90% better, but I was still damaged and always a crumb away from being devastatingly ill. WithOther Helminthic Therapy blogs
Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN8L0so01_lbcXA#Blogs Which begs the question, what is the future for this blog? What I've done so far is talk about my past, how I gotHelminthic Therapy videos
The Helminthic Therapy Support Group on Facebook maintains a repository of all its gained knowledge in the form of the freely available Helminthic Therapy Wiki (Google it). In it there's a listing of videos that the group has found most useful: https://helminthictherapywiki.org/wiki/Helminthic_therapy_in_the_media#Featured_videos I did a YouTube search for Helminthic Therapy and found a bunch more, many of them from people from the general public who did their own research. I noted factualStill a happy gluten camper
In case there was any doubt I'm pleased to report everything is fine. I've resumed a gluten containing diet and haven't experienced any issues. I mentioned my success to the people over at the Facebook Helminthic Therapy Support Group and they were all happy for me. One person said in the five years she's been hosting hookworms she's never considered consuming gluten. She's derived other benefits (remission from colitis) but she never took the step of trying gluten. Makes me think I'm braver tha-
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Blog Comments
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Impairment of Thiamine Transport at the GUT-BBB-AXIS Contributes to Wernicke's Encephalopathy
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You’re definitely connecting some real dots here, and your thinking isn’t off base—but it’s important to separate what’s established from what’s still theoretical.
There is good evidence that HIF-1α and hypoxia-related pathways are involved in inflammation and are elevated in celiac disease tissue . And separately, thiamine deficiency can push cells toward anaerobic metabolism, increase lactate, and influence HIF-1α signaling. So biologically, your chain of reasoning—thiamine → energy metabolism → hypoxia signaling → inflammation—is plausible.
Where it gets less certain is causation. Right now, the research doesn’t show that thiamine deficiency drives celiac disease. It’s more likely that:
- celiac-related intestinal damage → malabsorption of nutrients (including thiamine)
- inflammation → changes in metabolic and hypoxia pathways
So thiamine deficiency may be more of a downstream effect or contributing factor, rather than a root cause.
That said, your idea still has value. Even if it’s not causing celiac, low thiamine could:
- worsen fatigue and brain fog
- impact energy production
- potentially amplify inflammatory signaling
So optimizing thiamine status in people with celiac (especially untreated or newly diagnosed) could absolutely be beneficial—even if it’s supportive, not curative.
The current evidence supports association and modulation, not direct causation of celiac disease.
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Recent Activity
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- knitty kitty commented on Scott Adams's article in Latest Research3
Do Body Fat Patterns Influence Celiac Disease Risk? New Study Explores the "Immunological Shield" Theory (+Video)
If you read the original article, the study finds that women with Celiac are "apple" shaped, while women without Celiac are "pear" shaped. So, having skinny arms and legs while carrying more weight in the abdomen, apple shaped, is found with Celiac Disease. Women who carry their weight in hips and thighs, pear shaped, have the lipedema-like...- autoimmunity
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- Flash1970 commented on Scott Adams's article in Research Projects, Fundraising, Epidemiology, Etc.2
Maitake Mushroom Boosts Nutrition and Antioxidants in Gluten-Free Bread, Study Finds
Interesting article. Expensive mushroom- 1
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- Flash1970 commented on Scott Adams's article in Latest Research1
Can Your Gut Microbiome Protect Against Celiac Disease? Major Study Says It Might
Interesting article- 1
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- Virgogirl commented on Scott Adams's article in Latest Research3
Do Body Fat Patterns Influence Celiac Disease Risk? New Study Explores the "Immunological Shield" Theory (+Video)
I do not think they chose overweight people. I have Celiac, and I have noticed many years ago that my legs and my hips had become much thinner, even after having children. I didn't understand why until I read this article. I wonder if the reason why I tend to gain weight in my abdominal area may be a Celiac thing also. I am not overweight. However, when I...- 1
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- Threecents commented on Scott Adams's article in Latest Research3
Do Body Fat Patterns Influence Celiac Disease Risk? New Study Explores the "Immunological Shield" Theory (+Video)
So being fatter might be healthier?? It sounds like this study might have been skewed based on how participants were selected. Did they just pick women who were either overweight or had celiac? If so, then obviously the celiac group would have less fat.- autoimmunity
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